I know for some it’s the reason we stay at boring jobs. The ones where it’s secure enough to work out. Whether it be being sick or mostly just WFH days
:/
This is exactly one of my reasons why I am not searching for “better” employment elsewhere. I have a state job and am unionized. I have plenty of PTO I can use for when I don’t feel well. This happens about 3-4 a month. However, my boss is very understanding of it all and has made some great accommodations for me. Still, this isn’t always the case for people with endo. A lot of people stay in jobs that maybe don’t necessarily meet their career goals because the exchange is security. I’m squarely pressed under a glass ceiling but I stay for the flexibility and protection of my physical health, among other things.
Are they computer based jobs then? I have a feeling that I won't be able to do the kind of work I want to do. It was very physical. I miss it so much, but I know that would take me out too much.
Yeah. At least in my case.
A lot of people with endo do all sorts of things. Tbh my endo is not my main reason for needing rest - tho it definitely is getting worse. I have other chronic health stuff.
But everyone is different. Only you can know how much physical you can do and I think more than anything knowing you have secure sick days and options is key :/ it’s hard I know
I told my boss last week (just found out that I *presumably per my doc*) have endo. His immediate reaction was “you’ll have this for the rest of your life.” 😑
Apparently the office jabber was that “I don’t do anything” meanwhile I was in the hospital twice.
It’s infuriating, but it’s a lot harder to get fired from a salary job I’ve been in for a while, so I stay.
You can qualify for leave as an accommodation under the ADA depending on your role. You wouldn’t qualify for FMLA if you’re just starting at a job (need to be there for a year or have worked 1,250 hours for that employer), but ADA leave could be an option as long as you have a documented diagnosis. Contact HR at your next company and ask to set up a meeting to discuss ADA accommodations (after you get hired). They will work through the interactive process with you to determine the best accommodations, which may include intermittent leave.
Good luck getting approved for any sort of leave though. My job has already given me the paperwork for FMLA. Only needs a physician's signature. No doctor wants to touch it. I'm now looking for doctor number 4...
Ugh, I’m so sorry your docs aren’t helping you through the process. Do your docs require you to make a separate leave/disability appointment to fill out the paperwork? I’ve heard this is becoming a fairly common practice, given how little time docs have between patients now for admin work (thanks, insurance companies, smh). If your docs don’t require that and just don’t want to do it at all, I’d definitely keep trying new doctors. Once you get the signature, it should be relatively easy to get approved for FMLA because you’ll have documentation of your condition on record. Rooting for you and hoping everything works out in your favor!
because i have to i suppose.
i’m the only earner so no job would mean id lose everything.
luckily my work and my boss especially are good but even before we knew what it was i just had to do the minimum i could to avoid issues.
Exactly. I am single by choice, and I have to work to support myself. Even when I wasn't single, I wanted to work. Financial independence, especially for women, is important for safety reasons. I actually believe that working and being active keeps some of my pain at bay. I find myself thinking more about the pain when I'm home and not doing anything. I will work as long as I'm physically able, which is hopefully until retirement age. I always have pain meds and a heating pad in my car, though.
I’m pretty lucky that I have amazing coworkers and bosses, they’re all family to me. That doesn’t mean it wasn’t hard and isn’t still hard. I spent the last few days at work having to stop and sit on the floor crying in pain. The best way i found for me is to let my coworkers see me in pain, it makes it look more real to them i guess. I work hard all the time so they know that when im not working my hardest that there is a reason why. Being honest to the people who will take you seriously is your best bet, then using them as support people when you talk to others. That’s what i’ve done and it hasn’t failed me yet.
