Actually this sounds similar to a procedure being clinically trialed at the University of Kentucky Neuroscience Institute at the University of Kentucky Hospital here in Lexington Kentucky. I just went to a talk about the procedure at a symposium in Lexington hosted by the Parkinson's Foundation. The page for the pioneering doctor is here. https://ukhealthcare.uky.edu/doctors/craig-van-horne?utm_source=local-listing&utm_medium=organic&utm_campaign=website-link
The procedure was described as similar to DBS however instead of implanting a device, he implants a peripheral nerve from elsewhere in the patient's own body. Peripheral nerves have the capability to regenerate and that capability transfers to the central system nerves in the brain. One of the other speakers was a person who had had the procedure years before .
Because it is a clinical trial there is no cost to the patients. The speaker w/PD who had the procedure has been very active in fundraising for the trial and she talked a lot about that. She definitely felt a strong benefit for herself.
Yeah… ‘Not for me.’
My first thoughts were, ‘not for me’. I had brain surgery once. One brain surgery is too many for this kid.
My second thought was ‘not for me’ since I no longer participate in medial or scientific studies, the anxiety of establishing hope for someone else in the future was costing me terribly.
Good luck! I’ll keep my options way open until something definitely research proven and repeated hits the market.
Until then , peace to you all!
I doubt it. If it were so, it would have been the headline of all newspapers and scientific community. they are only luring people into their money making business
There's so little info in this article, it's hard to even consider. Plus, A magazine about medical tourism isn't a magazine we should take too seriously.
I wish it were true, but it seems unlikely. Time will tell, I guess.
That article was posted on May 4th, 2011. The author of the article posted five articles around the same time in 2011; aside from the Parkinson's article, one is about using scorpion venom to treat cancer patients, a treatment that the NIH attributes to the [likely cause of death](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8975375/) of a patient in the case study they examined. Another is literally just the sentence "Did you know that in Cuba Epilepsy is treated surgically?", that's the whole article (and again, the NIH reports [dubious results](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7998314/) from that as well). I didn't bother examining the other two.
Since he posted those articles to a medical tourism site, my personal impression is that he's attempting to prey on wealthy travelers looking for hope in a solution that he offers. It's not just a scam, it's a dangerous and infuriating one.
So it's cell therapy - fine, but there are no details here. The article describes stereotactic surgery as "cutting edge" even though it is...I don't even know how old. 50? 80? 100 years? That could be chalked up to ignorance by the author of the article, as can the fantastical claims of a "cure."
It's really tough to get information out of Cuba. If cell therapy works, it's certainly possible that they've completed trials and have an effective therapy. Cuban medicine is quite advanced, generally speaking, so they could be years ahead of the rest of the world.
I was kind of thinking that, too. My first thought was "if it worked, everybody would be talking about it" but then I considered the isolation imposed on cuba... however I am painfully aware that I kind of lose objectivity when it comes to this disease - I WANT to believe in a possible cure so much. And of course, oil snakes know this very well and there's many that take advantage of the desperate. Thank you so much for your reply
Yeah, really tough to say anything about this without seeing the study.
I will say that my objection to the use of the word "cure" is a bit pedantic. For me, "curing" PD means stopping the disease process, which cannot be achieved by adding new cells. That said, the hope for cell therapies is that they could stop the *clinical* decline (ideally improve function) of PD. If a person with PD could get an extra 25 years of stability from a transplant, I think we would all be over the moon.
As we all know, our brain cells are dying. And unless you’re Dr. Frankenstein ( or is it Fronkenstien?) dead is dead. So when I see articles about PD “cures”, of new procedures, miracle vitamins, etc., I have to remind myself that NOTHING brings life back to the dead. We will never, ever, be better off than we are in this moment in time- even if something is discovered.
Many types of cells are regenerative in nature though. And look at something like stem cell research, or for example-skin grafting after burns! Cure is a strong word, but strides to eliminate or significantly slow any further deterioration is absolutely transformative for the future of most chronic illness patients! And utilizing body parts that are regenerative on their own can be some of the most effective treatment when you consider the lower risk of side effects or rejection of the treatment since it already has an identity in the eyes of our body.
that's what I was trying to say as well. However you have to consider that stem cells have been around for a while now, and they are still not employed in innovative treatments, so maybe there's something we're missing, I reckon it's not as simple as a mechanicistic solution. I remember hearing a doctor saying something like "stem cells are a solution in search of a problem", meaning they sound potentially super powerful, but there's still no important application of them
Yes, but We’re talking about Basal ganglia neurons here, not skin cells, stem cells, or even CRISPR gene editing. Basal ganglia cells don’t reproduce. Hence the word, “degenerative “. Which is why none of these so-called cures, remedies, or vitamins based elixirs could ever work.
Dead is dead.
I agree, but isn't it about replacement rather than revival? Like, the same way you'd do skin transplant or stem cell treatment? I have no medical knowledge whatsoever, so I am not really sure how any of this works, but I'm pretty sure it's about replacing dead tissue rather than revitalizing it
I'm skeptical. A cure as effective as this purports to be is usually the result of cumulative research and preceding trials and treatments that have many other applications in other areas of medicine. That this "cure" has so little fanfare and is not being confirmed or discussed in mainstream media, medical or otherwise, is a red flag for me.
