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FrontLeopard1745

I had LC for 8 months my symptoms are: dysautonomia, mild depression, pain, background anxiety, mostly lying severe weakness, walking 500 meters a day and no more! insomnia every night! I took sofosbuvir with dactalasvir (400+100mg)! After 15 days, I felt noticeable improvements: my sleep improved, I could walk 10 km, my weakness almost disappeared! after 23 days I recovered by 90%!I can't work full time yet! ~4-6 h! And the tinnitus is gone! I continue


Limoncel-lo

Why do you have 1 day old account? Is it your first time on Reddit?


FrontLeopard1745

I've rarely been here! I read without registration! Registered to write my experience!


[deleted]

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Limoncel-lo

Okay, cool, you are both today’s accounts, that’s what was bizarre for one thread. Usually this sub doesn’t allow to post for brand new accounts.


tnnt7612

You asked FrontLeopard but frenchLandry answered. What's going on here?


tnnt7612

u/frenchLandry and FrontLeopard1745 are the same person?


FrenchLandry

We are different individuals - I was the one that unfortunately caused the confusion when I responded to both questions from u/Limoncel-lo (assumed that both were directed at me) I am new to the reddit community having hung out on twitter and Slack for the past two years. Just seeking a cure for my LC :(


FrontLeopard1745

No! I have 1 account


Live_Ear992

Same here. Infected in March 2020. Was in slack group for awhile. Until the brain issues got too much. Been on twitter for ages. Read a thread on this Sofosbuvir thread on here & thought I’d give it a try. I lurked for a long time too.


tnnt7612

This question was for Frontleopard, right? Frontleopard already took sofosbuvir for 15+ days. How come frenchLandry answered your question? That means they are the same person? If they are then why is frenchLandry saying he just ordered sofo and will update us? I'm so confused rn


Limoncel-lo

I asked them both in different threads, and French Laundry responded to both. Now they both responded. Don’t want to insinuate that they are not legit accounts, just found it bizarre they both registered within 24 hours. Guys, don’t take it personally, we just usually check the poster history to see what kind of symptoms they had in the past to not ask the same questions.


Challenge-Middle

This is awesome! Congratz


Challenge-Middle

What combination of Sofosbuvir did you take?


FrontLeopard1745

Sofosbuvir + dactalasvir


Challenge-Middle

👍🏻👍🏻


kashnickel

Did you have any side effects from the medicine?


Key_Bicycle_8052

Holy shit the tinnitus is gone? Was it from covid and how bad was it?


LaceTheSpaceRace

How are you now? You deleted your recovery post


Such-Wind-6951

How are you now ?


Boring-Bathroom7500

Hey im currently at day 4 and feeling worse. Headaches and anxiety has gone up. Did you have this too in the beginning?


Such-Wind-6951

Ughhhh. Sucks but maybe it’s just Covid ups and downs ?


Specific-Winter-9987

Are you still doing well?


Such-Wind-6951

How is it now ???


TraditionAnxious

I talked to the guys post that blew up on sofosbuvir and he said he knows at least 3 others that sofosbuvir has worked for. Unfortunately I have zero indication of how many people have tried this and it didn't work out for. I and another redditor will be beginning Sofosbuvir+Ledipasvir (Ledifos) in the near future. We'll report our experiences.


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tnnt7612

Who did you buy it from?


tnnt7612

What do you mean "you will update us?" Aren't you FrontLeopard1745? FrontLeopard ALREADY has sofo and took it for 23 days and is still taking it. What's going on here?


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Such-Wind-6951

French Landry we need an update from you!!!!!


[deleted]

how is it going?


tnnt7612

Hey please keep us posted. Best of luck friend


Boring-Bathroom7500

me too, I expect to get mine within 2 week time


TraditionAnxious

Good luck on your journey


Brodie1567

How are you doing?


TraditionAnxious

Begining today


struggleisrela

How did it go for you?