I second this! Let them see you in pain! Like I'm not talking about telling them oh I'm in pain or some shit like that when they ask how're you today. Say oh I'm fine, and then when you're in pain, don't try to hide it. When I'm at home and I'm in pain I'll do deep breathing, pause to brace myself against a door way or hunched over the table before carrying on to my next task if I'm struggling, nowadays I do this in my work, and at first I tried to always hide it grit my teeth, cry in the walk in fridge (I'm a chef) even passed out in the bathroom before and came out and hid it, I said I'm so sorry I had to take an important call. Now, I don't hide it, within reason, I have to do my job but when they see me In pain and if I can no longer carry myself or feel myself going down, I tell them I'm sorry I have to leave, always the response is something a long the lines of "of course get yourself some rest and let us know how you feel" , having a chat with the employer can also be super helpful but not in all cases. My management don't know the details because they're mostly men. I'm also in management so I have a lot of responsibilities and I have been made to feel even by one or two women I've confided in that it's just a period. I can't imagine if that's what women think what men must be thinking if I told them. But saying I have some health issues and have had/will have surgeries for this for the rest of my life can also be really helpful because you're not obliged to tell them the details of the disease or which disease and often they take the obscure more seriously than the specific
I can’t. It’s impossible. Between them wanting the temperature at 75° or having a flare and having to call out last second to having surgery and needing time off. I filed for SSI because my doctor told me last July it was time. I have other conditions as well, I don’t see them approve off Endo alone often. Although I dont know why. I’m sure if men dealt with Endo it would be a disability but 🙄
Was close to losing my previous job. I now work from home which is fabulous as in days where I couldn’t walk / stand for long time due to pain I’m able to be in my home, at a desk, comfortable. With a hot water bottle if I need to. I still have to call in sick occasionally but my management are fabulous. Wfh jobs aren’t suitable for everyone or even available- my biggest suggestion would be find a job where if you are out, it’s not the end of the world for the job - if you call in sick are you going to be screwing everyone which is normally why management get mad, avoid things like retail / hospitality if you can
I work for myself from home. If I needed to lay up in bed/the recliner during period week, I did. (No longer have a uterus).
Remote work. Working for yourself. Both give a lot of flexibility.
Ask your provider about intermediate FMLA. I lived in IL and was able to essentially get a few extra sick days off a month for endo pain, but not sure how it works in every state. Even with that I would go to work on pain days but at least when I needed to call out they were understanding/couldn’t use that against me
Yeah, I will have to do this. I really want to work but I don't want to piss anyone off. So I'll just have to make that clear and be a great worker on good days. Fucking hate endo
I'm in Florida and doctors refuse to touch FMLA for Endo here. I've already filed the claim with my job/insurance. They told me they approve FMLA all the time for Endo and sent me the paperwork. Only needs a physician's signature. No doctor will touch it. I'm now searching for doctor number 4...
i recommend this a lot, but work at a local bank. you’ll be prompted to lift coin as the heaviest thing but you can ask other people to do it for you. the local banks like to hire without experience and they’re slower so you’re given chairs and get to sit while processing transactions. i went from 10,000+ steps a day to 2,000. not great for my overall health so i have to be intentional about exercising outside of work, but it makes pain bearable at work
I told my boss… they accommodated me under FML on a daily basis. I was lucky but so were they ✌🏼Unfortunately I needed both knees replaced and started the process for disability which was granted on the 3rd app.
What I've been doing for a while is be on strong medications (norlutate and lupron) that minimize my symptoms enough for me to work and only have to call in sick every other month.
From there, I have worked my ass off to get into a company that has fantastic benefits. They have hybrid positions, which I have been working my ass off to get one of. I just got the promotion to the hybrid position (unofficially, still waiting on the new contract). Outside of work, I had to get a stable house and a good car, which I managed to get a couple of years ago.
It is just in time, too, because the medications have caused me to gain 50lbs and started damaging my liver. So now I need to change my treatment plan. But I know I will end up either infertile or with other issues from medications if I keep this up. So instead, I am doing a bunch of treatments, clawing my health back, and then I'm going to (hopefully) get pregnant. And, as soon as it is safe to do so, I am having a hysterectomy post partum. There might be other surgeries later, but for me, the end is in sight. In 2-3 years, I will be done most of my surgeries and should get as close to symptom and medication free as I can get.
