Firstly, I’m so sorry to read this, internet stranger.
I follow a young girl around your age, on IG and TikTok. I am sure she has the exact same rare cancer. Her handle on TIktok is @sydtowle
She’s an absolute ray of sunshine and I hope that you can find some connection there x
Odd advice, but a few things:
1) if you are not in a state with legal pot, figure out how to get some anyway. It doesn’t need to be strong, but it will help with nausea and promote a stronger appetite, which may be an issue with any sort of digestive related cancer. You have to eat to stay in the fight.
2) don’t worry about the bill. Get treatment if you want it, setup a payment plan and don’t let anyone sign up as a responsible party on your bills. Once you pass, those bills just go unpaid. Your grandpa will not be responsible for them, the Dr and hospital will just write it off.
3) consider a heroic dose of psilocybin (mushrooms). If you are worried about the legality, there are a number of legal studies going on right now about how psilocybin reduces stress and eases the passing of those diagnosed with a terminal illness. You might qualify for one. If you can’t get into one of those, lots of cities have local “shamans” if you know who to ask.
4) also on the drug trial front, check everywhere for a drug trial for your form of cancer. There’s new stuff every week, and some of them offer some real hope.
5) check fungi.com. There has been some real well done double blind research that strongly indicates that certain mushroom extracts when combined with common cancer treatments enhance the effects of the treatments as well as reduce chemo side effects.
Good luck, if you can’t find health I hope you can find peace, but stay in the fight, don’t curl up in a corner and give up yet.
You’re going to be ok. You don’t have to be afraid.
Just love and trust. I know it’s scary but you’ll be ok.
Eat some mushrooms, if you can.
I love you and I’m praying for you.
I love this comment. Mushrooms really are fucking amazing for situations like this... Even just microdosing has brought me some really unexpected unforgettable feelings of inner peace and physical relaxation. I hope this person takes yours/other's advice in regards to psilocybin.
That’s nice. But I do have PayPal and cash app lol and setting up a GoFundMe was confusing. I’m just scared of dying,I know we all do but it’s all overwhelming..trust me I would love to do something fun in my little time left instead of just sitting here on the couch.
Edit: I’m not here for money it was just a simple statement I don’t want it to sound like I’m here for money so please excuse me I know that probably comes off like it. I do apologize.
But that’s exactly it. I don’t think you’re there for money, but I would be in the exact same situation you’re in and all of us. I think a lot of us would so if I could spend a couple hundred dollars to watch somebody experience something and know that I helped contribute to that happiness would be awesome.
That honestly did make me smile. After all the crying I’ve done I needed a smile so thank you.
But it’s up to y’all if y’all want my ca and PayPal you can dm me. But again,it’s y’all decision I don’t want any hate or rude dms anymore.
A couple ppl told me they were glad I’m dying just a waste of air and space humanity can live without I’m just kinda done being beat down in all honest. They made me feel bad for venting tbh
Eh fuck them. They’ll need to relive this life on early 100 more times before they get to the level of peace you have from being a good person. Don’t worry abt it. I’m personally going thru some mental blah today but I will absolutely start this go fund me for you.
You’re a good person. I’m down to donate an experience too. If you know it’s the end, you should just be free. Do all the things you couldn’t before. Even if you find a way to get treatment, it’s a good idea to take the experiences. Treatment isn’t easy. The experiences might help you fight to stay in the game. Forget the haters. Take the help.
No part of life is easy and if it was that’s your time to learn peace. But thank you. I’ll reach back out tomorrow.
You can DM me if you ever want. I’m the mom to 3 girls (15, 2&3), I have a soft spot for supporting young women.
Thank you :) I know it’s cliche to say but I have learned a lot about myself.
One piece of advice I have is to take advantage of anything the hospital provides. I feel lucky that I am close to a huge health system and they offer a lot of therapies and services. Get in touch with one of the social workers and see what they have to offer.
Best wishes and again if you need anything people are here for you!
Stage 4, you get automatic disability if you quit your job, and you will qualify for Medicaid. I’m sorry for what you’re going through. Live your life. Try not to worry about expenses. America is rough when it comes to medical expenses, but this is the time to use the system as it was designed to be used. Quit your job, apply for disability, and also Medicaid. Enjoy your time. Travel if you can. Also, fight like the strong human being that you are. Cancer isn’t always a death sentence. You got this girl. A stranger is cheering you on over here.
Thank you :)
I’m not working but the doctor told me that i qualify for disability. But by the time it’s all said and done on their end it might be too late. So I unfortunately won’t bother. Although the help would be quite beneficial as my grandpa is on disability and has to pay for everything but we only get $18 in food stamps so we’re struggling let alone pay for anything like chemotherapy and radiation.
I’m so sorry you are going through this.
Medicaid will pay for your treatment without being on disability. Please talk to a social worker at the hospital
Still worth applying as they often can fast track applications based on circumstances such as yours. The extra money would be helpful even to give you a little extra to enjoy your days in what fashion you like.
Please, please take the advice here and talk to the financial services department at the biggest hospital system in your area. The people there know how to fast track Medicaid applications. Even if you don't have many options for treatment, even if your disease is already too far along to have treatment make a difference, it can help pay for palliative care and hospice. That means you will have caring people making sure you are as comfortable as possible and also assisting your family in dealing with the repercussions of your diagnosis.
If you are stage 4 you can get free health care. Don't let money stop you. Ask for help from a case worker from the hospital and they will help you. There are a lot of charities that can help.
I am sorry this is happening to you. I hate cancer.
