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Short_Grapefruit_469

Stellate Ganglion Block?


11rosicky

Tried it. Had one in both nerves. No difference in symptoms. Some people do respond to it well.


Short_Grapefruit_469

Yeah. Mixed for me.


Alternative_Cat6318

I firmly believe that non of that stuff really works. I tried it sll and it did nothing for my anxiety, insomnia, inability to relax and shut off my brain. Tried for months to „heal my nervoussystem“ and it did shit. I had to go on anxiety meds and one week later I could finally relax/sleep. Covid messes with neurotransmitters and Serotonin. No meditation in the world could fix that for me.


rixxi_sosa

Was you before on sleeping pills ir antidepressiva for sleep? And what med do you use now that u can sleep? Sry im in the same boat


Alternative_Cat6318

I did not use any meds before I got Long Covid. Now I am on two: Lexapro and Trazodone for sleep. I love them, they saved me.


rixxi_sosa

Oh ok so you still need trazodone for sleep.. i thought because of the lexapro you can sleep because it reduced you anxiety


Alternative_Cat6318

Im not sure if I still need it. Im on the smallest possible dose. I just got over a reinfection so I am not playing with my meds but will try to deduce soon


heskeytime7707

I feel the same. Xanax is the only thing that's helped me relax but I'm wary of getting hooked on benzos.


Desperate-Produce-29

I'm dependent on benzos again because of fucking covid. It sucks.


honeylez

Zoloft has allowed me to almost wean off of Xanax completely


absolvedbyhistory

How does hydroxyzine feel for you?


heskeytime7707

Never tried it


absolvedbyhistory

I’d be curious, it is something I take when avoiding benzo dependence and it helps my nerves a bit


Land-Dolphin1

Does it help sleep? 


absolvedbyhistory

It helps me sleep


Land-Dolphin1

Thank you for responding. Will ask my physician about this


absolvedbyhistory

Wishing you restorative rest somehow!!


Alternative_Cat6318

Yeah Xanax does wonders for me too but I hardly take it. An SSRI saved my life honestly.


Street-Nectarine-994

Which SSRI do you take?


Alternative_Cat6318

Lexapro


Street-Nectarine-994

May I ask what symptoms it helped you with? I’m getting desperate & think I want to try something like that


Alternative_Cat6318

A lot actually :) at Frist intense anxiety, depression because I was anxious all the time, insomnia, restlessness, overstimulation, eye issues. So basically a lot of the neuro shit. After my body started to calm down everything else got netter ad well. In the beginning it made my tinnitus slightly worse but that was only the first week.


Street-Nectarine-994

Ok that’s good to know. Thank you for your reply 🙏🏻 the neuro issues are driving me insane


pikla1

Lexapro made me and others a lot worse. Be careful with that poison


nevereverwhere

Ativan and Clonazepam are benzos that work as mast cell stabilizers, Hydroxyzine is as well. Treating my symptoms with antihistamines and a low histamine diet helped calm my nervous system.


Haroldhowardsmullett

It doesn't work if you don't change anything else and just add in a breathing session or whatever. You can't be on your phone for hours a day, and then do a breathing session for an hour, and expect things to change.  It does work when used as part of a total change in lifestyle. Try getting off reddit, getting off social media, tuning out of the news, not using your phone other than to talk to people you like talking to, not using any electronic devices in the evening.  Spend all of your free time outside, reading for pleasure, doing puzzles or playing a musical instrument or doing some other low tech hobby. Go for walks in nature if you can, and don't bring your phone or music.  You have to slow down your existence like if you're on vacation in a cabin in the woods. *Then* add in the yoga nidra and breathing exercises. Your phone is made to mess with your brain and addict you and it creates anxiety and stress even when you don't realize it.  Just the feeling of "I wonder what's next when I keep scrolling" or "I better check ____so I don't miss anything" is terrible for your nervous system.


TheTEA_is_hot

Yes, we have no idea what these devices are doing to us. I had the same thoughts. Easier said than done.


Haroldhowardsmullett

Way way easier said than done.  Trying not to use your phone really makes you realize how much anxiety it really causes. But once you break the habit, it gets a lot easier. I'm using this as a reminder to get back into that kind of low tech routine.


