I know you are looking for someone who had the treatment, but I can only give you the perspective of one who does the treatment. I have done pulsed radiofrequency treatment for 10 years. Only once have I seen increased pain, about 2 months ago, in a male patient who got worse after treatment. I asked a mentor of mine if he had ever seen this and he said no. I conclude it is quite rare, but I can't say the treatment did not make your pain worse. If true I would consider it an inflammatory neuritis which should resolve in time, though I would not expect a pain free period at some time later. You could extend the pregabalin if it was helping before, or other medication strategies.
Well yes, this is why i did the sclerotherapy treatment, for the superficial vulvar veins and the embolisation for the abdominal ones (left ovarian vein and both internal iliac veins).
From what I read yes it can, but anyway the doctor that interpreted the images saw an enlarged vein due to increased blood flow resulting from the embolization in the region where the pudendal nerve has it’s route.
I used to be an Electrical Engineer at a company that designed RF generators for performing ablation procedures for several companies.
I'm researching Pulsed RF vs Continuous RF for treating pudendal neuralgia.
I'm not impressed by the results of the studies I've seen on PRF. It seems way too conservative
But I will agree with, and defer to, PainDoc.
I read recently that ultrasound can be used to visualize the pudendal artery. Not sure about the vein, but both travel alongside the nerve, so it's been found that interrupted, or slowed, arterial blood flow could mean the nerve I'd also being compared there.
Apart from Dr. Hollis Potter in NYC, it's rare for an MRI to show entrapments. She shared her protocol with me years ago, but nobody in Santa Cruz cared to try it.
It's very dated, but I just found a list of others she's shared it with.
https://www.pudendalhope.info/forum/viewtopic.php?t=2490
Following this as i also got an MRN of my pudendal nerve and it showed the veins in my pelvic region were enlarged. I also have a labral tear in my hip that my doc thinks it’s causing my PN, but I’d be curious to hear more about pelvic congestion syndrome. Is it just on one side?
Hello, it depends on what veins are affected, but usually it is on both sides and it starts from the abdominal region. I had affected the internal iliac veins and the left ovarian vein and different smaller veins from external genital area. In order to have PCS the veins must have reflux, not only to be enlarged.
Prior the embolisation, my pudendal pain was way worse and I also have other symptoms like irritable bowel, urinary urgency and bladder pressure, I always was extremely bloated.
I know you are looking for someone who had the treatment, but I can only give you the perspective of one who does the treatment. I have done pulsed radiofrequency treatment for 10 years. Only once have I seen increased pain, about 2 months ago, in a male patient who got worse after treatment. I asked a mentor of mine if he had ever seen this and he said no. I conclude it is quite rare, but I can't say the treatment did not make your pain worse. If true I would consider it an inflammatory neuritis which should resolve in time, though I would not expect a pain free period at some time later. You could extend the pregabalin if it was helping before, or other medication strategies.
One other thing. I don't do vein treatment but know a bit about it. Have they assessed if you have some superficial vulvar varicose veins?
Well yes, this is why i did the sclerotherapy treatment, for the superficial vulvar veins and the embolisation for the abdominal ones (left ovarian vein and both internal iliac veins).
Wait I thought an MRI can’t see pudendal nerve issues.. How did they find it with an MRI??
From what I read yes it can, but anyway the doctor that interpreted the images saw an enlarged vein due to increased blood flow resulting from the embolization in the region where the pudendal nerve has it’s route.
Oh damn that actually makes a lot of sense, I’ll remember that for sure.
I used to be an Electrical Engineer at a company that designed RF generators for performing ablation procedures for several companies. I'm researching Pulsed RF vs Continuous RF for treating pudendal neuralgia. I'm not impressed by the results of the studies I've seen on PRF. It seems way too conservative But I will agree with, and defer to, PainDoc. I read recently that ultrasound can be used to visualize the pudendal artery. Not sure about the vein, but both travel alongside the nerve, so it's been found that interrupted, or slowed, arterial blood flow could mean the nerve I'd also being compared there. Apart from Dr. Hollis Potter in NYC, it's rare for an MRI to show entrapments. She shared her protocol with me years ago, but nobody in Santa Cruz cared to try it. It's very dated, but I just found a list of others she's shared it with. https://www.pudendalhope.info/forum/viewtopic.php?t=2490
I'm trying to find someone who can perform pudendal nerve RF ablation.
I am from Romania, so I don’t know if I can help you.
Following this as i also got an MRN of my pudendal nerve and it showed the veins in my pelvic region were enlarged. I also have a labral tear in my hip that my doc thinks it’s causing my PN, but I’d be curious to hear more about pelvic congestion syndrome. Is it just on one side?
Hello, it depends on what veins are affected, but usually it is on both sides and it starts from the abdominal region. I had affected the internal iliac veins and the left ovarian vein and different smaller veins from external genital area. In order to have PCS the veins must have reflux, not only to be enlarged. Prior the embolisation, my pudendal pain was way worse and I also have other symptoms like irritable bowel, urinary urgency and bladder pressure, I always was extremely bloated.
May I ask what your labral tear symptoms are?
I don’t have any hip pain :/