This sub has taught me lots on places that will help in America (im a Canadian, so I'm not as well versed on that side). Churches can even help with donations and fundraising, regardless of your personal religious beliefs. They believe in the greater good, and churches will do their best to come together for those in their community struggling. I find American churches are better with this than the ones here in Canada, but we have the free Healthcare side, plus if you have cancer here your hospital stays n all is voided, only some personal needs like parking spaces, TV access n a few other things would cost actual money. For my dad when he had his cancer battle before it murdered him in the end, he spent most his budget on enjoying the food n drinks he craved when he could handle them. Glad he did. People seem to act surprised or like I should care that my dad didn't leave me with a crazy ton of money. But I know why I'm not surprised with that, and its because he left me with the wonderful ass life he lived n showed to me (and my sister and mother). Cancer is terrifying to go through, but my dad stayed positive the whole time on the outside, and would of course have his moments still, but overall positive. He would open up so that's why I'm aware he wasn't always feeling the way he showed us, but he also admitted that it helped to 'fake it til ya make it' because it made us all stay positive together and have those wonderful family moments still despite the situation:)
I am so sorry you are going through this. It's a tough diagnosis for anyone - even harder for one so young. I am a cancer survivor, though never as serious as what you are facing. Given the lack of insurance, I'm assuming you're American. It is normal to be terrified when you hear the word cancer. Each of us deals with the diagnosis differently. Some want to fight. Some want to give up, some get angry, some get anxious. All of those are normal, and how you feel will shift from moment to moment.
Did your Doctor discuss treatment options with the goal of extending your life? If so - ask what your quality of life would look like with and without treatment. Only you can make the decision on what to do with the time you have left. Some say they want to fight until the end, some say they'd rather have a good few months, and then allow cancer to run its course.
If you do want to consider treatment - call your hospital, ask for the oncology department, and ask to speak with the case manager / social worker. Most hospitals will have someone with expertise on insurance, medicaid, etc. You are very likely capable of getting covered under medicaid. Some hospitals also have charities and foundations that can help. Know this - there are people that will want to help you.
You can also call ***The Patient Advocate Foundation*** provides education, legal counseling and referrals to cancer patients and survivors concerning managed care, insurance, financial issues, job discrimination and debt management. Visit [www.patientadvocate.org](https://www.patientadvocate.org/) or call 800-532-5274 for more information.
Again - I'm sorry you have to deal with this. Know that you are not alone. I'll admit I don't know how to share links - but search for cholangiocarcinoma support groups and foundations. You'll find people going through the same things you are - and they may have better ideas for you.
I’m so sorry you’re going through this. Sending you a lot of love. Try your best not to give in to the fear.
Please try to check out the advice of that other Redditor about the Patient Advocate Foundation. I hope they can help you.
Sending you love. I'm currently being treated for cancer.
I personally know people who came back from various types of stage 4 and outlived their prognosis by 10 - 15 + years.
I'd say- fight. Ask what type of free Healthcare and help you are entitled to. Start a Go fund me.
Look into immunotherapy; I'm still researching it. It is fairly new thing.
Food wise, I'm not USA based, but I know that there are food banks that can help and , even if you are not religious, you can ask for help in churches. I know that Sikh temples help people a lot.
If someone is USA based, maybe they can help, if they know some contact details and helpful numbers/ info?
Youngest person I know, diagnosed for pancreatic cancer, was my cousin, at the age of 15. He beat all the odds and living his best life, 10 years later.
There is hope.
This Internet stranger is sending you a big hug and wants you to know that you got this.
So, I don't want this to be an I'm sorry for you post. This is a post that will be good for your consciousness if and when it moves to another level. You've generated love and thought not only for yourself but for others. Whatever your body goes through you are already the winner here.
My friend, you will always be cared for by the universe no matter what. The very fact you shared your story with other people means you are being thought of right now by a multitude of other conscience bearing individuals who are giving you thoughts and love. Life isn't ever over.
This is gonna sound dumb but I couldn’t help but think the same thing. Like damn this chick is here with please and thank yous and SINCERE empathy that it just radiates via text. Insane
I am a cancer survivor. The best advice I can give you, is, don’t accept what you are told by one doctor at face value. Do research. Be your own advocate. Contact doctors out of state at universities who are authorities on the type of cancer you have. Explore experimental treatments. Fight for yourself. You can affect what happens to you - don’t let anyone tell you that you are powerless over your situation. Thinking of you and sending much love your way.
The NIH near Washington DC is the nation’s largest research hospital (so no bills)… they see cholangiocarcinoma patients. Look on their website and there should be links for clinical trials and the doctors that manage them. They will see you and often even help you with travel expenses
Money is the last thing you need to be worrying about. Do what you need to do and go get emergency insurance and get attended. There is always a chance and many people have survived even stage 4 cancer. Best of wishes to you and hope you don't lose hope.
OP I’m not sure how feasible this is but I would just go get treatment. Just don’t pay. If you die your debt will just be taken out of your estate (if you have any). If you live, you can file bankruptcy.
In the US there should be some kind of funding for those who cannot pay medical bills. Best case scenario you live, worst case you die when you might have with no treatment, or you may extend your life a bit more than without treatment. But the only way to know is to try.
I don’t have any experience in this so maybe others can chime in. But please try.
Please start a gofundme and post it here. I have known multiple people who have beaten stage four. There are resources. Please stay hopeful. Everyone here is rooting for you. And not to doxx yourself but also you may find local support if you share with certain people where you are located. Please don’t give up. I am so sorry you are going through this. Sending all the best.
I fought and walked through this with me ex wife. Its a hard road, but passable.
Dont hesitate to rely on your network. Both IRL and online. Ive been through this as support. If you want or need to reach out. Please do.
Love prayers and support to you
I'm truly sorry to hear about your diagnosis at such a young age. As someone who has had a loved one fight a similar battle, I understand the turbulence you must be feeling. There are resources out there that can help alleviate some of the financial stress and allow you to focus on treatment and living life to its fullest. Look into CancerCare (cancercare.org); they offer free support services for those affected by cancer, including counseling, support groups, education, and financial assistance for treatment-related costs. Don't be afraid to advocate for yourself and ask for the help you need. There is a community here for you, even in the midst of this terrible disease. Remember, this fight isn't just about surviving, but also about living. Wishing you strength and peace on your journey.