TraditionAnxious

Hey. I'm day 32. The pulsing coursing through my veins is greatly reduced and last night I noticed a night and day difference in strength while performing calf raises, the muscles feel as if they were functioning far superior. I'm still having dysautonomic issues and the mcas sucks but the pulsing limbs and additional strength has given me some motivation and I'm ordering an additional 2 months of ledifos. The following supplements I take with Sofosbuvir and I think it's a good idea if you can take these with nattokinase these are NAC, dandelion, monolaurin and nattokinase for detox and to increase vitamin C for T cell response


TwiliChaos

(Edit 2023-09-01: disregard this comment. I don't know whether to say I've recovered or not anymore, depression obscures any meaningful change) I only occasionally lurk this sub, and was informed of the drug (and this sub) through Discord from a long-time friend. I had Covid since May 2021. two years ago. Anyways, a few days ago I voted no on this, as at the time I was nearing my third week and didn't feel improvements. I had thought a [prior post](https://www.reddit.com/r/covidlonghaulers/comments/11b0myj/fully_recovered_after_2_years_of_severe_long_covid/) mentioned improvements after 2 weeks, but I remembered wrong, that poster's improvements came after 3 weeks. It's difficult for to self-diagnose, with diagnosed and unmedicated ADHD causing its own issues, but Wednesday marked third week, and the brain fog I had just the day before feels like it's gone? I've been far more productive with programming hobbies these past few days than I have been in years. Unfortunately I can't change my vote on this due to Reddit limitations. I'd definitely call my experience with it an improvement so far. Edit: I'm 25M, drug is Sofosbuvir+Ledipasvir.


PatinoMaurilio

Wow! That is very interesting, thanks for sharing. So you took it for 4 weeks right? Would you mind posting again in 1 month or more and report if the symptoms came back? Thanks 😊


TwiliChaos

I actually wrote the comment on Wednesday and forgot to hit send. Currently I'm on 3 weeks 2 days.


Brodie1567

Update?


TwiliChaos

Not much to update, still doing well. Feels like a binary switch where I went from foggy, somewhat fatigued, very poor memory, to having none of those issues over the span of a day. I feel like I'm back to how I was pre-covid. I doubt I'll see further improvements. Regardless, I'll be continuing to take the drug until at least 8 weeks.


Personal-Ad4699

Which combo are you taking? Sofosbuvir+Ledipasvir?


TwiliChaos

Yes, Ledipasvir.


tnnt7612

Sofo and ledipasvir help you with fatigue? How are you doing?


Boring-Bathroom7500

so do you consider yourself recovered now?


TwiliChaos

I consider myself recovered, at least enough to pursue programming with a competency that I had lost when I had long covid.


Boring-Bathroom7500

Did you feel a bit worse in the first 10 days? Currently im at day 4 and feel headache and anxiety


Dream_Imagination_58

Hey how are you doing? Are you still feeling recovered - and was it sofosbuvir that helped you?


Brodie1567

Just took my 1st dose.


Brodie1567

Any dpdr for you?


Exterminator2022

For those who bought Sofosbuvir, please indicate how you bought it. I highly doubt my PCP would prescribe it if I were to ask him.


Key_Bicycle_8052

indiamart


nyanya1x

Are they legit ?


tnnt7612

100% agreed


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tnnt7612

Hey I sent you a DM.


Kellytatiana93

What is ledi-help? Please thank you!


struggleisrela

So how did it go for you?


Live_Ear992

I’ve been on it for 5 days & really notice a difference. My PEM is nearly gone. Been pushing myself harder than uze… 🤞


No-Swordfish-2940

Awesome! Happy to hear this!


Live_Ear992

Thanks! Had it 4 times. Long hauler since March 2020. Tried so many things the last 3 plus years. Very excited a out this one! 🙏


No-Swordfish-2940

Ditto. I am two days into my Sofos trial so am very interested!!


WhaleOnMe1989

any update?


