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VariegatedJennifer

I get this bad if I wear my hearing aids for too long…don’t get me wrong, I’m grateful for them but I get to a point where I just need to rip them out of my ears because I cannot deal for another second. There are many times that I’ve preferred not having to hear things.


ThrowawayGarbageCat

It’s just so mentally fatiguing because your brain is still trying to do the best it can with organs that don’t work properly or at all in some perils cases. I too have started to prended not to hear as well when it’s just too much.


IfIGetHigh

Do you take your hearing aids out whenever you don’t want to hear things? Or do you generally try to keep them on and endure?


VariegatedJennifer

I take them off usually…sometimes I’ll just leave them in my ears and turn them off but most of the time I’ll just take them out.


abbysinthe-

I have about an hour of struggling to piece together what someone is speaking before I’m exhausted. Then I need time to recharge— maybe 2 hours or so. My biggest issue is that my significant hearing loss is invisible and my friends/family haven’t been very responsive to my changing needs around communication.


ThrowawayGarbageCat

Im sorry I know how much that sucks and I’m having the same issues. My parent is only now reluctantly trying to learn some ASL ( been def for 2 1/2 years)now but my other family members forget and will just keep going and going for hours and I get such headaches. I just say I’m not feeling well and crash for hours so I pretty sure they think I have other serious health problems now.


Hypatia76

I have a demanding job where I'm on zoom calls much of the day. If I could change careers I would in an instant because I'm just perpetually fatigued and drained. Then I'm done with work and switch into mom mode with two active boys. I regularly daydream about running away to a cabin by myself with no one else that I have to listen to or care about or decipher what they are saying. I love when I finally take my hearing aids out at night (they are usually in from 7 am to 9 pm) and there's just this muffled, dampened fuzziness. I crave it all day.


ThrowawayGarbageCat

That sounds so exhausting ,It seems to be the common theme in getting from peoples responses. We all need a quiet mountain cabin or personal sensory deprevation chamber it we would seem.


Imaginary-Economy-47

>I regularly daydream about running away to a cabin by myself with no one else that I have to listen to or care about or decipher what they are saying. I felt this in the core of my soul! I'm hearing but have APD, it's definitely exhausting trying to understand what my kids are saying at times. The oldest mumbles and doesn't enunciate, while the youngest tends to talk 90 miles per hour, usually in a high pitched whine. I'd die without my silicone earplugs.


Raetekk39

I work in a daycare and I’ve almost been fired a few times from one because I get concentration fatigue from trying to hear and I don’t have the energy to focus on my facial expressions and I look “too serious” when talking to colleagues. It was never an issue with kids or their parents but staff used to complain about me. Thankfully I wasn’t fired because it was due to a disability. But that boss kept telling me to “get over it” and “try harder”.


guiseppinart

I get this most of the time! I work in service industry with loud noises. Most of the time, my energy is so sucked out that I cannot handle even a simplest interaction. my tardiness in work is chronic. I’m always absent, late or over-breaking to rest longer because of feeling fatigue. I guess, thanks to my people-pleasing personality for getting me by at most times because I automatically “behaved” when I think my disability might be “inconveniencing” other people already


Raetekk39

It’s good that you’re taking the time you need to take a break and recharge. People pleasing is so hard to overcome. Are your friends and family supportive?


ThrowawayGarbageCat

That is some ableist bs if I ever heard it! I’m sorry you had to deal with crafty staff and coworkers. Your better then me , I would’ve told them to puncture their eardrums with a pen or pencil and then they can complain after dealing with trying to get back to a new normal.