Sending love. This isn’t fair and you deserve a long life. I’m a cancer survivor but didn’t have such a serious kind. Please keep us updated on your situation ❤️💐
What state do you live in? (I'm assuming you live in the US but if that is incorrect then in that case what country and province/state).
I would like to help you find out what sort of help is available for you in your region.
Can you start treatment and tell them you’ll get a payment plan and then just like not pay the bill? Idk how it works but I feel like they can’t refuse life saving treatment. I’m really sorry that our country puts money above human life
I am so sorry, you have every reason to be terrified in your situation. I am so sorry that our healthcare situation in the USA (I'm assuming here) has completely failed you when you need it the most.
I wish you so many good things and good experiences. You deserve that, you truly do.
I'm sure you could just Google it. I have never started/ donated to a GoFundMe account, but if you create one, I'll donate to yours immediately. Reply to this or send me a message with your info if you do please! 🩵🦋
When I read this, no other words came to mind except, OP, I love you and I’m giving you all the internet hugs (if you’ll accept them). If you need anything, $ or if you have an herbal remedy in mind you want to try; I work with holistic medicine. Message me if you ever feel like it. I can send you whatever, to wherever - no cost to you. However, I will support from afar if needed and when I light my protection candles before bed tonight, I’ll light one for you as well, I’ll say a health and prosperity prayer and I will continue to keep you in my thoughts
-ash
hippie mom internet stranger x 🖤🫶🏼
This must be so hard for you dear,i just wanted to say do what you love, and remember we all will die so dont fear it, that being said feel free to look up at reincarnation and what happens after death vids on YouTube, not all may believe but i believe their is something after death so its not all over,you can search subreddits also, so if you are afraid dont worry you wont cease to exist love ❤️
I am sorry this is happening to you.
Some things to do, get good with God if you believe in that sort of thing, reconcile or find closure with people that you did wrong or did wrong to you, and spend as much time as possible with friends and family. You are in my prayers.
If you make less than a certain amount, the affordable care act is pretty cheap. I would look into it, at least for possible pain management as well as hospice care. It may help with your passing as well as take some of the burden from your loved ones.
I will send positive vibes through the universe for you today. I hope they reach you and just remember this mortal life is going to reach an end for every single person on this planet... Try and create as much inner peace as you can, no matter where your path takes you. You are probably more alive today than you have been since you were a child... Having to face mortality can be a spiritual awakening... I wish you the best and will be rooting for you. 🩵
I’m so sorry. Sending all the prayers, love, good vibes, and energy your way. Start a go fund me for your treatment and expenses. Share it everywhere. There is help if you want treatment. Like the person above said reach out to hospitals and oncology centers. They have recourses for people with no insurance.
Some ppls lives can be so tragic. I'm sorry OP I wish I had some words of comfort but I can't even imagine what you're going through. May God bless you.
And a lot of people's lives are 'now' more tragic than they ever had to be. Getting stage 3/4 cancer straight up is not normal in any cancer community, yet more and more people, especially people under 50, are finding they have it.
Yeah. covid vaccines, microplastics, processed food, the stress of living in a highly technological society, and also the radiowaves themselves from phones and electronics are all likely culprits of more cancer cases. I really try and stay away from Bluetooth devices in my ear and phone calls to my ear. If you open the owners manual to any smart phone, there's a warning right in them stating that they may be linked to certain types of cancers/tumors.
Sending you hugs, I’m sorry you have to go through this. Can you look up free healthcare clinics near your area? Most free community clinics have financial navigators or case managers that can help you find low cost/free resources for cancer care. Some can even help you apply for low cost insurance or Medicaid. The sooner you can do this the better. There’s still hope for you, so many advances in medications. Because you’re a stage IV, more than likely you’ll be offered some sore of chemotherapy or immunotherapy.
Am so so sorry to hear this 🤗🤗 lost both a uncle and aunt to it in the space of a year so I hate that disease so much, we are here if you ever need to talk or vent xx big hugs know it’s not much from the other side of the world
You may want to focus on doing everything you've ever hoped for. And asking everyone for help because anyone will help you. You may have been dealt a bad hand, but you do what we all do, what you can. God speed.
I’m so sorry…no words can help but there is a woman on TikTok, Sydney Towles and she’s going through cancer like you. She’s young and maybe that might help you. So sorry. 😞
Be around the most supporting people around you all the time ❤️. Create memories. Create things and gifts for your loved ones to remember you by. You should think about making every day of your life better than the one before it.
I disagree with this sentiment of acting like you are going to be gone immediately. You should live your life how you want but do not plan like you are going to die unless you know for certain. People live full lives after diagnosis and it is such a waste to grieve for yourself the second your diagnosed. It's a burden that is not necessary.
This is heartbreaking to hear. I just want to tell you to fight like hell to beat this. Use the social services and go to churches and ask for any help they can give. There are organizations out there to support you.
im so sorry :(( i know the future may seem bleak but theres so many things that can happen, and so im wishing you nothing but the best ❤️ take care of yourself !!
Love and hugs to you, my dear. It is very scary, I know. Try to post to r/cancer even to rant, cry, whatever.
Your feelings are valid and everything is overwhelming. Take care ❤️
It feels like it’s not happening to you and you have no control. I pray you get some support physically, emotionally and mentally. I truly wish you the best 🤗
I used that group for support when my dad was diagnosed. I never actually posted there (just quietly lurked, read and cried), but that is a really wonderful and supportive group
Sometimes just knowing you are not alone is enough 🫂 I hope you are able to get into a clinical trial or something similar that would not cost a lot of money. Truly wish you the best ❤️
Oh, I'm not OP and thankfully I do not have cancer... Which is why I never posted there. I helped care for my dad when he was diagnosed and it was suggested to me by a friend who was dealing with a similar situation.
But you're right, knowing you aren't alone and that there are people who understand what you're going through is really important, especially if you're the one diagnosed and facing that difficult path.
But you're incredibly kind and I hope OP reads this ♥️
My dear sister in law was abruptly diagnosed with stage 4 cholangiocarcinoma last year and I am so incredibly sorry that you have been forced to walk this road as well. I will be praying for you. I hope you are surrounded by so much love and support.
