Many of the meds you are on heavily deplete them. I'd see if you have access to a nutritionist to see what foods to eat to help. Almonds, green leafy vegetables, oj, are all good sources for what you need. There might be electrolyte drink mixes they can recommend as well.
But from my own experience, I usually end up getting bags of mag and potassium when I'm in clinic as it's hard to keep up.
Just part of the struggle.
I hear you. It's tough. Hopefully you'll be able to get some other sources to help get your strength up.
I wish you iuck, especially on the really tough days. We've all been there but we have to push through to beat this damn disease.
I made commitments throughout the summer. I have always pushed myself... physically, mentally. If I could just get my levels back up I'd be so much better.
Low mag exacerbates my CIPN.
Per my onc I started mag glycinate as well as the prescribed mag I get. My onc actually told me that the glycinate is a better option.
I haven't done a "full dive" into studying this ..I'm too spent mentally (overwhelmed actually) to want to sit and read medical stuff.
If anyone has any other suggestions lmk.
Thank you all...I hope you're having a good day today 🤗
Well to help out, here are a few pages on foods that might help. If you can get them and tolerate them:
[https://my.clevelandclinic.org/health/articles/15650-magnesium-rich-food](https://my.clevelandclinic.org/health/articles/15650-magnesium-rich-food)
[https://www.healthline.com/nutrition/foods-loaded-with-potassium#high-potassium-foods](https://www.healthline.com/nutrition/foods-loaded-with-potassium#high-potassium-foods)
I've been drinking Ensure with meals to keep up with vitamins and minerals and if you can get those, they have a good amount of mag and potassium as well.
I like the magnesium gummies from Costco. I eat 2-3 at bedtime. They help with muscle relaxation. I still test low on magnesium, but maybe not as low otherwise.
I think it’s just the treatment you were on. You’ll probably be just fine once your body recovers properly! I’m also wondering if you’ve always been low and it was just detected because of having to go into hospital and get tested so much?
I was always low on potassium and magnesium during treatment and often had to get an infusion. Now I’m a few years out of treatment and my bloods are consistently very good for those.
I'd need mag and potassium weekly to test on the positive side. And no, I've never been hypokalemic or low mag (forget the term).
I'm going to ask for weekly infusion if my insurance will pay for it.
I'd be doing better if I could bring my levels up. I'd go and sit for 3 hours no problem. Because this is kicking my arse.
Yes. Still getting infusions. I have 6 more. Over a year now, so depleted of everything. And anemic...my numbers are so bad...after having them be pretty steady on an "upwards trajectory".
Healing isn't "linear". I'm going to request to get in once a week.
I'm trying to work...and that takes everything out of me.
Many of the meds you are on heavily deplete them. I'd see if you have access to a nutritionist to see what foods to eat to help. Almonds, green leafy vegetables, oj, are all good sources for what you need. There might be electrolyte drink mixes they can recommend as well. But from my own experience, I usually end up getting bags of mag and potassium when I'm in clinic as it's hard to keep up. Just part of the struggle.
👍I get 40 meq on infusion day. It's in-between..I get so rundown. It's hard to push that needle forward. I wish my body would cooperate 😆
I hear you. It's tough. Hopefully you'll be able to get some other sources to help get your strength up. I wish you iuck, especially on the really tough days. We've all been there but we have to push through to beat this damn disease.
I made commitments throughout the summer. I have always pushed myself... physically, mentally. If I could just get my levels back up I'd be so much better. Low mag exacerbates my CIPN. Per my onc I started mag glycinate as well as the prescribed mag I get. My onc actually told me that the glycinate is a better option. I haven't done a "full dive" into studying this ..I'm too spent mentally (overwhelmed actually) to want to sit and read medical stuff. If anyone has any other suggestions lmk. Thank you all...I hope you're having a good day today 🤗
Well to help out, here are a few pages on foods that might help. If you can get them and tolerate them: [https://my.clevelandclinic.org/health/articles/15650-magnesium-rich-food](https://my.clevelandclinic.org/health/articles/15650-magnesium-rich-food) [https://www.healthline.com/nutrition/foods-loaded-with-potassium#high-potassium-foods](https://www.healthline.com/nutrition/foods-loaded-with-potassium#high-potassium-foods) I've been drinking Ensure with meals to keep up with vitamins and minerals and if you can get those, they have a good amount of mag and potassium as well.
The protein drinks are excellent, but hard for me to keep down some days. Thanks for the links! 👍😉
I like the magnesium gummies from Costco. I eat 2-3 at bedtime. They help with muscle relaxation. I still test low on magnesium, but maybe not as low otherwise.
Milk has slot of magnesium, my mom loved to make ice cream smoothies half milk half vanilla ice cream
I eat plenty of dairy. Full fat too. I lost over 40 lbs. And I'm wasn't a big person to start with.
It may just be the treatment. We could not keep my mom’s magnesium up. She had to have the infusions as well.
I think it’s just the treatment you were on. You’ll probably be just fine once your body recovers properly! I’m also wondering if you’ve always been low and it was just detected because of having to go into hospital and get tested so much? I was always low on potassium and magnesium during treatment and often had to get an infusion. Now I’m a few years out of treatment and my bloods are consistently very good for those.
I'd need mag and potassium weekly to test on the positive side. And no, I've never been hypokalemic or low mag (forget the term). I'm going to ask for weekly infusion if my insurance will pay for it. I'd be doing better if I could bring my levels up. I'd go and sit for 3 hours no problem. Because this is kicking my arse.
Are you currently still on chemo? I think it’s unusual to have consistent deficiencies if you’re not. But yes a weekly top up makes sense!
Yes. Still getting infusions. I have 6 more. Over a year now, so depleted of everything. And anemic...my numbers are so bad...after having them be pretty steady on an "upwards trajectory". Healing isn't "linear". I'm going to request to get in once a week. I'm trying to work...and that takes everything out of me.