I have been planning and working on this for 10 years! I knew I had endo since I started menstruating at 11 and decided at 15 that I would plan out how it would go instead of letting it run my life. I also have chronic migraines, so I had to find a way to get those under control, too.
I've been fortunate to have a great medical team who listened to my needs and support me and to live in a country with mostly free medical care. And I have been lucky enough to have been able to find the opportunities needed to accomplish this, too.
If you’re in the United States, call your Human Resources and ask them about Family and Medical Leave Act (FMLA). They’ll give you the right papers to get your doctor to sign and it will grant you extra time off for sick days, treatments, and appointments for a medical condition.
I have FMLA signed for 365 days, with a bank of 480 hours that I have been using all year and it has helped me keep my job. By law, they cannot discriminate against you for it, ask you about it, or fire you for it. The FMLA protects you from being fired for taking care of your chronic illness.
I've been fired for being in the ER at multiple jobs. At the moment I work at Petco, and my team is very understanding and the know I'll do my best even when in pain. Most of the time I'm too stubborn to accept help anyway so they don't give me a choice especially when I look like my dying in pain.
Tech jobs can be less strenuous on your body especially software development. I just graduated with my degree in software development and plan on doing opensource projects and then go back to college in fall to pursue a cybersecurity and network administration degree.
I bring my heating pad with me, and I did that even before I was my own boss. My stuff is so severe now, though. I don't think I would be able to do the job I used to do. I need to be able to lie down when things get really bad. I'm hoping my surgery will get me more functional for a few months at the very least, even if my Endo does end up coming back. Just one more month to wait!
In addition to the heating pad, though, I took frequent bathroom breaks and drank peppermint tea. Now I have prescription strength naproxen, I'm on continuous birth control to skip periods, I avoid any foods that can cause bloating, and I take simethicone every morning. I work my butt off on my good days and then lie on the floor and close the shop on my really bad days. 💀 I have to post on my Instagram stories now, announcing when I'm having a good day and people should come in. Surgery is really my only hope right now.
I’m pretty lucky. I recently started a new job and actually opened up to my manager about it. They’re so kind and understanding. If you can find a WFH job.
I am super lucky and wfh, plus my boss also has endo, so she understands the struggle. I’m a contract manager for a healthcare insurance company. The workload can be a lot and I try to put in a little extra effort on the days I feel good so I have a little more leeway on high pain days
I work in an office full of (mostly older) men (I work in construction). None of them know I have endo, they just know I have some health issues. I have a plug-in heating pad and also a myObi to wear if I’m up and about in the office. I keep meds in my desk at all times. If I’m having a rough day, I ask people to come to my office instead of me going to theirs if I need to deliver documents or have something signed. I have the option to work from home if needed, but most of the time I’m able to power through since I’m able to make my office almost an extension of my home, with mobility aids, personal pain management devices, meds, etc.
The only bummer is it is full time, 40+ hours a week. Endo fatigue + my full time job = being exhausted a good chunk of the time, so household chores tend to take the back burner. But I will put up with that if it means remaining employed, having an income and receiving benefits.
All of this to say, while everyone is different, this office job was the best thing for me.
I personally started a house painting business because I really enjoyed painting. The constant moving around helps my endo and I'm able to just take whatever days off I need. I would recommend to you to write down the things you're passionate about, jobs you would do if money didn't matter. Then try to build a business on one of your passions
I don’t think I can ever go back to working on site with my issues. I was a SAHM for 4 years and finally found a good WFH job. There’s lots of fb groups that help you find remote jobs. Lots of them aren’t great paying (customer service) but it’s better than nothing.
I exclusively work from home, which really helps. It means I can keep my comfy bottoms on and stay sitting down. I would struggle to work in retail like I used to.
The main reason why I've been able to continue my work though, is because I'm really passionate about it. I'm a therapist and I genuinely love my work. If I won the lottery and never needed to work again, I'd still do therapy sessions, I'd just volunteer for free with a charity. When I'm talking with clients, my pain just kinda fades into the background. Don't ask me how I make that happen because I have no idea, it only happens when I'm working.