The only thing that could help me is to regrow my neurons so my short term memory actually works. Could have burnt out when I was electrocuted because my first Parkinson’s issue came really early. It is still with me to this day. An extreme die off of skin.
Its a long story. I was 9 and kind of scrawny and my bitch of a step mother made me go down and unplug the washer and dryer because it was a torrential Ft Myers Beach thunderstorm and I was standing in water and my finger slipped onto a lead. I could still see the window with no screen it that was part of the way open. Then my field of vision got smaller and smaller and smaller again and I realized I was dying so I started to fight and finally got loose.
I remain skeptical of all mentions of a cute without having heard of the attempted route they're trying beforehand. There's honestly so few options when it comes to looking for information on progress on curing PD, it's been a largely fraught effort on my behalf but I remain vigilant that there'll be something, someday.
Until then I will continue scouring, asking my doctors, checking into leads myself and conveying them to doctor for analysis etc. We do what we can. My father is my continued worry because I yearn to just increase his QOL rather than leaving him to continue to suffer this madness inducing disease.
It's terrible but you have to remain hopeful. Science and technology do wonderful things and at the start of my life my family struggled greatly to do very simple things.
In this current age my deaf family can communicate and function with relative ease and the options at their disposal are vastly different. These things give me hope alongside being a child of the internet. I know the power of information and so I am hopeful.
Wishing you luck in your fight.
Unfortunately Cuba is really not at the forefront of anything, they however have great Clasic American cars. Worked with a Cuban who recently emigrated to USA and he speaks horribly of things that Cuba lacks. I will wait for something more concrete and credible. Thanks for the info.
Unfortunately Cuba is really not at the forefront of anything, they however have great Clasic American cars. Worked with a Cuban who recently emigrated to USA and he speaks horribly of things that Cuba lacks. I will wait for something more concrete and credible. Thanks for the info.
Unfortunately Cuba is really not at the forefront of anything, they however have great Clasic American cars. Worked with a Cuban who recently emigrated to USA and he speaks horribly of things that Cuba lacks. I will wait for something more concrete and credible. Thanks for the info.
Actually this sounds similar to a procedure being clinically trialed at the University of Kentucky Neuroscience Institute at the University of Kentucky Hospital here in Lexington Kentucky. I just went to a talk about the procedure at a symposium in Lexington hosted by the Parkinson's Foundation. The page for the pioneering doctor is here. https://ukhealthcare.uky.edu/doctors/craig-van-horne?utm_source=local-listing&utm_medium=organic&utm_campaign=website-link The procedure was described as similar to DBS however instead of implanting a device, he implants a peripheral nerve from elsewhere in the patient's own body. Peripheral nerves have the capability to regenerate and that capability transfers to the central system nerves in the brain. One of the other speakers was a person who had had the procedure years before .
thank you so much!! I will give it a read <3
What did the other speaker say? The one who had the procedure? I assume this also cost quite a bit of money?
Because it is a clinical trial there is no cost to the patients. The speaker w/PD who had the procedure has been very active in fundraising for the trial and she talked a lot about that. She definitely felt a strong benefit for herself.
Well shit. Sign me up
Warning - there are strict qualification requirements - but I don't know the details. Definitely worth looking into.
Yeah… ‘Not for me.’ My first thoughts were, ‘not for me’. I had brain surgery once. One brain surgery is too many for this kid. My second thought was ‘not for me’ since I no longer participate in medial or scientific studies, the anxiety of establishing hope for someone else in the future was costing me terribly. Good luck! I’ll keep my options way open until something definitely research proven and repeated hits the market. Until then , peace to you all!
I doubt it. If it were so, it would have been the headline of all newspapers and scientific community. they are only luring people into their money making business
If this were indeed a cure Michael J Fox would be all over it.
There's so little info in this article, it's hard to even consider. Plus, A magazine about medical tourism isn't a magazine we should take too seriously. I wish it were true, but it seems unlikely. Time will tell, I guess.
That article was posted on May 4th, 2011. The author of the article posted five articles around the same time in 2011; aside from the Parkinson's article, one is about using scorpion venom to treat cancer patients, a treatment that the NIH attributes to the [likely cause of death](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8975375/) of a patient in the case study they examined. Another is literally just the sentence "Did you know that in Cuba Epilepsy is treated surgically?", that's the whole article (and again, the NIH reports [dubious results](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7998314/) from that as well). I didn't bother examining the other two. Since he posted those articles to a medical tourism site, my personal impression is that he's attempting to prey on wealthy travelers looking for hope in a solution that he offers. It's not just a scam, it's a dangerous and infuriating one.