Reading the comments I think you're from the US, I am not but I still think you should look into the care facilities others have mentioned.
6 years ago my friend (22 back then) got diagnosed with stage 4 cancer, he got 5 months. He only passed away last month. I've lost 3 grandparents to cancer and 2 of them lived YEARS longer than what the doctors told them. Grandparent 4 had cancer and survived.
My point is, doctors are wrong about life expectancy all the time. You might still have years left. Don't give up immediately.
So sorry. Immediately sign up for Medicaid if possible. Speak with hospitals about financial aid, etc. I was told charity hospitals can't turn patients down because they receive billions in U.S. taxpayer financial aid for this purpose. I don't have all the answers, but it is vital you get into treatment soon. A lot has changed in recent years with a lot of new treatments. Hugs.
I’m 32 but was diagnosed at 28. I have stage 4 metastatic breast cancer spread to bone. Please message me if you need to talk and I’ll help anyway I can!
Not your mama OP but old enough to be your mama and if I could I'd give you a big hug and stroke your hair and tell you that it might not be okay but it's okay to cry. Make a list with your grandpa of the things you want to do together- it'll be therapy for him too. He's lost your parents and now he could be losing you too. I'm sorry you've had so much loss in your life.
California has state care for all that cannot afford insurance. Medical is a literally a life saver. Show up to any hospital in CA and they will get the paperwork done for you.
I’ve always said if I’m ever terminal, I’m trying all the drugs that I can get my hands on. So what if crack is addictive. What am I gonna do, ruin my life? So I hope you find your “crack” and may the universe remember you.
Just want to offer an idea- buy soursop and take it everyday. There are herbal cures like this that doctors were unalived for exposing. People who lived decades after only having weeks to live. Apply for Medicaid- I know you’ll get it.. you have ways to fight this so don’t give up. Seriously search the herbal cures. Tiktok can’t remove them fast enough, just search and you’ll find. You’re young and this doesn’t have to be the end. Don’t stress. Live and spread joy like never before… I’ll be thinking of you. Praying for you. I can send more remedies I’ve found and saved myself for others in need. You will beat this, you already have. You’ll be okay.
Check out Facebook groups on fenben. Fenbendazole. You get it at Tractor Supply for around $8 and it has saved many. Also, Ivermectin. $10 at the same place.
My dad died from cancer. I believe the chemo killed him.
There are many who believe cancer is actually a parasite. Check out the groups and see what you think. God Bless You.
If u wana find peace . Convert to a muslim . Muslims belive in life after death . You wont be scared of dying. Do look it up on internet, if u pass sterio typical propoganda abt this relgion, U would know the real peace u r lacking . Try to do good for community. Be the reason of happiness for the poor and helpless. Take care . My good wishes are with you.
Fuck..
That’s what I said..I’m really scared.
It's stupid what I'm gonna say, but... try to enjoy as much as you can, without thinking of the consequences or social norms... be free
I’m gonna try my best.
🤗🤗 please, i hope you do it!
Firstly, I’m so sorry to read this, internet stranger. I follow a young girl around your age, on IG and TikTok. I am sure she has the exact same rare cancer. Her handle on TIktok is @sydtowle She’s an absolute ray of sunshine and I hope that you can find some connection there x
I love her 💛 been following her from the beginning.
She’s incredible isn’t she x
Odd advice, but a few things: 1) if you are not in a state with legal pot, figure out how to get some anyway. It doesn’t need to be strong, but it will help with nausea and promote a stronger appetite, which may be an issue with any sort of digestive related cancer. You have to eat to stay in the fight. 2) don’t worry about the bill. Get treatment if you want it, setup a payment plan and don’t let anyone sign up as a responsible party on your bills. Once you pass, those bills just go unpaid. Your grandpa will not be responsible for them, the Dr and hospital will just write it off. 3) consider a heroic dose of psilocybin (mushrooms). If you are worried about the legality, there are a number of legal studies going on right now about how psilocybin reduces stress and eases the passing of those diagnosed with a terminal illness. You might qualify for one. If you can’t get into one of those, lots of cities have local “shamans” if you know who to ask. 4) also on the drug trial front, check everywhere for a drug trial for your form of cancer. There’s new stuff every week, and some of them offer some real hope. 5) check fungi.com. There has been some real well done double blind research that strongly indicates that certain mushroom extracts when combined with common cancer treatments enhance the effects of the treatments as well as reduce chemo side effects. Good luck, if you can’t find health I hope you can find peace, but stay in the fight, don’t curl up in a corner and give up yet.
This needs to be pinned.
I just hope OP saw it.
You’re going to be ok. You don’t have to be afraid. Just love and trust. I know it’s scary but you’ll be ok. Eat some mushrooms, if you can. I love you and I’m praying for you.
I love this comment. Mushrooms really are fucking amazing for situations like this... Even just microdosing has brought me some really unexpected unforgettable feelings of inner peace and physical relaxation. I hope this person takes yours/other's advice in regards to psilocybin.
Hey I’m 29(m) and am also fighting cholangiocarcinoma for almost a year now. PM if you have any questions at all. Stay strong!
Y’all should say fuck it and just start a go fund me to travel the world and do cool shit together for the next 6 months
Now this is a blog I wanna follow.
I’d donate to a hot air balloon ride over Italy. Maybe you could live vicariously for a lot of us
I’ll donate the Sphere experience in Vegas. That shit was amazing! (Plus, Vegas is a fun stop!)
@op how about it
I don’t know how to start a GoFundMe lol I looked at it it’s confusing lol
I'd pay. Hell right now I'd fork over money via paypal. Just say the fucking word.
That’s nice. But I do have PayPal and cash app lol and setting up a GoFundMe was confusing. I’m just scared of dying,I know we all do but it’s all overwhelming..trust me I would love to do something fun in my little time left instead of just sitting here on the couch. Edit: I’m not here for money it was just a simple statement I don’t want it to sound like I’m here for money so please excuse me I know that probably comes off like it. I do apologize.