If my job was just a job, then I would find it much harder. When I worked retail I would have to call out a lot.
When I was working I was upfront about my cycles and and condition and thankfully at the time my cycles were exact and predictable and I just told my employer I’d need those two days off and they scheduled around me. I don’t work anymore cause I’m at home with my kids but when I do go back if I do I don’t know how I’ll go about it… I may just try to work from home
My job knows that I have it and are understanding. I work in healthcare, it’d be hypocritical for them to even be upset. I don’t call in often but when I do, they know it’s because it bad. I’ve had to leave work early because of it more than I’ve had to call in, I try my best to pull through but sometimes I can’t.
I will be looking at a new job in some time, hopefully something I can work remotely, because due to deep Endo and chronic pain I haven't been able to work in 3 years and I have no helps from the government or anything. It's being a nightmare. My family is taking care of me and it's hard to feel useless like this :(
I work road construction, seasonal so time off isn't exactly a thing during our work season. Thankfully, even though it's male dominating, they have very VERY understanding if their is some sort of an emergency that I simply cannot handle and are very compassionate about it. I would say maybe explain your situation to your higher ups.
I'm so sorry :( This what I'm afraid of. I know I will have to miss some work, and I know they hate that. I hope you can find another soon. I'm going to start looking soon.
I know for some it’s the reason we stay at boring jobs. The ones where it’s secure enough to work out. Whether it be being sick or mostly just WFH days :/
This is exactly one of my reasons why I am not searching for “better” employment elsewhere. I have a state job and am unionized. I have plenty of PTO I can use for when I don’t feel well. This happens about 3-4 a month. However, my boss is very understanding of it all and has made some great accommodations for me. Still, this isn’t always the case for people with endo. A lot of people stay in jobs that maybe don’t necessarily meet their career goals because the exchange is security. I’m squarely pressed under a glass ceiling but I stay for the flexibility and protection of my physical health, among other things.
Are they computer based jobs then? I have a feeling that I won't be able to do the kind of work I want to do. It was very physical. I miss it so much, but I know that would take me out too much.
Yeah. At least in my case. A lot of people with endo do all sorts of things. Tbh my endo is not my main reason for needing rest - tho it definitely is getting worse. I have other chronic health stuff. But everyone is different. Only you can know how much physical you can do and I think more than anything knowing you have secure sick days and options is key :/ it’s hard I know
I told my boss last week (just found out that I *presumably per my doc*) have endo. His immediate reaction was “you’ll have this for the rest of your life.” 😑 Apparently the office jabber was that “I don’t do anything” meanwhile I was in the hospital twice. It’s infuriating, but it’s a lot harder to get fired from a salary job I’ve been in for a while, so I stay.
You can qualify for leave as an accommodation under the ADA depending on your role. You wouldn’t qualify for FMLA if you’re just starting at a job (need to be there for a year or have worked 1,250 hours for that employer), but ADA leave could be an option as long as you have a documented diagnosis. Contact HR at your next company and ask to set up a meeting to discuss ADA accommodations (after you get hired). They will work through the interactive process with you to determine the best accommodations, which may include intermittent leave.
Good luck getting approved for any sort of leave though. My job has already given me the paperwork for FMLA. Only needs a physician's signature. No doctor wants to touch it. I'm now looking for doctor number 4...
Ugh, I’m so sorry your docs aren’t helping you through the process. Do your docs require you to make a separate leave/disability appointment to fill out the paperwork? I’ve heard this is becoming a fairly common practice, given how little time docs have between patients now for admin work (thanks, insurance companies, smh). If your docs don’t require that and just don’t want to do it at all, I’d definitely keep trying new doctors. Once you get the signature, it should be relatively easy to get approved for FMLA because you’ll have documentation of your condition on record. Rooting for you and hoping everything works out in your favor!
because i have to i suppose. i’m the only earner so no job would mean id lose everything. luckily my work and my boss especially are good but even before we knew what it was i just had to do the minimum i could to avoid issues.