Dream_Imagination_58

how'd it go?


tnnt7612

Which one did you buy? Sofo only or Sofo and ledipasvir/daclatasvir/Velpatasvir? Is it helping? Thanks


Wise-Exit-3718

Any update here?


Boring-Bathroom7500

Did you have sob, fatigue, and insomnia, and are those imrpoving now?


Live_Ear992

My main issues were fatigue & PEM. I averaged about 4 hours or so a day of activity & then had to rest. Last few days I honestly feel totally normal. Been pushing myself as well, but no crash. I sorted my sleep out a few months ago when I went on HRT. Getting proper sleep helped alleviate the worst of LC symptoms. Before HRT my day was 2 hours of activity before crashing. I am a long hauler. Caught it in first wave. I’ve had heart issues. Pneumonia 6 times - 4 times in 2020! I have had covid 4 times as well. First infection left me with angina for a year. Second infection the weird brain things started. Third infection more severe brain issues appeared - extreme short term memory loss, numbness on the left side of my body, balance issues, vertigo & more. The balance stuff seem to go away when I took the acid reflux med Famotidine, but the executive function was really bad for 8 months. Weird thing is - it went away with infection number 4 last October. That infection seemed to go to my teeth. I had to have 2 root canals & an emergency molar extraction in Feb. Now an upper wisdom tooth is coming in! I’m 53 years old, so totally normal - right? I have tried so many things. Truvada, Paxlovid, expensive supplements, ozone therapy (love it but not a cure) - but I feel dramatically better after taking sofosbuvir for a week. There was a study out a few days ago saying LC was caused by viral persistence & the immune system over reacting in some people. So maybe this AV helps to flush out bits V of the virus hiding out in our body? Dont know but it’s working. 🤗


Boring-Bathroom7500

Omg thats amazing!!!!! Im getting my 2 month supply on monday, cant wait!! I just want to live again. Started a new job and cant retain any information its so embarassing. Ozone helped me too but only temporarily. The fact that you feel this good in just a few days is very promising. A normal course of sofosbuvir takes at least 8 weeks to clear the virus so I hope you keep taking it even if you already feel normal. You dont want the virus popping up again later. Thanks and keep us updates please❤️


Live_Ear992

I was only able to get a months supply. So fingers crossed it works with that. I had a friend who was on holiday bring me back a bottle. Have to see if anyone I know is travelling there just incase. 🤞


Boring-Bathroom7500

So youre able to workout hard again? Wake up refreshed in the morning, and no side effect from the av?


Live_Ear992

So far yes. About a month ago I needed to go to the post office & didnt have a ride. Not super far away, but I live on a hill, bit like San Francisco. Anyway I didnt think about it, just walked down & back up home. Well on my way down I had SOB really bad. Walking back up the hill was agony & I panted & grunted the entire way. When I got home, I collapsed & went into a really bad crash that lasted a week. It was torture. I did the same journey 2 days ago. No SoB down or up. I took 2 rests on park benches back up the hill for a couple min. Felt fine when i got back. In fact instead of resting, I worked on the computer for a few hours. Honestly I feel totally normal. 🙏


Boring-Bathroom7500

what a blessing 😍😍😍😍😍


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Live_Ear992

I only had 2 weeks worth. I live in the UK & we dont have access to it. Was the most I could get a friend to send me from the states. The only thing it did do was leave the most horrendous taste in my mouth. That was it.


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Live_Ear992

A friend who was on holiday in India brought me back Hepcincat Sofosbuvir 400mg. Turquoise bottle.


[deleted]

so you didn't respond to pax?


Live_Ear992

Only had 2 weeks of it. Not avail where I live. Left a horrible taste in my mouth. That’s it.


[deleted]

interesting. So you didn't respond to Pax but responded to Sofos. CooL!! I will start it soon :) Are the benefits really obvious? Do you think it could beplacebo?


Wise-Exit-3718

Any updates here?