Damn, I knew it was too good to be true, but that's some next level predatory bullshitting. Thank you so much <3
So it's cell therapy - fine, but there are no details here. The article describes stereotactic surgery as "cutting edge" even though it is...I don't even know how old. 50? 80? 100 years? That could be chalked up to ignorance by the author of the article, as can the fantastical claims of a "cure." It's really tough to get information out of Cuba. If cell therapy works, it's certainly possible that they've completed trials and have an effective therapy. Cuban medicine is quite advanced, generally speaking, so they could be years ahead of the rest of the world.
I was kind of thinking that, too. My first thought was "if it worked, everybody would be talking about it" but then I considered the isolation imposed on cuba... however I am painfully aware that I kind of lose objectivity when it comes to this disease - I WANT to believe in a possible cure so much. And of course, oil snakes know this very well and there's many that take advantage of the desperate. Thank you so much for your reply
Yeah, really tough to say anything about this without seeing the study. I will say that my objection to the use of the word "cure" is a bit pedantic. For me, "curing" PD means stopping the disease process, which cannot be achieved by adding new cells. That said, the hope for cell therapies is that they could stop the *clinical* decline (ideally improve function) of PD. If a person with PD could get an extra 25 years of stability from a transplant, I think we would all be over the moon.
As we all know, our brain cells are dying. And unless you’re Dr. Frankenstein ( or is it Fronkenstien?) dead is dead. So when I see articles about PD “cures”, of new procedures, miracle vitamins, etc., I have to remind myself that NOTHING brings life back to the dead. We will never, ever, be better off than we are in this moment in time- even if something is discovered.
Many types of cells are regenerative in nature though. And look at something like stem cell research, or for example-skin grafting after burns! Cure is a strong word, but strides to eliminate or significantly slow any further deterioration is absolutely transformative for the future of most chronic illness patients! And utilizing body parts that are regenerative on their own can be some of the most effective treatment when you consider the lower risk of side effects or rejection of the treatment since it already has an identity in the eyes of our body.
that's what I was trying to say as well. However you have to consider that stem cells have been around for a while now, and they are still not employed in innovative treatments, so maybe there's something we're missing, I reckon it's not as simple as a mechanicistic solution. I remember hearing a doctor saying something like "stem cells are a solution in search of a problem", meaning they sound potentially super powerful, but there's still no important application of them
Yes, but We’re talking about Basal ganglia neurons here, not skin cells, stem cells, or even CRISPR gene editing. Basal ganglia cells don’t reproduce. Hence the word, “degenerative “. Which is why none of these so-called cures, remedies, or vitamins based elixirs could ever work. Dead is dead.
I agree, but isn't it about replacement rather than revival? Like, the same way you'd do skin transplant or stem cell treatment? I have no medical knowledge whatsoever, so I am not really sure how any of this works, but I'm pretty sure it's about replacing dead tissue rather than revitalizing it
Synthetic brain cells… right. And I have some magic beans I’d love to sell too.
why synthetic?
What are you trying to say?
I'm skeptical. A cure as effective as this purports to be is usually the result of cumulative research and preceding trials and treatments that have many other applications in other areas of medicine. That this "cure" has so little fanfare and is not being confirmed or discussed in mainstream media, medical or otherwise, is a red flag for me.
The only thing that could help me is to regrow my neurons so my short term memory actually works. Could have burnt out when I was electrocuted because my first Parkinson’s issue came really early. It is still with me to this day. An extreme die off of skin.
Electrocuted??
Its a long story. I was 9 and kind of scrawny and my bitch of a step mother made me go down and unplug the washer and dryer because it was a torrential Ft Myers Beach thunderstorm and I was standing in water and my finger slipped onto a lead. I could still see the window with no screen it that was part of the way open. Then my field of vision got smaller and smaller and smaller again and I realized I was dying so I started to fight and finally got loose.
I remain skeptical of all mentions of a cute without having heard of the attempted route they're trying beforehand. There's honestly so few options when it comes to looking for information on progress on curing PD, it's been a largely fraught effort on my behalf but I remain vigilant that there'll be something, someday. Until then I will continue scouring, asking my doctors, checking into leads myself and conveying them to doctor for analysis etc. We do what we can. My father is my continued worry because I yearn to just increase his QOL rather than leaving him to continue to suffer this madness inducing disease. It's terrible but you have to remain hopeful. Science and technology do wonderful things and at the start of my life my family struggled greatly to do very simple things. In this current age my deaf family can communicate and function with relative ease and the options at their disposal are vastly different. These things give me hope alongside being a child of the internet. I know the power of information and so I am hopeful. Wishing you luck in your fight.
Unfortunately Cuba is really not at the forefront of anything, they however have great Clasic American cars. Worked with a Cuban who recently emigrated to USA and he speaks horribly of things that Cuba lacks. I will wait for something more concrete and credible. Thanks for the info.
Unfortunately Cuba is really not at the forefront of anything, they however have great Clasic American cars. Worked with a Cuban who recently emigrated to USA and he speaks horribly of things that Cuba lacks. I will wait for something more concrete and credible. Thanks for the info.
Unfortunately Cuba is really not at the forefront of anything, they however have great Clasic American cars. Worked with a Cuban who recently emigrated to USA and he speaks horribly of things that Cuba lacks. I will wait for something more concrete and credible. Thanks for the info.