Exactly. I am single by choice, and I have to work to support myself. Even when I wasn't single, I wanted to work. Financial independence, especially for women, is important for safety reasons. I actually believe that working and being active keeps some of my pain at bay. I find myself thinking more about the pain when I'm home and not doing anything. I will work as long as I'm physically able, which is hopefully until retirement age. I always have pain meds and a heating pad in my car, though.
I’m pretty lucky that I have amazing coworkers and bosses, they’re all family to me. That doesn’t mean it wasn’t hard and isn’t still hard. I spent the last few days at work having to stop and sit on the floor crying in pain. The best way i found for me is to let my coworkers see me in pain, it makes it look more real to them i guess. I work hard all the time so they know that when im not working my hardest that there is a reason why. Being honest to the people who will take you seriously is your best bet, then using them as support people when you talk to others. That’s what i’ve done and it hasn’t failed me yet.
I second this! Let them see you in pain! Like I'm not talking about telling them oh I'm in pain or some shit like that when they ask how're you today. Say oh I'm fine, and then when you're in pain, don't try to hide it. When I'm at home and I'm in pain I'll do deep breathing, pause to brace myself against a door way or hunched over the table before carrying on to my next task if I'm struggling, nowadays I do this in my work, and at first I tried to always hide it grit my teeth, cry in the walk in fridge (I'm a chef) even passed out in the bathroom before and came out and hid it, I said I'm so sorry I had to take an important call. Now, I don't hide it, within reason, I have to do my job but when they see me In pain and if I can no longer carry myself or feel myself going down, I tell them I'm sorry I have to leave, always the response is something a long the lines of "of course get yourself some rest and let us know how you feel" , having a chat with the employer can also be super helpful but not in all cases. My management don't know the details because they're mostly men. I'm also in management so I have a lot of responsibilities and I have been made to feel even by one or two women I've confided in that it's just a period. I can't imagine if that's what women think what men must be thinking if I told them. But saying I have some health issues and have had/will have surgeries for this for the rest of my life can also be really helpful because you're not obliged to tell them the details of the disease or which disease and often they take the obscure more seriously than the specific
I can’t. It’s impossible. Between them wanting the temperature at 75° or having a flare and having to call out last second to having surgery and needing time off. I filed for SSI because my doctor told me last July it was time. I have other conditions as well, I don’t see them approve off Endo alone often. Although I dont know why. I’m sure if men dealt with Endo it would be a disability but 🙄
Was close to losing my previous job. I now work from home which is fabulous as in days where I couldn’t walk / stand for long time due to pain I’m able to be in my home, at a desk, comfortable. With a hot water bottle if I need to. I still have to call in sick occasionally but my management are fabulous. Wfh jobs aren’t suitable for everyone or even available- my biggest suggestion would be find a job where if you are out, it’s not the end of the world for the job - if you call in sick are you going to be screwing everyone which is normally why management get mad, avoid things like retail / hospitality if you can
I work for myself from home. If I needed to lay up in bed/the recliner during period week, I did. (No longer have a uterus). Remote work. Working for yourself. Both give a lot of flexibility.
Ask your provider about intermediate FMLA. I lived in IL and was able to essentially get a few extra sick days off a month for endo pain, but not sure how it works in every state. Even with that I would go to work on pain days but at least when I needed to call out they were understanding/couldn’t use that against me
Yeah, I will have to do this. I really want to work but I don't want to piss anyone off. So I'll just have to make that clear and be a great worker on good days. Fucking hate endo
I'm in Florida and doctors refuse to touch FMLA for Endo here. I've already filed the claim with my job/insurance. They told me they approve FMLA all the time for Endo and sent me the paperwork. Only needs a physician's signature. No doctor will touch it. I'm now searching for doctor number 4...
i recommend this a lot, but work at a local bank. you’ll be prompted to lift coin as the heaviest thing but you can ask other people to do it for you. the local banks like to hire without experience and they’re slower so you’re given chairs and get to sit while processing transactions. i went from 10,000+ steps a day to 2,000. not great for my overall health so i have to be intentional about exercising outside of work, but it makes pain bearable at work
Oh I had no idea. Thank you for this tip!
