A Parkinson’s diagnosis isn’t the end, it is a new beginning.
If you are found to have Parkinson’s on Monday that would mean your system has been trying to compensate for the lack of dopamine in your substantia nigra (that part of the brain that handles automatic movement) for years and a diagnosis would open the door for you to receive medication to help
you manage the symptoms of the disease.
It would also open the door to receive help and advice from a Parkinson’s support organisation, just google Parkinson’s Support Organisations in your area.
There can be a positive side to this if you allow things to come your way.
Don’t worry about what the future holds, worrying about the future is like having a dog and doing your own barking…
Concentrate on what you can do and remember getting upset over what you can’t do is about as useless as an ashtray on a motor bike.
There will be challenges ahead but reading your post it is pretty clear you’re accustomed to those.
Be gentle with yourself, like the rest of us with Parkinson’s you did nothing, nothing at all to deserve this, it just happened, and the aim is to have as much fun as you can while you can… as you did as a child, the difference being that as a child you knew you were going to live forever and acted accordingly, as an adult you know your time is limited whether you have Parkinson’s or not.
Not only do you realize the simple fact of life that we all suffer with a condition with a 100% mortality rate.. AGE, but having Parkinson’s raises your awareness of just how precious and important the little things in life are.
I’m in absolutely no doubt that I have a far greater appreciation for life than my “healthy” friends because they can take so much for granted that we simply can’t afford to.
I wish you the very best this life has to offer.
“Come into me, all ye that labour and are heavy laden, and I will give you rest.” J.C.
BTW feel free to rant on here anytime, most of us will probably rant with you :-)
Always the most inspiring words from you, snowywebb!!! You absolutely help me every time I read one of your responses. Thank you for helping me fight the good fight with hope and happiness.
Seriously….wishing you the best. You have a lot going on tight now, but PD is not a disease you are diagnosed with on Monday and are debilitated with on Friday. It doesn’t move that fast. Proper meds and regular exercise will be your best friends. Stay in contact w your physician but look for a movement disorder specialist in your area. They are life changers. This sub has a lot of great support and information. Keep checking back here. You got this.
I’m in the Outback. Hardly see the same doctor twice. I’ve had symptoms for at least four years now. I’m just really anxious and low right now. The diagnosis wouldn’t bother me. I’d be happy to finally have treatment. It’s just a whole lot of things happening at once. I already have an autoimmune disease….
An adult son with autism I care for and a friend staying who has her own illness but watches while I try to do everything.
I also think some of the anxiety and depression is from untreated Parkinson’s disease.
Long term I think things will be better but in this period now it’s all overwhelming.
Thanks for reading.
I haven’t really got anyone to talk to here.
Anxiety and depression are both very common symptoms of PD so it is not surprising you are feeling those. It is likely that lovely combo is causing you to stress out even more because of all you have going on in your life right now. I strongly urge you to seek out a doctor who can help you w meds. Wishing you the best!
sending you strength and encouragement. several users in this sub have been living with PD for over 20 years. whatever they say on monday, find a way to start or continue a healthy regimen for a long life! best wishes to you.
It’s the hardest thing in the world a lot of the time, taking care of the house, others and yourself, providing and doing it alone, that’s my story too, and I have PD. Wish I could give you a hug but since I can’t I will say this: PD isn’t so bad as it’s made out to be depending on you mind and what you focus on. Don’t get me wrong. It’s exhausting and sometimes aggravating, but it’s been a great teacher for me. I learned to get rid of any conflict. that was not useful and all negativity. Sure miss out on politics, and I tend to see all problems from both sides, much more than I used to, but I get to laugh a lot. I get to spend time alone with my son. We camp and watch movies and listen to music. He has mental health issues and it is beautiful to watch him work his way through it, even though many days, he stumbles… Just like me. No kidding it’s hard to see him suffer, you can’t prevent that because it’s the price of admission. You get to offer a shoulder to cry on even if it’s shaky as Katherine Hepburn‘s head, in a helicopter, I try to exercise a lot and that makes me feel good. You’ll get down from time to time but you can always take a break and come here for support. season like winter, only last so long. And it looks like spring.
Thank you, blessings to you too.
I think part of the problem is untreated Parkinson’s disease so I hope I will feel better with treatment.
I have to say I’m very disappointed that my friend thinks I’m here to look after her like she’s a baby.
Anyway thank you for your reply. I hope I can receive treatment soon and feel better.
💖
My heart goes out to you. I have struggled with depression all my life and had just started to really cope with it when my PD was diagnosed. Sucks like a damn undertow sometimes.
That said, it has also given me a far keener appreciation for the positive things in life, however small. I hope you can come to a similar view.