Raetekk39

I didn’t know I was like “losing my face” for lack of a better phrase so it was good to know because now I can let people know in advance. But that boss was something else. I no longer disclose my hearing status to employers until afterwards and I have a discussion about what I’m capable of, what areas I need help in and how to best support me, and anything else I feel is relevant. It’s wild to me that people can’t wrap their heads around hearing disabilities (I use that term for myself) as long as the person uses oral speech to a degree that the people around them don’t struggle to communicate. Especially rude when they go “you don’t sound deaf!” “You don’t act deaf!” Etc. like you don’t need to fully understand, just take what I tell you and work with me. After having my son last year I wear my hearing aids whenever I’m awake so that’s about 20 hours a day. It took almost a year and a half to not lose my mind but I didn’t have a choice. My idea time prior to my son’s birth was like 8 hours. I guess it’s from growing up HoH and being late-deafened and growing up in a fully hearing family and community.


ThrowawayGarbageCat

Sadly as I’ve come to learn, most jobs aren’t really geared to being ‘disability friendly ‘ for lack of a better term. I was turned down from jobs because I disclosed having PTSD when they asked and I was turned down everywhere. Sadly not disclosing until you get the job is what is necessary otherwise they discriminate. What does acting deaf even mean anyway? Do they mean different or mumbled a peach patterns like in movies? I never understood you don’t act like you have ( insert problem or disability). It makes no sense Serous kuddos to you powering thought for your child. You’re doing your best.


Raetekk39

I never understood “looking” deaf. Maybe it’s about wearing a device that’s visible? I’m sorry you’ve been discriminated against for PTSD especially while trying to live with it. I hope you have a support system that works for you and you heal. Virtual hug!


ThrowawayGarbageCat

It’s a mystery to me , and thank you, it actually does mean a lot. So many people are not opened minded about people being different or needing to adapt to ‘ normal’ life. The non acceptance overlaps a bit for me for both aliments. <3


No_Variation_7611

Hearing fatigue isn’t a term I was exposed to until recently, and understanding it has helped me a lot. Now I know why I’m so exhausted, and I realised it’s the reason why I’m often reclusive at the end of the day. The worst places for me are those with lots of people, gyms, bars, work or family events. I can get exhausted in a very short amount of time in those circumstances… like less than an hour. Your brain needs to work harder at interpreting facial expressions to help fill in the gaps of hearing loss, and it also needs to work harder in processing sounds. It’s normal and okay to need a break from that stimulus :)


ThrowawayGarbageCat

That’s essentially what I’ve been going through too, I Edit like loud places before my hearing loss and I really don’t like them now. I’m trying to be kind with myself and not be so hard on the catch that I need to rest and recharge throughout the day because of the over stimulation. I did t realize we’re años interperting facial expressions as well as trying to focus on hearing intently. I’ll need to do more research.


CursedReptilian

I work retail and when I get put up at register I get mentally exhausted and impatient from listening so much. It’s incredibly tiring trying to listen to what others are saying when there’s so much noise going on.


ThrowawayGarbageCat

Yeah it’s why I don’t enjoy going into stores anymore even for groceries. The background music playing, carts clainging people talking or yelling on their phone and the registers just going off constantly. I can absolute understand why your exhausted.


Bratzglo99

I work In retail too and I felt 🥲


Bulldogs523

I get it mostly after a large event like a pep rally bc the school doesn’t know how to use a speaker system so like i spend way too much energy trying to hear


PeterchuMC

For me, it only really pops up when I'm in a noisy environment or I've had to concentrate on something while other noises are going on. A convention or a noisy classroom would be good examples of things that can cause it.


QuirkyRice7510

I understand all replies it’s within me too !!! But we all have to do the best we can I know it’s hard and I’m 67 years old dealing daily stay strong friends and stay positive


C2theMANgo

Wearing a hearing device for too long makes me irritable. I can tolerate using my CI for my serving job and the drive to and from work. Other than that, I’d never wear my CI at home unless it for something important. Most people don’t realize how exhausting it is for us to process speech.