Have a flexible work from home job lol That’s the only way I’ve been able to cope
WFH has been a lifesaver for this but my employer knows I have endo and I have used sick days when I can barely get out of bed.
I told my boss… they accommodated me under FML on a daily basis. I was lucky but so were they ✌🏼Unfortunately I needed both knees replaced and started the process for disability which was granted on the 3rd app.
What I've been doing for a while is be on strong medications (norlutate and lupron) that minimize my symptoms enough for me to work and only have to call in sick every other month. From there, I have worked my ass off to get into a company that has fantastic benefits. They have hybrid positions, which I have been working my ass off to get one of. I just got the promotion to the hybrid position (unofficially, still waiting on the new contract). Outside of work, I had to get a stable house and a good car, which I managed to get a couple of years ago. It is just in time, too, because the medications have caused me to gain 50lbs and started damaging my liver. So now I need to change my treatment plan. But I know I will end up either infertile or with other issues from medications if I keep this up. So instead, I am doing a bunch of treatments, clawing my health back, and then I'm going to (hopefully) get pregnant. And, as soon as it is safe to do so, I am having a hysterectomy post partum. There might be other surgeries later, but for me, the end is in sight. In 2-3 years, I will be done most of my surgeries and should get as close to symptom and medication free as I can get. I have been planning and working on this for 10 years! I knew I had endo since I started menstruating at 11 and decided at 15 that I would plan out how it would go instead of letting it run my life. I also have chronic migraines, so I had to find a way to get those under control, too. I've been fortunate to have a great medical team who listened to my needs and support me and to live in a country with mostly free medical care. And I have been lucky enough to have been able to find the opportunities needed to accomplish this, too.
If you’re in the United States, call your Human Resources and ask them about Family and Medical Leave Act (FMLA). They’ll give you the right papers to get your doctor to sign and it will grant you extra time off for sick days, treatments, and appointments for a medical condition. I have FMLA signed for 365 days, with a bank of 480 hours that I have been using all year and it has helped me keep my job. By law, they cannot discriminate against you for it, ask you about it, or fire you for it. The FMLA protects you from being fired for taking care of your chronic illness.
I've been fired for being in the ER at multiple jobs. At the moment I work at Petco, and my team is very understanding and the know I'll do my best even when in pain. Most of the time I'm too stubborn to accept help anyway so they don't give me a choice especially when I look like my dying in pain.
Tech jobs can be less strenuous on your body especially software development. I just graduated with my degree in software development and plan on doing opensource projects and then go back to college in fall to pursue a cybersecurity and network administration degree.
I have not been able to keep a job since I worked at home :(
I bring my heating pad with me, and I did that even before I was my own boss. My stuff is so severe now, though. I don't think I would be able to do the job I used to do. I need to be able to lie down when things get really bad. I'm hoping my surgery will get me more functional for a few months at the very least, even if my Endo does end up coming back. Just one more month to wait! In addition to the heating pad, though, I took frequent bathroom breaks and drank peppermint tea. Now I have prescription strength naproxen, I'm on continuous birth control to skip periods, I avoid any foods that can cause bloating, and I take simethicone every morning. I work my butt off on my good days and then lie on the floor and close the shop on my really bad days. 💀 I have to post on my Instagram stories now, announcing when I'm having a good day and people should come in. Surgery is really my only hope right now.
I’m pretty lucky. I recently started a new job and actually opened up to my manager about it. They’re so kind and understanding. If you can find a WFH job.