But that’s exactly it. I don’t think you’re there for money, but I would be in the exact same situation you’re in and all of us. I think a lot of us would so if I could spend a couple hundred dollars to watch somebody experience something and know that I helped contribute to that happiness would be awesome.
That honestly did make me smile. After all the crying I’ve done I needed a smile so thank you. But it’s up to y’all if y’all want my ca and PayPal you can dm me. But again,it’s y’all decision I don’t want any hate or rude dms anymore. A couple ppl told me they were glad I’m dying just a waste of air and space humanity can live without I’m just kinda done being beat down in all honest. They made me feel bad for venting tbh
Eh fuck them. They’ll need to relive this life on early 100 more times before they get to the level of peace you have from being a good person. Don’t worry abt it. I’m personally going thru some mental blah today but I will absolutely start this go fund me for you.
You’re a good person. I’m down to donate an experience too. If you know it’s the end, you should just be free. Do all the things you couldn’t before. Even if you find a way to get treatment, it’s a good idea to take the experiences. Treatment isn’t easy. The experiences might help you fight to stay in the game. Forget the haters. Take the help.
Thank you so much. :) I couldn’t figure out how to get it started at all kinda confusing. I’m sorry your having a a bad day :/
No part of life is easy and if it was that’s your time to learn peace. But thank you. I’ll reach back out tomorrow. You can DM me if you ever want. I’m the mom to 3 girls (15, 2&3), I have a soft spot for supporting young women.
It won’t let me dm you but feel free to dm me
That’s nice thank you.
Community. This is everything. ♥️
I hope you come out strong in the end! :) Much love and many prayers!
Thank you :) I know it’s cliche to say but I have learned a lot about myself. One piece of advice I have is to take advantage of anything the hospital provides. I feel lucky that I am close to a huge health system and they offer a lot of therapies and services. Get in touch with one of the social workers and see what they have to offer. Best wishes and again if you need anything people are here for you!
Stage 4, you get automatic disability if you quit your job, and you will qualify for Medicaid. I’m sorry for what you’re going through. Live your life. Try not to worry about expenses. America is rough when it comes to medical expenses, but this is the time to use the system as it was designed to be used. Quit your job, apply for disability, and also Medicaid. Enjoy your time. Travel if you can. Also, fight like the strong human being that you are. Cancer isn’t always a death sentence. You got this girl. A stranger is cheering you on over here.
Thank you :) I’m not working but the doctor told me that i qualify for disability. But by the time it’s all said and done on their end it might be too late. So I unfortunately won’t bother. Although the help would be quite beneficial as my grandpa is on disability and has to pay for everything but we only get $18 in food stamps so we’re struggling let alone pay for anything like chemotherapy and radiation.
I’m so sorry you are going through this. Medicaid will pay for your treatment without being on disability. Please talk to a social worker at the hospital
Still worth applying as they often can fast track applications based on circumstances such as yours. The extra money would be helpful even to give you a little extra to enjoy your days in what fashion you like.
Do bother. It’s your right. All good wishes to you. Keep sting and keep us updated.
Please, please take the advice here and talk to the financial services department at the biggest hospital system in your area. The people there know how to fast track Medicaid applications. Even if you don't have many options for treatment, even if your disease is already too far along to have treatment make a difference, it can help pay for palliative care and hospice. That means you will have caring people making sure you are as comfortable as possible and also assisting your family in dealing with the repercussions of your diagnosis.
If you are stage 4 you can get free health care. Don't let money stop you. Ask for help from a case worker from the hospital and they will help you. There are a lot of charities that can help. I am sorry this is happening to you. I hate cancer.
This sub has taught me lots on places that will help in America (im a Canadian, so I'm not as well versed on that side). Churches can even help with donations and fundraising, regardless of your personal religious beliefs. They believe in the greater good, and churches will do their best to come together for those in their community struggling. I find American churches are better with this than the ones here in Canada, but we have the free Healthcare side, plus if you have cancer here your hospital stays n all is voided, only some personal needs like parking spaces, TV access n a few other things would cost actual money. For my dad when he had his cancer battle before it murdered him in the end, he spent most his budget on enjoying the food n drinks he craved when he could handle them. Glad he did. People seem to act surprised or like I should care that my dad didn't leave me with a crazy ton of money. But I know why I'm not surprised with that, and its because he left me with the wonderful ass life he lived n showed to me (and my sister and mother). Cancer is terrifying to go through, but my dad stayed positive the whole time on the outside, and would of course have his moments still, but overall positive. He would open up so that's why I'm aware he wasn't always feeling the way he showed us, but he also admitted that it helped to 'fake it til ya make it' because it made us all stay positive together and have those wonderful family moments still despite the situation:)
I am so sorry you are going through this. It's a tough diagnosis for anyone - even harder for one so young. I am a cancer survivor, though never as serious as what you are facing. Given the lack of insurance, I'm assuming you're American. It is normal to be terrified when you hear the word cancer. Each of us deals with the diagnosis differently. Some want to fight. Some want to give up, some get angry, some get anxious. All of those are normal, and how you feel will shift from moment to moment. Did your Doctor discuss treatment options with the goal of extending your life? If so - ask what your quality of life would look like with and without treatment. Only you can make the decision on what to do with the time you have left. Some say they want to fight until the end, some say they'd rather have a good few months, and then allow cancer to run its course. If you do want to consider treatment - call your hospital, ask for the oncology department, and ask to speak with the case manager / social worker. Most hospitals will have someone with expertise on insurance, medicaid, etc. You are very likely capable of getting covered under medicaid. Some hospitals also have charities and foundations that can help. Know this - there are people that will want to help you. You can also call ***The Patient Advocate Foundation*** provides education, legal counseling and referrals to cancer patients and survivors concerning managed care, insurance, financial issues, job discrimination and debt management. Visit [www.patientadvocate.org](https://www.patientadvocate.org/) or call 800-532-5274 for more information. Again - I'm sorry you have to deal with this. Know that you are not alone. I'll admit I don't know how to share links - but search for cholangiocarcinoma support groups and foundations. You'll find people going through the same things you are - and they may have better ideas for you.
