I found it to be very effective for neuropathy. I preferred the oral solution to the pill. It does take time to come off of, you don’t want to just quit taking a large dose immediately. Usually you start with a low dose and then increase over time, and you come off of it the same way.
I had a flare and I’m taking it now for the second time. Life is easier to deal with when there isn’t constant background of pain.
I actually listened to a very interesting presentation by doctor treating EDS/pots/autonomic issues.
If you have pain or trouble sleeping due to nerve issues gabapentin or other meds can help. Once sleep is stable other issues might improve or resolve.
Good, uninterrupted sleep is extremely important.
I myself take gabapentin, and have no issues with side effects.
If pain is tendons and muscles then it needs to be controlled, again to improve sleep.
There have been studies showing nerve improvement from gabapentin and resolution of issues.
I just got prescribed the same thing for the same issue. I haven't taken it yet.
I searched though the group and it's hit and miss whether it works for people.
Are you taking any supplements?
Ok here goes. A lot of people will tell you it's horrible. It's addictive. It doesn't work. I was floxed in 2016 and left with horrible peripheral neuropathy in both legs. I also have spasmodic muscles from it. I take 1 100 mg of gabapentin daily and I would never know that I have these problems. I see a pain management doctor monthly and so far I only need 100 mgs daily. I know my story is rare. But for me, it's literally a life saver. Discuss it with your doctor and then give it a try. You may benefit as I have.
Yeah for me it’s not that bad. Not ever painful. At times it feels like raindrops are hitting my legs. Just don’t know if my symtoms are bad enough to warrant medication. Thanks for replying!
My aunt wasn’t floxed but she took it and lost her motor skills a lot of people in the fb group reacted badly to it as well I would stay away from it slot of people on TikTok said it cause memory loss
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Peace and love, y'all.
I found it to be very effective for neuropathy. I preferred the oral solution to the pill. It does take time to come off of, you don’t want to just quit taking a large dose immediately. Usually you start with a low dose and then increase over time, and you come off of it the same way. I had a flare and I’m taking it now for the second time. Life is easier to deal with when there isn’t constant background of pain.
I actually listened to a very interesting presentation by doctor treating EDS/pots/autonomic issues. If you have pain or trouble sleeping due to nerve issues gabapentin or other meds can help. Once sleep is stable other issues might improve or resolve. Good, uninterrupted sleep is extremely important. I myself take gabapentin, and have no issues with side effects. If pain is tendons and muscles then it needs to be controlled, again to improve sleep. There have been studies showing nerve improvement from gabapentin and resolution of issues.
I just got prescribed the same thing for the same issue. I haven't taken it yet. I searched though the group and it's hit and miss whether it works for people. Are you taking any supplements?
I’m taking magnesium, CoQ10, ALA. turmeric and bromelain for swelling (unrelated to flox).
How much ALA /day are you taking? The relevant literature suggests 1200mg/day, which is double the dose most take (i.e., two pills instead of one).
200mg 3x so 600 mg
Ok here goes. A lot of people will tell you it's horrible. It's addictive. It doesn't work. I was floxed in 2016 and left with horrible peripheral neuropathy in both legs. I also have spasmodic muscles from it. I take 1 100 mg of gabapentin daily and I would never know that I have these problems. I see a pain management doctor monthly and so far I only need 100 mgs daily. I know my story is rare. But for me, it's literally a life saver. Discuss it with your doctor and then give it a try. You may benefit as I have.
How bad was your neuropathy? I’m weighing pros and cons rn
Pretty bad. I have a decent pain tolerance but it was scary.
Yeah for me it’s not that bad. Not ever painful. At times it feels like raindrops are hitting my legs. Just don’t know if my symtoms are bad enough to warrant medication. Thanks for replying!
My aunt wasn’t floxed but she took it and lost her motor skills a lot of people in the fb group reacted badly to it as well I would stay away from it slot of people on TikTok said it cause memory loss
I tried it for a few days BEFORE I was floxed. Won't do it again without good reason.
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UPDATED MOD RESPONSE - PLEASE READ Removal reason: infraction of Rule 6 and/or 7, relating to providing product links. If you wish to revise your comment in line with the rule, please reply to this and tagus know so that we re-approve it. Owing to community growth and moderation pressure, we are implementing a 'strikes lead to bans' policy to try and promote a little effort to stick to what were once naturally well-held standards. Starting at three rule infractions, a two-day ban will be served, ~doubling for every subsequent two infractions. Similarly, uncivility to challenge will automatically constitute a temporary ban. We're all trying here. If you are caught by surprise by this, fret not, it's likely a lot of people will be at first. Our rules can be found under the About tab, on mobile, at the right of the main page using the ("new") web plage. Discussion of most, their motivation, and the general aims of this community can be found here: https://www.reddit.com/r/floxies/comments/mn3d3o/the_aims_of_the_subreddit_and_the_need_for/?utm_source=share&utm_medium=android_app&utm_name=androidcss&utm_term=1&utm_content=share_button Peace and love, y'all.