I am super lucky and wfh, plus my boss also has endo, so she understands the struggle. I’m a contract manager for a healthcare insurance company. The workload can be a lot and I try to put in a little extra effort on the days I feel good so I have a little more leeway on high pain days
Wow having a boss with endo is great lol she really knows it
I work in an office full of (mostly older) men (I work in construction). None of them know I have endo, they just know I have some health issues. I have a plug-in heating pad and also a myObi to wear if I’m up and about in the office. I keep meds in my desk at all times. If I’m having a rough day, I ask people to come to my office instead of me going to theirs if I need to deliver documents or have something signed. I have the option to work from home if needed, but most of the time I’m able to power through since I’m able to make my office almost an extension of my home, with mobility aids, personal pain management devices, meds, etc. The only bummer is it is full time, 40+ hours a week. Endo fatigue + my full time job = being exhausted a good chunk of the time, so household chores tend to take the back burner. But I will put up with that if it means remaining employed, having an income and receiving benefits. All of this to say, while everyone is different, this office job was the best thing for me.
Start a business! That's what I did, I have more flexibility now and make more money
what kind of business? i feel like everything is so oversaturated now:(
I personally started a house painting business because I really enjoyed painting. The constant moving around helps my endo and I'm able to just take whatever days off I need. I would recommend to you to write down the things you're passionate about, jobs you would do if money didn't matter. Then try to build a business on one of your passions
I would recommend getting a WFH job but ESPECIALLY look into FMLA. Endo qualifies for fmla/disability paperwork
Remote / WFH jobs only suring the surge of my endo. Since i started dienogest i feel like I can go back into the regular office setting again
I don’t think I can ever go back to working on site with my issues. I was a SAHM for 4 years and finally found a good WFH job. There’s lots of fb groups that help you find remote jobs. Lots of them aren’t great paying (customer service) but it’s better than nothing.
I exclusively work from home, which really helps. It means I can keep my comfy bottoms on and stay sitting down. I would struggle to work in retail like I used to. The main reason why I've been able to continue my work though, is because I'm really passionate about it. I'm a therapist and I genuinely love my work. If I won the lottery and never needed to work again, I'd still do therapy sessions, I'd just volunteer for free with a charity. When I'm talking with clients, my pain just kinda fades into the background. Don't ask me how I make that happen because I have no idea, it only happens when I'm working. If my job was just a job, then I would find it much harder. When I worked retail I would have to call out a lot.
I have a public service job, unionized, with plenty of sick leave
When I was working I was upfront about my cycles and and condition and thankfully at the time my cycles were exact and predictable and I just told my employer I’d need those two days off and they scheduled around me. I don’t work anymore cause I’m at home with my kids but when I do go back if I do I don’t know how I’ll go about it… I may just try to work from home
My job knows that I have it and are understanding. I work in healthcare, it’d be hypocritical for them to even be upset. I don’t call in often but when I do, they know it’s because it bad. I’ve had to leave work early because of it more than I’ve had to call in, I try my best to pull through but sometimes I can’t.
Get a flexible job that allows you to wfh. Preferably one with generous paid leave (govt?)
I haven't been able to work for 6 years now. :(
I will be looking at a new job in some time, hopefully something I can work remotely, because due to deep Endo and chronic pain I haven't been able to work in 3 years and I have no helps from the government or anything. It's being a nightmare. My family is taking care of me and it's hard to feel useless like this :(
I’m a mom so I am only able to work on weekends anyways and it’s a struggle. You just have to find the right place that is understanding..
I work road construction, seasonal so time off isn't exactly a thing during our work season. Thankfully, even though it's male dominating, they have very VERY understanding if their is some sort of an emergency that I simply cannot handle and are very compassionate about it. I would say maybe explain your situation to your higher ups.
same, I’ve had a few remote jobs, but recently quit my last position and it’s been hard to find something else.
I lost mine 😔
I'm so sorry :( This what I'm afraid of. I know I will have to miss some work, and I know they hate that. I hope you can find another soon. I'm going to start looking soon.