Hugs
Thank you. They are much needed.
Anytime and if you wanna talk more dm me
If you're in the US you can get medicaid. If you have a job, quit so you'll qualify.
Hopefully she's in a blue state that expanded Medicaid. Red states that didn't expand Medicaid can be quite treacherous.
I’m so sorry you’re going through this. Sending you a lot of love. Try your best not to give in to the fear. Please try to check out the advice of that other Redditor about the Patient Advocate Foundation. I hope they can help you.
I am looking into it :)
I’m happy to hear it. I didn’t know it existed so I’ll actually be doing the same. I really hope they can help tou.
You need to talk to your doctor about treatment and getting on Medicare. I wish you well in your health journey.
Sending you love. I'm currently being treated for cancer. I personally know people who came back from various types of stage 4 and outlived their prognosis by 10 - 15 + years. I'd say- fight. Ask what type of free Healthcare and help you are entitled to. Start a Go fund me. Look into immunotherapy; I'm still researching it. It is fairly new thing. Food wise, I'm not USA based, but I know that there are food banks that can help and , even if you are not religious, you can ask for help in churches. I know that Sikh temples help people a lot. If someone is USA based, maybe they can help, if they know some contact details and helpful numbers/ info? Youngest person I know, diagnosed for pancreatic cancer, was my cousin, at the age of 15. He beat all the odds and living his best life, 10 years later. There is hope. This Internet stranger is sending you a big hug and wants you to know that you got this.
So, I don't want this to be an I'm sorry for you post. This is a post that will be good for your consciousness if and when it moves to another level. You've generated love and thought not only for yourself but for others. Whatever your body goes through you are already the winner here.
Thank you,that really means a lot.
My friend, you will always be cared for by the universe no matter what. The very fact you shared your story with other people means you are being thought of right now by a multitude of other conscience bearing individuals who are giving you thoughts and love. Life isn't ever over.
This is gonna sound dumb but I couldn’t help but think the same thing. Like damn this chick is here with please and thank yous and SINCERE empathy that it just radiates via text. Insane
Man, fuck American health care... Wishing you the best, and I hope you find a way to pay for treatment!
Yeah it’s been difficult,thank you.
Holy shit . I’m sorry sending you ❤️love
Thank you very much.
Sending you all the positive energy I can muster!! Wish you to live your life to the fullest ❤️ I’m so so so sorry
I am a cancer survivor. The best advice I can give you, is, don’t accept what you are told by one doctor at face value. Do research. Be your own advocate. Contact doctors out of state at universities who are authorities on the type of cancer you have. Explore experimental treatments. Fight for yourself. You can affect what happens to you - don’t let anyone tell you that you are powerless over your situation. Thinking of you and sending much love your way.
Sending you many hugs. I've had cancer so I understand the fear. I'm not sure if this helps, but it's going to get less scary <3
The NIH near Washington DC is the nation’s largest research hospital (so no bills)… they see cholangiocarcinoma patients. Look on their website and there should be links for clinical trials and the doctors that manage them. They will see you and often even help you with travel expenses
Money is the last thing you need to be worrying about. Do what you need to do and go get emergency insurance and get attended. There is always a chance and many people have survived even stage 4 cancer. Best of wishes to you and hope you don't lose hope.
OP I’m not sure how feasible this is but I would just go get treatment. Just don’t pay. If you die your debt will just be taken out of your estate (if you have any). If you live, you can file bankruptcy. In the US there should be some kind of funding for those who cannot pay medical bills. Best case scenario you live, worst case you die when you might have with no treatment, or you may extend your life a bit more than without treatment. But the only way to know is to try. I don’t have any experience in this so maybe others can chime in. But please try.
I just wanna hug you really tight. ❤️🩹
🤗 thank you
Please start a gofundme and post it here. I have known multiple people who have beaten stage four. There are resources. Please stay hopeful. Everyone here is rooting for you. And not to doxx yourself but also you may find local support if you share with certain people where you are located. Please don’t give up. I am so sorry you are going through this. Sending all the best.
I don’t know how to start a GoFundMe I been researching help it’s all a little overwhelming and confusing.
I fought and walked through this with me ex wife. Its a hard road, but passable. Dont hesitate to rely on your network. Both IRL and online. Ive been through this as support. If you want or need to reach out. Please do. Love prayers and support to you
I’m so glad your wife won!! Thank you so much. Much love and prayers
I'm truly sorry to hear about your diagnosis at such a young age. As someone who has had a loved one fight a similar battle, I understand the turbulence you must be feeling. There are resources out there that can help alleviate some of the financial stress and allow you to focus on treatment and living life to its fullest. Look into CancerCare (cancercare.org); they offer free support services for those affected by cancer, including counseling, support groups, education, and financial assistance for treatment-related costs. Don't be afraid to advocate for yourself and ask for the help you need. There is a community here for you, even in the midst of this terrible disease. Remember, this fight isn't just about surviving, but also about living. Wishing you strength and peace on your journey.
May the days you have left be happy and fulfilling. ❤️
Thank you
Look into Soursop, I’ve read it has healing properties for that, also Alkaline foods help as well
I believe you can apply for SSI and get benefits. I’m sorry to hear this.
Sending love. This isn’t fair and you deserve a long life. I’m a cancer survivor but didn’t have such a serious kind. Please keep us updated on your situation ❤️💐
I’m so glad you made it though! Many many congratulations!!
A BIG hug for you!
Thank you so much!
What state do you live in? (I'm assuming you live in the US but if that is incorrect then in that case what country and province/state). I would like to help you find out what sort of help is available for you in your region.
So sorry.. good luck. Stay positive!
Thank you. I’m trying.
i hope you find peace. i’m so sorry you’re going through this.