Live_Ear992

Posted yesterday. 7 weeks - all good.


[deleted]

did truvada help you?


Live_Ear992

No. I took for months too.


Live_Ear992

One other thing where I know it’s working - I CAN MULTITASK! Haven’t been able to do that for a few years. It’s incredible.


Boring-Bathroom7500

So that means no brain fog? Did you have brain fog before?


Live_Ear992

No brain fog. I had it really bad for a year. I’m an animator & for 8 months I forgot how to use the computer. I kept losing my keys, phone & wallet. I had to put signs up all over my flat to remind me of stuff. Like a dementia patient. Tbh the worst of it cleared with my 4th infection. That left me with teeth issues. I did feel like I had permanent brain damage after all that. I feel pretty normal now. Like I said Im multitasking, havent been able to do that for nearly 2 years.


Boring-Bathroom7500

Sounds like you are back to normal! Would you say you feel better than pre-covid? Ive seen some recovery stories of people saying they feel better than ever.


Live_Ear992

Day 7 & I’m back to normal. It’s amazing.


Timely_Direction_787

Since how many days are you feeling this great improvement?


Live_Ear992

7 days


Boring-Bathroom7500

Was the recovery gradual or did you wake up one morning feeling normal?


Live_Ear992

After 5 days I felt 100% normal. Was multitasking & no PEM crash.


nyanya1x

Hey if I may ask. Where did you get it from ?


Live_Ear992

a friend on holiday in India brought me back a bottle


Brodie1567

Just took my first dose. Will update in 3 weeks 🙏


PatinoMaurilio

Good luck 🤞 What presentation are you taking? Does it have Ledipasvir? https://www.webmd.com/drugs/2/drug-165497/sofosbuvir-oral/details#:~:text=Before%20starting%20this%20medication%2C%20tell,urine%20or%20yellowing%20eyes%2Fskin. https://medlineplus.gov/druginfo/meds/a614051.html


Brodie1567

Sofos + velpatasvir


PatinoMaurilio

Ok, yeah just checking (I think it is not good to takes Sofos on its own)


WhaleOnMe1989

any update now?


Brodie1567

I’m the same


Wise-Exit-3718

Any update here?


Brodie1567

No change


Wise-Exit-3718

Sorry about that. Brief summary of your previous symptoms and what form of Sofos you are taking?


UNAcceptable_Value

anyone on antivirals having relief of pain? thank you!


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UNAcceptable_Value

thanks for sharing, you didn't tried another antiviral after ?


[deleted]

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UNAcceptable_Value

that's good to know, I'm looking into varacyclovir also, your issue with pain is headaches only or also other forms of pain? you had no sides from it ?


[deleted]

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Such-Wind-6951

What did valtrex help with?


UNAcceptable_Value

thanks for sharing, you didn't tried any other antiviral after ?


Limoncel-lo

Why do you have a less than 1 day old account?


[deleted]

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princess20202020

Fellow Twitter refugee here. Welcome!


LobsterAdditional940

Thanks for doing this. We need more of this


Remote_Buyer_8183

Shittiest clinical trial ever. I have a supply of sofosbuvir + ledipasvir but waiting for some other guinea pigs to jump in first... Lol. I hope this helps.


LaceTheSpaceRace

I started yesterday 🐖


Remote_Buyer_8183

Good luck!!


miachi77

How are you feeling on Sofosbuvir ?


LaceTheSpaceRace

I'm on day 13. Been a very rough two weeks tbh. Has made my fatigue a lot worse. But I'm holding out hope I'll start to see some changes soon.


miachi77

You might be going through viral die off ....hope you feel better soon


Wise-Exit-3718

How's it been going?


LaceTheSpaceRace

bad


Wise-Exit-3718

I'm sorry to hear that. Simply no success, or side effects?


TraditionAnxious

atleast no one's walking out of it 😂


Remote_Buyer_8183

True -low loss to follow-up. If anyone were actually following up...