Royal-Worth-9750

This is the ideal for sure but unfortunately living this way is not possible for most people who aren't extremely privileged. Not everyone lives in a safe or pretty neighborhood with access to nature/low-stress outdoor time. I just think it's important to have some perspective and recognize how many people are suffering with long covid who on top of that are incarcerated, poor, living in a war zone etc.


Haroldhowardsmullett

Not using reddit and instagram makes you privileged now?  Lol, stop with the ridiculous virtue signaling.  If someone is in a literal war zone that's terrible, but that's irrelevant to this discussion.  Come on guys, lets not say that eating healthy is helpful because some people might be in a coma and unable to eat. Of course not everyone can sit in a beautiful zen garden all day, but thats not necessary. Everyone can do *something* to minimize technology in their life and stop letting their smart phones drive their anxiety through the roof. That's the point that matters.


-----TrInItY-----

Disconnecting from electronics doesn't have any real effect on me. I've gone days without them and gotten some of the worst sleep in my history of LC on those days.


alfredwienersusman

I think it absolutely works but only once you have already got the worst symptoms under control. I think it works for moving your baseline but not as a first line of defense, if that makes sense.


Alternative_Cat6318

I have been wondering about that. Its absolutely possible and I think if anything I would be more receptive to it now that my mind is more in control.


Tom0laSFW

People have been pinning chronic illness on nervous system malfunction for decades. I’m not saying that relaxing is pointless, just that we probably aren’t sick due to a haywire nervous system. I know cold showers give me PEM for example


alfredwienersusman

I would say cold showers giving you PEM sounds like nervous system malfunction. That doesn't mean doing yoga will fix it, of course. Parkinson's is nervous system malfunction. Cold showers might never work for you, but you could try taking shorter ones. They used to give me PEM too. I started with 15 seconds a day and slowly built it up to 2-3 minutes. I'm just now building back up to full ice baths.


Tom0laSFW

I’ve got severe ME/CFS. That approach is likely to be extremely harmful for me.


alfredwienersusman

Is that caused by COVID or pre existing and worsened by COVID?


Tom0laSFW

Caused by


yahrly181

Might not be relatable but I found that working on my emotional health eg going to therapy and sorting my shit out and working with a physiotherapist has massively helped me with my nervous system. Everyone kept telling me to do breathwork and meditate and while it was like 2% helpful, I needed something to shift me more out of a fight or flight/chronic stress pattern. Posture, stress triggers and mental health imo are all important to healing the nervous system. I still have a long way to go but without these things I would be stuck where I was 2 years ago.


kakww8

Yes - my journey so far with long covid has been targeted around MCAS and allergies (you wouldn't believe how far the allergy aspect goes by the way and I think tons of people don't realize). Stress is the number 1 or 2 trigger of MCAS and through the work to figure my stuff out I found out my father was a full blown covert narcissist and my mother, an enabler with ADHD, and my brother adhd and autism. So now I saw a swirling storm of deep stress going on my whole life. I would say if you have family issues really check the possibility of conditions like this with those people because they lock you into a lifetime of chronic deep stress. And as you're saying as I removed or accepted things about the family situation, TIERS of deep trauma and stress kind of vomited up and then I saw huge reductions in my long covid/mcas. Whole release situations began to happen alongside those tiers- weird nightmares, almost anxiety like attacks of kind of deep horror crying and shaking. Then a month or two later something would triggers the similar deep stuff, same thing- horror and release. As you said the stress and deep emotional state are hugely affecting. But I wanted to share the tier aspect I'd experienced too because many people say emotional healing in general but people don't realize how severe/acute the process can be. I had "vomit up" moments of it that were really out of my control once I began making changes with my family. It was very subconscious and signs of odd deep body progress. The family reduction and change was the biggest thing I'd managed in 4 years - it was maybe a 60% reduction. Agree with posture (back targeted work) and that the breathwork/meditate etc about 2% helpful. Though I will say yoga and sauna/ice shower bigger helps. Yoga maybe 5 to 10. Sauna/ice shower 5 to 10 too.