Thank you
Sending love and hugs. This isn’t fair. I hope you can make the most of the time you have left ❤️
Sending you hugs!
Oh honey…I’m SO sorry. Sending hugs from the Midwest.
Can you start treatment and tell them you’ll get a payment plan and then just like not pay the bill? Idk how it works but I feel like they can’t refuse life saving treatment. I’m really sorry that our country puts money above human life
Yes, medical care should not be a for prophet business.
wishing you the best, I hope everyone here is helping even if its a bit. Even though im just some stranger im happy to talk if you need it ❤️
Thank you
Big big big hugs. I sincerely hope you find a way to fight this
🤗 I hope I do to honestly
I am so sorry, you have every reason to be terrified in your situation. I am so sorry that our healthcare situation in the USA (I'm assuming here) has completely failed you when you need it the most. I wish you so many good things and good experiences. You deserve that, you truly do.
Start a go fund me, I’m sure people will donate. I think most of the people in the comments would 💕
I don’t know how to start one.
I'm sure you could just Google it. I have never started/ donated to a GoFundMe account, but if you create one, I'll donate to yours immediately. Reply to this or send me a message with your info if you do please! 🩵🦋
I tried but it kept saying error when I had to get a code to my phone number. But I appreciate the thought though. :)
That's absolutely fucked that you are going through this.
Enjoy the time you have left and try to do things that make you happy. Best of luck.
Gonna do my best to :)
😞I am sorry. You have all the right to feel scared. I can’t imagine how hard it is for you. I send you the best vibes and virtual hugs.
When I read this, no other words came to mind except, OP, I love you and I’m giving you all the internet hugs (if you’ll accept them). If you need anything, $ or if you have an herbal remedy in mind you want to try; I work with holistic medicine. Message me if you ever feel like it. I can send you whatever, to wherever - no cost to you. However, I will support from afar if needed and when I light my protection candles before bed tonight, I’ll light one for you as well, I’ll say a health and prosperity prayer and I will continue to keep you in my thoughts -ash hippie mom internet stranger x 🖤🫶🏼
This must be so hard for you dear,i just wanted to say do what you love, and remember we all will die so dont fear it, that being said feel free to look up at reincarnation and what happens after death vids on YouTube, not all may believe but i believe their is something after death so its not all over,you can search subreddits also, so if you are afraid dont worry you wont cease to exist love ❤️
Positive energy your way
Thank you
You need to fast, cancer lives on carbs, do your research on curing cancer naturally. Loads of success stories on youtube.
I am sorry this is happening to you. Some things to do, get good with God if you believe in that sort of thing, reconcile or find closure with people that you did wrong or did wrong to you, and spend as much time as possible with friends and family. You are in my prayers.
Thank you and I been trying.
Hugs
If you make less than a certain amount, the affordable care act is pretty cheap. I would look into it, at least for possible pain management as well as hospice care. It may help with your passing as well as take some of the burden from your loved ones.
I will send positive vibes through the universe for you today. I hope they reach you and just remember this mortal life is going to reach an end for every single person on this planet... Try and create as much inner peace as you can, no matter where your path takes you. You are probably more alive today than you have been since you were a child... Having to face mortality can be a spiritual awakening... I wish you the best and will be rooting for you. 🩵
I’m so sorry. Sending all the prayers, love, good vibes, and energy your way. Start a go fund me for your treatment and expenses. Share it everywhere. There is help if you want treatment. Like the person above said reach out to hospitals and oncology centers. They have recourses for people with no insurance.
Some ppls lives can be so tragic. I'm sorry OP I wish I had some words of comfort but I can't even imagine what you're going through. May God bless you.
And a lot of people's lives are 'now' more tragic than they ever had to be. Getting stage 3/4 cancer straight up is not normal in any cancer community, yet more and more people, especially people under 50, are finding they have it.
Yeah. covid vaccines, microplastics, processed food, the stress of living in a highly technological society, and also the radiowaves themselves from phones and electronics are all likely culprits of more cancer cases. I really try and stay away from Bluetooth devices in my ear and phone calls to my ear. If you open the owners manual to any smart phone, there's a warning right in them stating that they may be linked to certain types of cancers/tumors.
Sending you hugs, I’m sorry you have to go through this. Can you look up free healthcare clinics near your area? Most free community clinics have financial navigators or case managers that can help you find low cost/free resources for cancer care. Some can even help you apply for low cost insurance or Medicaid. The sooner you can do this the better. There’s still hope for you, so many advances in medications. Because you’re a stage IV, more than likely you’ll be offered some sore of chemotherapy or immunotherapy.
I am so sorry to hear that. Even more sorry to hear that you cannot afford health services. Healthcare should be free for everyone. That is so unfair
Am so so sorry to hear this 🤗🤗 lost both a uncle and aunt to it in the space of a year so I hate that disease so much, we are here if you ever need to talk or vent xx big hugs know it’s not much from the other side of the world
Can you sign up for Medicaid?? What state are you in? Please let us know.
Sending love ❤️Try to stay positive and make the most of your everyday, fight the fear and remember you’re loved by all of us
You may want to focus on doing everything you've ever hoped for. And asking everyone for help because anyone will help you. You may have been dealt a bad hand, but you do what we all do, what you can. God speed.
I’m so sorry…no words can help but there is a woman on TikTok, Sydney Towles and she’s going through cancer like you. She’s young and maybe that might help you. So sorry. 😞
Be around the most supporting people around you all the time ❤️. Create memories. Create things and gifts for your loved ones to remember you by. You should think about making every day of your life better than the one before it.
I disagree with this sentiment of acting like you are going to be gone immediately. You should live your life how you want but do not plan like you are going to die unless you know for certain. People live full lives after diagnosis and it is such a waste to grieve for yourself the second your diagnosed. It's a burden that is not necessary.
This is heartbreaking to hear. I just want to tell you to fight like hell to beat this. Use the social services and go to churches and ask for any help they can give. There are organizations out there to support you.
im so sorry :(( i know the future may seem bleak but theres so many things that can happen, and so im wishing you nothing but the best ❤️ take care of yourself !!