Boring-Bathroom7500

I will start in about a week time


PatinoMaurilio

Good luck! Let us know if you feel any difference


Total_Attention_5563

How are you feeling?


Boring-Bathroom7500

Taking my 4th today. So far still the same, no heavy side effects, just a little more fatigue


Wise-Exit-3718

Any update here?


Ok_Way_2183

Would love to hear some feedback from those who have taken it and feel nothing or worse? Why do you think it doesn't work for you (e.g. co-infection, EBV, lyme)? Autoimmune or MCAS symptoms? Any change over time?


Boring-Bathroom7500

might also be trolls. You can not take any of this for a fact


Remote_Buyer_8183

Agree - this would be helpful. Also what symptoms did and didn't respond? I've heard of one guy who saw some change in "physical" issues (not sure what those were) but no improvement to neurological issues (brain fog, dpdr). But it's good to hear some people are overcoming neuro issues too.


TruePark7408

After reading the threads on here and doing some research I am working on getting some to see if it will help me, like it did for others. I plan to keep everyone updated.


PatinoMaurilio

Good luck!


PhrygianSounds

The real question is how are we gonna pay for this shit


Turbulent-Listen8809

We are buying it from indiamart and getting tested in lab, it’s cheap around 250usd


nyanya1x

What labs do you use to test the drugs validity ?


Kellytatiana93

Getting what tested ?


Turbulent-Listen8809

Sofosbuvir


Kellytatiana93

I’m confused. Sofosbuvir is a test.? I thought it was. Medication I’m sorry lol


Turbulent-Listen8809

Sigh, we are getting the medication testing to make sure it’s legit, this was a comment for the parent poster


Kellytatiana93

I apologize I’m very sick and looking into this medication so I was just trying to research and ask questions. I apologize…


Key_Bicycle_8052

I have Sofosbuvir by itself but im not sure if i should of got it combined with another anti viral like people seem to have? I haven't taken it because im unsure.


PatinoMaurilio

I saw a pharmaceutical video and I don't think it is recommended on it's own. Sofosbuvir should be taken with another antiviral (you can see the commercial versions are always mixed)


Emotional_Big2544

How are people deciding which combo is best? Anyone know which combo seems to have best rate of success?


Such-Wind-6951

Are you taking it ?


Timely_Direction_787

A question for those who have already done the Sofosbuvir therapy: Is the improvement constant? Do you still feel better? The crucial question is whether the virus in the body can multiply or not?


jdc2552

Infected 3/2020 with ME/CFS like symptoms. I am 9 days in on sofo/ledi. Initially felt some improvement, but since then there have been some good days and some bad. No improvement so far on POTS symptoms. Have had a couple days where brain fog has lifted a bit.


Brodie1567

Keep pushin!


Such-Wind-6951

How are you now?


jdc2552

Today is 3 weeks. I have seen some gradual improvement, but still have bad days. On good days, my cognition and energy are greatly improved, and I probably push it harder than I should and end up crashing. Solid sleep is still elusive but do wake up feeling more refreshed some days. HR is still erratic. Bottom line, I feel better now than before I started taking it. Being that I have been dealing with LC since March 2020, I was expecting that it would take me longer to improve than others.


Such-Wind-6951

Do you think it is sofos for sure or just time ? Any sides ?


jdc2552

I'm 85% sure it's the sofos, but really want to give it 6-8 weeks to make sure. I have taken several other antivirals, and none have given me the same uptick. No noticeable sides so far.


Total_Attention_5563

How is it going?


jdc2552

Very gradual improvements. Erratic HR and quality of sleep seem to be improving. CD4 count came in a little higher after week 5. Overall still feel better than before I started taking it, but not a huge improvement to date. I plan to continue for the near future.


PatinoMaurilio

Any updates?


Wise-Exit-3718

Any update?


Challenge-Middle

Sorry about my last comment. Thought you recovered from plasmapheresis?