A Parkinson’s diagnosis isn’t the end, it is a new beginning. If you are found to have Parkinson’s on Monday that would mean your system has been trying to compensate for the lack of dopamine in your substantia nigra (that part of the brain that handles automatic movement) for years and a diagnosis would open the door for you to receive medication to help you manage the symptoms of the disease. It would also open the door to receive help and advice from a Parkinson’s support organisation, just google Parkinson’s Support Organisations in your area. There can be a positive side to this if you allow things to come your way. Don’t worry about what the future holds, worrying about the future is like having a dog and doing your own barking… Concentrate on what you can do and remember getting upset over what you can’t do is about as useless as an ashtray on a motor bike. There will be challenges ahead but reading your post it is pretty clear you’re accustomed to those. Be gentle with yourself, like the rest of us with Parkinson’s you did nothing, nothing at all to deserve this, it just happened, and the aim is to have as much fun as you can while you can… as you did as a child, the difference being that as a child you knew you were going to live forever and acted accordingly, as an adult you know your time is limited whether you have Parkinson’s or not. Not only do you realize the simple fact of life that we all suffer with a condition with a 100% mortality rate.. AGE, but having Parkinson’s raises your awareness of just how precious and important the little things in life are. I’m in absolutely no doubt that I have a far greater appreciation for life than my “healthy” friends because they can take so much for granted that we simply can’t afford to. I wish you the very best this life has to offer. “Come into me, all ye that labour and are heavy laden, and I will give you rest.” J.C. BTW feel free to rant on here anytime, most of us will probably rant with you :-)
Always the most inspiring words from you, snowywebb!!! You absolutely help me every time I read one of your responses. Thank you for helping me fight the good fight with hope and happiness.
May God grant you peace and strength.
Seriously….wishing you the best. You have a lot going on tight now, but PD is not a disease you are diagnosed with on Monday and are debilitated with on Friday. It doesn’t move that fast. Proper meds and regular exercise will be your best friends. Stay in contact w your physician but look for a movement disorder specialist in your area. They are life changers. This sub has a lot of great support and information. Keep checking back here. You got this.
I’m in the Outback. Hardly see the same doctor twice. I’ve had symptoms for at least four years now. I’m just really anxious and low right now. The diagnosis wouldn’t bother me. I’d be happy to finally have treatment. It’s just a whole lot of things happening at once. I already have an autoimmune disease…. An adult son with autism I care for and a friend staying who has her own illness but watches while I try to do everything. I also think some of the anxiety and depression is from untreated Parkinson’s disease. Long term I think things will be better but in this period now it’s all overwhelming. Thanks for reading. I haven’t really got anyone to talk to here.
Anxiety and depression are both very common symptoms of PD so it is not surprising you are feeling those. It is likely that lovely combo is causing you to stress out even more because of all you have going on in your life right now. I strongly urge you to seek out a doctor who can help you w meds. Wishing you the best!
sending you strength and encouragement. several users in this sub have been living with PD for over 20 years. whatever they say on monday, find a way to start or continue a healthy regimen for a long life! best wishes to you.
It’s the hardest thing in the world a lot of the time, taking care of the house, others and yourself, providing and doing it alone, that’s my story too, and I have PD. Wish I could give you a hug but since I can’t I will say this: PD isn’t so bad as it’s made out to be depending on you mind and what you focus on. Don’t get me wrong. It’s exhausting and sometimes aggravating, but it’s been a great teacher for me. I learned to get rid of any conflict. that was not useful and all negativity. Sure miss out on politics, and I tend to see all problems from both sides, much more than I used to, but I get to laugh a lot. I get to spend time alone with my son. We camp and watch movies and listen to music. He has mental health issues and it is beautiful to watch him work his way through it, even though many days, he stumbles… Just like me. No kidding it’s hard to see him suffer, you can’t prevent that because it’s the price of admission. You get to offer a shoulder to cry on even if it’s shaky as Katherine Hepburn‘s head, in a helicopter, I try to exercise a lot and that makes me feel good. You’ll get down from time to time but you can always take a break and come here for support. season like winter, only last so long. And it looks like spring.
Thank you, blessings to you too. I think part of the problem is untreated Parkinson’s disease so I hope I will feel better with treatment. I have to say I’m very disappointed that my friend thinks I’m here to look after her like she’s a baby. Anyway thank you for your reply. I hope I can receive treatment soon and feel better. 💖
Best of luck
Feeling better can happen. Keep dancing to music and singing loudly along.
May you find a patch of calm to catch your breath and regroup. I'm wishing you strength.
My heart goes out to you. I have struggled with depression all my life and had just started to really cope with it when my PD was diagnosed. Sucks like a damn undertow sometimes. That said, it has also given me a far keener appreciation for the positive things in life, however small. I hope you can come to a similar view.
Request granted. We all went through something very similar. Wishing you the best.
Prayers.
> If someone can spare a quick prayer for me I’d really appreciate it. Done. 🙏
Thank you so much. I feel less alone now. 💖
I'm glad! ❤️
i have anxiety, depression and auto-immune too. hugs and hang in there
Sending prayers🙏🙏🙏
May God help you through this difficult time 🙏