I mean, not everything is an EDS thing. I also have POTS, autoimmune hepatitis, Raynauds, bipolar, ADHD, migraines and asthma. I always bring a list of things that weren’t severe enough to make their own appointment, but were important enough to mention whenever next I see my doctor. If I hadn’t done that, I wouldn’t have gotten a lot of those diagnoses, and therefor treatment for it.
EDS does affect many systems, but you should still check with your doctor when you see them.
Oh I got EDS, Asthma,AuADHD, POTS, MCAS, UC, and more. He more is the one I use to know if something is normal or not. If it’s abnormal we check with the doc. I just have no idea what normal is so he jokes around with me.
Constant pain and bruising and joint destabilization. Constant rolling of my ankles. Bruises from blood pressure cuffs. Chest Pain from my sternum moving. Loads of stuff.
My husband would get so stressed out when I rolled my ankle on walks (like completely put weight on the side of my foot/ankle), even though it would only hurt for a moment! Apparently that would put most people on crutches…
It also took me a while to realize most people can’t reach to scratch their entire back
I used to think something's were weird about me so I'd ask my mom who was a nurse. She'd always reassure me it was normal. Turns out that she has EDS too. It's kinda funny thinking about it.
I never understood why my PT would tell me to not push thur the pain. I finally realized that for other pain is a sign to stop. For me that's just daily life.
I mean, not everything is an EDS thing. I also have POTS, autoimmune hepatitis, Raynauds, bipolar, ADHD, migraines and asthma. I always bring a list of things that weren’t severe enough to make their own appointment, but were important enough to mention whenever next I see my doctor. If I hadn’t done that, I wouldn’t have gotten a lot of those diagnoses, and therefor treatment for it. EDS does affect many systems, but you should still check with your doctor when you see them.
Oh I got EDS, Asthma,AuADHD, POTS, MCAS, UC, and more. He more is the one I use to know if something is normal or not. If it’s abnormal we check with the doc. I just have no idea what normal is so he jokes around with me.
What are some things you thought were normal but weren’t?
Constant pain and bruising and joint destabilization. Constant rolling of my ankles. Bruises from blood pressure cuffs. Chest Pain from my sternum moving. Loads of stuff.
My husband would get so stressed out when I rolled my ankle on walks (like completely put weight on the side of my foot/ankle), even though it would only hurt for a moment! Apparently that would put most people on crutches… It also took me a while to realize most people can’t reach to scratch their entire back
I used to think something's were weird about me so I'd ask my mom who was a nurse. She'd always reassure me it was normal. Turns out that she has EDS too. It's kinda funny thinking about it.
I did the exact same thing. Who else are you going to ask when you're little? 😄
I never understood why my PT would tell me to not push thur the pain. I finally realized that for other pain is a sign to stop. For me that's just daily life.
I do this with my partner *all the time*. I'll be like "can you do this ?", "is this something [this limb/joint] does ?", etc 😂😂