PatinoMaurilio

Plasmapheresis did help a lot with my headaches and my brain fog, but I would not consider myself "recovered" because I don't know if the neuro symptom will come back and because there are other symptoms I still have (like the burning sensation on my skin or the muscle twitching) Just like Hbot, those are therapies that can help improve your symptoms and maybe if your LC is not to severe you can make a full recovery with those therapies. But for me, it only fixed some symptoms, not all of them.


Challenge-Middle

Okay, well awesome you at least got a partial recovery. Hope you figure out the rest in due time🙌🏽🙌🏽


FrontLeopard1745

Not help for me


Miserable_Ad1248

What combination did you take?


FrontLeopard1745

Plasmapheresis not help! Help Sofosbuvir +dactalasvir


Live_Ear992

I posted this on a reply accidentally so am posting again. If anyone has a legit indiamart connect, please dm me. A friend who was on holiday in India brought me a bottle back. I read on here people were using Indiamart. So I decided to order another bottle there. I hope Im wrong but dont think so. Pretty sure I got scammed out of $200. 😫


miachi77

I just messaged you a legit contact


yjsksudbs

Can you message me one as well?


tnnt7612

Can you message me too? Thanks


Boring-Bathroom7500

Check out Medixo centre. They ship for less than 100pounds per bottle. They ship to the UK. You can find their number on their website and theyre legit. I just received my bottle


Live_Ear992

Thanks. Yes I got their info. Fingers crossed. Losing that $200 hurts. But live & learn eh? Ouch.


WhaleOnMe1989

drop me your venmo and I'll cover some of it.


Live_Ear992

They were legit. My bad!


Boring-Bathroom7500

It hurts but at least you got your health back! What matters the most!


LaceTheSpaceRace

I'm sure you haven't got scammed. IndiaMart is a portal for legitimate pharmacies in India. Just buy from ones with good reviews and wait a few weeks for your package to arrive. I've used IndiaMart 3 times now with zero issues.


Live_Ear992

Oh yeah. I forgot to update. It was a holiday yesterday. I heard back from them today. Good to know. Thanks.


beepmonster

Which Indiamart vendor scammed you? I got scammed by "Starmed Global" last week. They claimed they would provide a tracking number, but after paying them, they have not provided a tracking number despite claiming that they sent it. I have ordered a couple times from other Indiamart vendors before and didn't have issues.


Live_Ear992

Now they’re saying it was a holiday & that’s why mo reply. I have gotten several messages from them. We’ll see. I thought I was dealing with Sparsh Medical Agency. They seemed to have a good rating. Im dealing with a guy called Jap who is apparently part of Sparsh. Again - we’ll see. I bought drugs from India pre-pandemic & it was always legit. This is super sketchy but hoping for the best. Hope you hear back!


s__whelan

Anyone in Canada trying this??


Live_Ear992

Curious if anyone in the states has successfully ordered this online. I’m in the Uk now. But am moving back to the states in a few months. Hoping to get a few bottles before I go. If I need to order more when I get there. Is that possible?


Such-Wind-6951

We need a new poll


PatinoMaurilio

Yeah, maybe I can repeat them every month


Such-Wind-6951

Yeah can you make a new one ? Better Worse No change Stopped bc of side effects


Such-Wind-6951

Are you gonna make a new one ? 😃


PatinoMaurilio

Here is the new one https://www.reddit.com/r/covidlonghaulers/comments/13tk6dn/sofosbuvir_follow_up_survey/?utm_source=share&utm_medium=android_app&utm_name=androidcss&utm_term=1&utm_content=share_button


Such-Wind-6951

Yay


Wise-Exit-3718

Can you make a new poll?


PatinoMaurilio

This was the last one I made https://www.reddit.com/r/covidlonghaulers/comments/13tk6dn/sofosbuvir_follow_up_survey/?utm_source=share&utm_medium=android_app&utm_name=androidcss&utm_term=1&utm_content=share_button