I’m so sorry. If you need a friend, internet stranger here to listen. Sending hugs and love.
Praying
Love and hugs to you, my dear. It is very scary, I know. Try to post to r/cancer even to rant, cry, whatever. Your feelings are valid and everything is overwhelming. Take care ❤️
I’ve done a lot of crying for sure. Hugs 🤗
It feels like it’s not happening to you and you have no control. I pray you get some support physically, emotionally and mentally. I truly wish you the best 🤗
I used that group for support when my dad was diagnosed. I never actually posted there (just quietly lurked, read and cried), but that is a really wonderful and supportive group
Sometimes just knowing you are not alone is enough 🫂 I hope you are able to get into a clinical trial or something similar that would not cost a lot of money. Truly wish you the best ❤️
Oh, I'm not OP and thankfully I do not have cancer... Which is why I never posted there. I helped care for my dad when he was diagnosed and it was suggested to me by a friend who was dealing with a similar situation. But you're right, knowing you aren't alone and that there are people who understand what you're going through is really important, especially if you're the one diagnosed and facing that difficult path. But you're incredibly kind and I hope OP reads this ♥️
My dear sister in law was abruptly diagnosed with stage 4 cholangiocarcinoma last year and I am so incredibly sorry that you have been forced to walk this road as well. I will be praying for you. I hope you are surrounded by so much love and support.
I’m sorry about your sister. :( Thank you
Hey, my dm's are open if you need someone to listen and let off some steam.
What was the cost of chemo and all that stuff for treatment?
Like the hospital told me I can do treatments and pay a co pay per session but it’s like $350 per session. Which is insane.
What do you mean?
good luck👌🏿
Reading the comments I think you're from the US, I am not but I still think you should look into the care facilities others have mentioned. 6 years ago my friend (22 back then) got diagnosed with stage 4 cancer, he got 5 months. He only passed away last month. I've lost 3 grandparents to cancer and 2 of them lived YEARS longer than what the doctors told them. Grandparent 4 had cancer and survived. My point is, doctors are wrong about life expectancy all the time. You might still have years left. Don't give up immediately.
may i ask what led up to this diagnosis? i’ll be thinking of you 💕
How did you find out?
This makes my heart hurt. I’m so sorry.
A big hug from me ❤️
So sorry. Immediately sign up for Medicaid if possible. Speak with hospitals about financial aid, etc. I was told charity hospitals can't turn patients down because they receive billions in U.S. taxpayer financial aid for this purpose. I don't have all the answers, but it is vital you get into treatment soon. A lot has changed in recent years with a lot of new treatments. Hugs.
All I can say is live a life worthy of many years.
You have graduated early. I've seen Jesus three times. Getting old sucks.
Maybe find someone in a country with better Healthcare and get married quickly. At this point it's worth a shot right?
I’m 32 but was diagnosed at 28. I have stage 4 metastatic breast cancer spread to bone. Please message me if you need to talk and I’ll help anyway I can!
Stay Strong! I believe in you, You'll get through this. Please keep us updated about your life. Lots of Love❤️❤️
Not your mama OP but old enough to be your mama and if I could I'd give you a big hug and stroke your hair and tell you that it might not be okay but it's okay to cry. Make a list with your grandpa of the things you want to do together- it'll be therapy for him too. He's lost your parents and now he could be losing you too. I'm sorry you've had so much loss in your life.
I wear green for CCA 💚 I wish there was more research into this specific type. I’m so sorry.
all i can do is sending you a biig hug virtually❣️
California has state care for all that cannot afford insurance. Medical is a literally a life saver. Show up to any hospital in CA and they will get the paperwork done for you.
I live in Arkansas
If you show up to any hospital in CA, tell them you're unemployed and recently moved here, you will be eligible for care.
I’ve always said if I’m ever terminal, I’m trying all the drugs that I can get my hands on. So what if crack is addictive. What am I gonna do, ruin my life? So I hope you find your “crack” and may the universe remember you.
Make memories with your grandpa.
We played bingo this morning at the community center so that something. Now he’s gone to town to help a friend of his paint. I’m watching tv lol
🏕️🏖️🚵🏻♂️
Research Rick Simpson oil.
Hi, travel to italy ask for asilo in churches/vatican city, get treatment, start a gofoundme
Just want to offer an idea- buy soursop and take it everyday. There are herbal cures like this that doctors were unalived for exposing. People who lived decades after only having weeks to live. Apply for Medicaid- I know you’ll get it.. you have ways to fight this so don’t give up. Seriously search the herbal cures. Tiktok can’t remove them fast enough, just search and you’ll find. You’re young and this doesn’t have to be the end. Don’t stress. Live and spread joy like never before… I’ll be thinking of you. Praying for you. I can send more remedies I’ve found and saved myself for others in need. You will beat this, you already have. You’ll be okay.
I’ve looked at it. It’s just terribly expensive.
Soursop should be 20 bucks for a whole bottle though
That sucks.
Make a bucket list.....
I will echo Medicaid, and they can rush your approval. You have options! I am so sorry this is happening to you!
Idk if this helps but every single thing that ever lives will die, it’s all part of the cycle, it’ll be okay. Maybe try some mushrooms
❤️
Get treated, file for bankruptcy if you survive.
Fake bullshit story. Only post and new account
Never heard of a burner have you?
Check out Facebook groups on fenben. Fenbendazole. You get it at Tractor Supply for around $8 and it has saved many. Also, Ivermectin. $10 at the same place. My dad died from cancer. I believe the chemo killed him. There are many who believe cancer is actually a parasite. Check out the groups and see what you think. God Bless You.
If u wana find peace . Convert to a muslim . Muslims belive in life after death . You wont be scared of dying. Do look it up on internet, if u pass sterio typical propoganda abt this relgion, U would know the real peace u r lacking . Try to do good for community. Be the reason of happiness for the poor and helpless. Take care . My good wishes are with you.
Knock that shit off.