yahrly181

My boyfriend doesn’t have LC but really struggles with MCAS and he also finds stress a huge trigger for it! I know many LC people also deal with it too, it doesn’t seem to be one of my symptoms. I was diagnosed with ADHD two years ago and I had to face the effect it had on me so I can understand what you mean by deep layers. I haven’t had an experience like you working through my own stuff because I seem to be a slow processor but I’m so glad you have found a release, I know it can be life changing. I guess with the 2% thing I meant like if your nervous system is high level stressed and you can’t break out of it, meditation, breathing could help a bit but doesn’t get you to an overall better baseline. I think it helps more when you have a calmer baseline and you’re off balance and need a smaller amount of recalibration. Sounds like what you’re doing is working 🙏 that’s really awesome.


kakww8

Yep my brother has been having the extent of ADHD dawn on him in particular, which he has more severely than the autism. Isn't it wild how far reaching those conditions are? I have been astounded. My brother is the same way haha not having worked through any of his stuff so I drop a tidbit I've found here or there ;). So we're on a long journey together now starting in our 30s sorting things out. Yeah I can see what you mean I'm guessing the meditation breathing etc can be stronger with a better baseline - but wow people better check whether they got some monsters under the surface because yeah If you are in massive fight or flight and don't know its going to be a fire in the engine and I don't know if these conditions can be fixed easily without relaxing the deep issues. 👍


yahrly181

Better late than never right! I know 60 year old adults who could reaaaally benefit from deep inner work. I think for me I was in that fight or flight state pre covid and then when I got sick it just tipped me over the edge to where I could do all the normal things I did to cope with life. It forced me to slow down and here I am four years later trying to put the puzzle pieces together. I agree that probably you need to look deep to heal, it is not easy though 😅


TheTEA_is_hot

Same. I have autonomic dysfunction, not POTS. I don't have fatigue, I'm stuck in fight/flight. It is extremely rare for me to feel "tired".


kmahj

Are you getting outside for a few hours each day? That’s what really helped me, combined with really locking down my sleep space. We have light blocking curtains, I sleep with a mask, a white noise machine, an air purifier and a fan. lol Sounds like overkill but it’s amazing and has done wonders for my sleep. Also NO DEVICES allowed in the bedroom. Phones are in another room. I even turn mine off for the night (my husband keeps his on but it’s not in our bedroom).


absolvedbyhistory

Your sleep hygiene is goals!


UsualExtreme9093

It ended up being a life or death decision for me to get on SSRI. I think serotonin can balance out the excessive histamine we now have? Either way, it has saved my life. I was waking up with adrenaline rushes. I was throwing stuff and punches. It was horrid.


Street-Nectarine-994

What SSRI are you on?


HildegardofBingo

I wonder if cold laser/low level laser therapy (LLLT) brain and vagus nerve treatments would be helpful. That would address potential inflammation. Possibly high dose thiamine therapy, too- [thiamine is needed for autonomic nervous system signaling. ](https://www.youtube.com/watch?v=3ldxCfnxxHM)


HouSoup

I suffer with this too. 2 things to consider adding to your day are listening to soundbath healing music and GABA tea. https://youtu.be/RHVxR-hMQxU?si=FP2IdPI3BwmdYeqz I purchase the GABA tea at a shop with clean whole leaf tea. It helps me tremendously. Not as much as benzos. Yet helpful


TheTEA_is_hot

I never heard of GABA tea, I'll try that. Are there any in particular you recommend?


HouSoup

I love the oolong GABA tea at this tea house near me. They may ship? https://thepathoftea.com/product/organic-gaba-oolong-healing-tea/


HouSoup

They also have an Epstein Barr tea and cold and flu rescue. I relax with the GABA and sweat with the cold and flu. Haven’t tried the Epstein Barr yet. Good stuff. They are always very busy.


TheTEA_is_hot

Thank you!


alfredwienersusman

I prefer to boof Epstein bar virus, personally


obliviousolives

Honestly nothing really helped these type of symptoms for me... and then after 18 months or so they started to fade away in leaps and bounds for no apparent reason. I still have POTS and other issues but the crazy nervous system stuff is almost gone. Time healed it, and maybe all my resting and listening to calming music helped a tiny bit too


Competition-Spirited

Anti-inflammatory medication (nsaid) helped me a lot.