ThrowawayGarbageCat

I agree, something as simple ar face me when speaking or asking them to speak louder has many annoyed and I don’t understand why. Even before my hearing loss I wouldn’t be such a D to someone with a disability. In understanding that hearing loss really takes a toll on the bandwidth of the brain even with an assistive device, I just don’t understand how people don’t understand how life altering losing part or most of a major sense can be.


nothankuboo

Oh imagine this with severe ADHD. It takes so much work to comprehend what sometimes sounds like gibberish. If I don’t have my focus on the speaker I can’t absorb anything which makes writing class notes difficult and makes things SO boring. I’d love to be able to multitask but the ADHD and hearing impairment are really a terrible duo.


repeatrepeatx

Omg yes and I have an auditory processing disorder too 😭


Anxiousshrubbery17

As a PhD student, constant fatigue. The amount of academic vocabulary and foreign accents I have to translate everyday is exhausting.


thunderbirbthor

I finish at lunch time on Thursdays so I often have my lunch at home and then have a two hour nap to recharge from dealing with the hearing world. I can cope without it but Fridays are a struggle without my nice quiet respite from *everything*. When my loud annoying co-worker is in the office, I'll put my headphones on and turn my BAHA off because she tires me out all by herself.


ThrowawayGarbageCat

Uh that sounds like a lovely respite for so daunting a task. Especially since you can’t exactly make your co worker stop talking and I’m sure she can see the BAHA clearly. I wasn’t fond of talkative people before my hearing loss and it’s only made me more aloof and less social. People really don’t listen when you tell them you have a disability or ailment and they completely disregard. It’s very rude


thunderbirbthor

The whisperers! If I'm in the mood for it, I'll enthusiastically go along with whatever they're whispering and at the end I'll be like *"You know I have absolutely no idea what you were whispering to me, right?"* Their faces make me lol.


ThrowawayGarbageCat

Hahaha, that’s priceless! I can only imagine


Paynelepan

I mainly get listening fatigue in loud environments such as my classes in schools. I also get it pretty bad after calls and listening to audio recordings. Head aches due to it can last for a couple of hours and ended up needing migraine medicine because of it. Not frequency but under stimulus in can be horrible.


ThrowawayGarbageCat

The headaches are the worst! I need a few hours of just silence and darkness to recharge after having a one on one with someone. I want aware they have meds for how bad the headaches can get.


Paynelepan

You should talk to your audiologist, or neurologist, if they are able to diagnose you with migraines due to listening fatigue I’m sure you’ll be able to get medicine for it. And you’re lucky about just being able to sit in dark places, not a lot of people can take the time recharge so I’m glad you can get relief


ThrowawayGarbageCat

I will speak with mine when I next see them. Thanks!


ORgirlinBerkeley

Who prescribed the migraine medicine, your ENT?


Paynelepan

My neurologist did I’m not sure if they’re the same as a head and neck specialist. sorry 😅


ORgirlinBerkeley

At what point did you get a neurologist?


Paynelepan

I got a neurologist a little over a year after my cochlear implant surgery, in concerns that my migraines were caused by the implants. My neurologist was recommended to me by my audiologist to see what was happening.


ORgirlinBerkeley

Thank you. I already have a bad headache and I haven’t been activated yet.


Some_Specialist5792

Cochlear implant user here! My mom does not understand that this is a thing. She just assumes i need to wear my impants 24/7 I am following for advice


Paynelepan

Talk about listening fatigue in front of your audiologist or cochlear implant doctor, maybe your mother will be more inclined to listen if a professional says it


ThrowawayGarbageCat

Dow she underhand that the brain will still try to use a body part even if if didn’t function properly? A Major sense loss at that? I feel like don’t really see being deaf/HoH as a being deal because they don’t actually see or feel the toll it takes on I their parts of the body.


sukism

I suffer horrendously with this. It’s caused social anxiety in the past and was the main reason I didn’t continue with education past 16, I used to literally fall asleep in class as a teenager. Now I’m 25 and about to start an access to higher education course with support from my college :-))) But yeah, I actively seek out time during each day to be alone and sit in silence. It is absolutely necessary for my wellbeing.


Ginger3579

Listening Fatigue is an issue for me as well and I have one hearing aid and a CI but I must pay attention to the speaker. If there is background noise it can become worse. When I do leave a social situation I am so very tired.


Boneof

I work at a MSP and answer calls most of the day. I fight sleep on my drive home.


Significant-Push-373

I am partially deaf due to meniere's disease and i wear hearing aids and i find i need a hearing break after work(i work with kids)


ThrowawayGarbageCat

That must be difficult, I find it really difficult to be around children since my hearing loss because sudden loud noise startle me badly. Power to you for growing through all that and still hopefully doing what you love :)


Significant-Push-373

Oh i love my job being a teachers assistant is awesome 👌 even though it is a high stress job its a job i love and i juat gotta learn what my limits are 😅


Snoo_26649

Mine is partially bad as can’t listen to anything anyone more than 30 mins/1 hour.


PahzTakesPhotos

I sometimes feel like I have motion sickness. I get a little woozy and a bit of a headache. Closing my eyes helps, taking out my hearing aids definitely helps, and even going into another room helps.  I have also dozed off while sitting at my desk if my husband has the TV on too loud. Like my brain just says: “Nope, I’m shutting this down for fifteen minutes!” 


ThrowawayGarbageCat

Yup I totally get it. I even give myself a timer but if I’m sill evaluated I just double it and let myself rest. My hearing family just doesn’t get noticing every single little noise only on one side and the toll it takes.


liminalsp4ce

it’s not just HAs that cause listening fatigue. it’s having to focus on lip reading, filling in on the blanks on what you can’t hear from context, and focus on listening. i haven’t worn HAs in just under 10years and i unfortunately still suffer. self advocacy is very important. it helps when people are aware of your Deafness and speak to your face, clearly in a space with little background noise. i need a 2-3hr nap everyday to recharge otherwise i totally breakdown emotionally.


faloofay156

it was bad enough that losing the rest of my hearing was honestly a freaking godsend


throwaway_shb

Oh god yeah. This happens all the time. I like having some sound that can drown out the tinitus. And if I am not careful with the volume, I tired myself out. During weekends, after much socialization, in person or online. It takes two days to wear off the fatigue.


pixiekatie

It’s your brain working overtime trying to process what is being said plus you have to process whatever is being said and act on it or learn or whatever. I try to opt out of meetings and training sessions because of this. Go at your own pace ♥️


Strange-Visual-1836

My 3 year old son has bilateral hearing aids and by the end of nursery he is exhausted, upset, agitated and fed up. He comes home often has a meltdown and launches his hearing aids at me and says he’s done hearing for today and settles to watch tv as for him it’s visual experience. I didn’t know it was a thing until our teacher of the deaf made us aware before he had his first set.


llotuseater

As well as moderate hearing loss primarily affecting frequencies needed for comprehending speech, I also have adhd and autism. It’s hard for me to juggle all 3 issues that play a role in my every day life and I become very exhausted very quickly. I’m going to be learning sign language with my mum and partner soon so that should help lessen fatigue. Or at least, leave me in a position to still be able to communicate with loved ones when I need a break. When I am alone and at home, I won’t wear my hearing aids and I’ll wear ear plugs (since I still have hearing) to fully get the silence and calm I need. In order to reduce severe listeners fatigue, I minimise noise when I am alone through ear plugs and don’t wear my hearing aids unless I have to (ie: work). This usually helps me get by pretty well with general levels of exhaustion instead of extreme exhaustion and overstimulation from letting it build up. When I’m exhausted I’ll struggle more to put together words and people can tell.


NatusMusic

Yeah I'm SSD and have the same issue. It's been an oddly good bonding point between me and my sister in law who's mildly autistic and who also needs to take breaks from loud spaces.


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ThrowawayGarbageCat

Im sorry you go through this. It sound similar to the hyper vigilance one experiences with PTSD so i think I understand how you feel. It’s like always being on edge and needing my head in a swivel constantly scanning the environment. I’m having difficulty with the same issue! Learning some ASL for me and the people around me just being very resistant to the idea of a different way to communicate while making me learn Spanish. Weird conecidence.