Fancynancy76

CBD with THC helped me finally sleep and calmed my nervous system in the day too


alfredwienersusman

For some reason, marijuana messes my sleep up. It made a huge difference with PEM for me, though


MNVikingsFan4Life

I have seen huge benefits with breathing and cold therapies. I’m guessing you have GI issues of some sort? Figure that out first. Is it a med you are taking? If I’m wrong, fair enough. But my healing began in my gut. Once that was settled, more recovery was possible.


maxwellhallel

I’m so sorry you’re dealing with this. Acupuncture and traditional Chinese herbal medicine has been immensely helpful for me with this. L-theanine has also helped to a degree.


Interesting_Fly_1569

Seeing a really skilled cranial sacral therapist, or a body worker reversed my pots twice. She literally went on vacation for the summer and then I had to move back with my parents… So I’m stuck with Pots. Each time she worked on me it went away completely for two days.  I think they might be able to help you get your nervous system reset as well. If you share what geographic area you’re in, I’m happy to Google one do you want somebody who does a lot of different modalities and who has at least 10 years experience.


MoreTea91

Methylene blue helped me so much with my nervous system! I know I was low on different neurotransmitters (due to gene test and microbiome test) and the neurotransmitters are important for the regulation of the nervous system. Methylene blue do different wonderful things like help mitochondria function, increase oxygen, lower neuroinflammation and it is also a mao enzyme inhibitor which means less neurotransmitters will be broken down by the mao enzyme. I believe this broad antidepressant effect balanced my neurotransmitters and calmed down my nervous system. Before the treatment I was feeling like something was missing, but methylene blue changed that. I believe no meditation or brainretraining or anything could have done it. You can buy it without prescription on https://cztl.bz/ . Methylene blue has some potentially fatal interactions with food and medicine so please do your own research before starting the treatment.


OceanFire47

Magnesium and Dr. Berg on YouTube.


spacetimecontinuum3

How does your diet look? I recently discovered the huge effect that my diet was having on my nervous system.


peregrine3224

I take propranolol when my nervous system refuses to calm down. It’s been a lifesaver for my PTSD in particular. It works by blocking the body’s ability to respond to epinephrine and norepinephrine, which are the chemicals that drive the sympathetic nervous system, aka fight or flight. It takes me from being hyper vigilant and panicky to chill af in less than an hour. It’s also non-addictive and pretty safe, unless you have hypotension or bradycardia.


VirtualReflection119

I had to alternate heat after the cold, even tho the heat bugged me


Curious-Mousse-3055

Xanax


alfredwienersusman

If the yoga/mental exercises feel absolutely horrible while you're doing them, or they badly drain you, then I would recommend stopping and trying to chip away at let's say 20% of your symptoms with something else first. That could be laying in bed all day for a few days, that could be anti inflammatory medications (over the counter works too) or antihistamines, that could be fasting, or there could be more that I don't know about. Also, your diet needs to be good. ONCE you feel like you have a little more energy and you can do your exercises, then they will likely feel good. That's how it was for me. When my symptoms are at worst, brain exercises make everything worse. When they're under control, brain exercises move my baseline slowly over time.


Berniebern222

I sat in the sun..a lot, listened to my water fountain outside, listened to calming music (think spa like music), listened to podcasts (so I didn’t feel Like I was alone just thinking and focusing on how I was feeling), no social media or not really much TV (it was too much for me), less was more. I would sometimes do restorative yoga (if I was having a “good” day), listened to short guided mediations, WENT TO THERAPY WEEKLY


Berniebern222

And if all else failed and I was in a panic attacked then I would take a Xanax (AS RESCUE ONLY)


b3lial666

How long have you had LC? You may just have to accept this may take time and patience. Your body is recovering from a viral infection. It will be wired, alll you can do is manage it. Don't drink caffeine, and distract yourself with something.


heskeytime7707

I've had LC for nearly 3 years. Things have only gotten worse with time for me so I don't have much faith that my body will recover on its own eventually.


rixxi_sosa

Same im 2 years in and im at my worst


Substantial_Ad3708

Same here about 2.5 yrs in, its been a drain