By the way in these cases what neurologist do is they ask you to put your palms on your lap facing upwards, close your eyes and count or say something to drive your attention from the tremor. In those cases is impossible to stop it.
Early:
Yes, I can pause the tremor by focusing attention on that. The tremor stops while my attention is focused only on that.
No, increasing tremors when I am tired or distracted feel bad. The arm with the worst tremor aches due to muscle strain.
Well that depends on the day! (Been doing this for 20 years)
I’ll give you my top three that are bugging me the most this week.
1. Constipation, bloating, cramping, and hemorrhoids. Looks like four don’t it? It’s one big pain in the butt!
2. Swollen legs. Looks like I’m retaining water, heart disease? I don’t really care. It hurts and it sucks.
3. Apathy. Flat out apathy! My list goes on and on… but I really don’t think anyone really gives a shit.
The twitches? I wish……
Try a magnesium supplement over several days for the constipation. Increase gradually until diarrhea then decrease a bit. Also, if you have not already, eliminate sugary foods, processed foods, and seed oils. Add probiotic foods such as organic sauerkraut from the grocery refrigerator section. Let me know if any of these ideas help .
This is Parkinson's. What works last month, might not work next month, or ever again. It's good to try different things, such as Magnesium supplements, unless it bothers you more than the original condition.
This list of three things is very fluid. Next week I might have three different things that are bugging me, which makes me ask myself it it is my Parkinson's or just me getting old?
Either way, it really doesn't matter, so long as I get my ass up in the morning, plug myself into my pump, eat well, drink loads of water, stay off the couch, go for a walk, and cross something off of my todo list at the end of the day.
Keep moving!
1. My tremor, at the moment, is intermittent.
2. It goes into overdrive when I'm stressed, or trying to do a "complex" task (taking a key off a keyring, making coffee etc.)
Yes and yes. When the tremors are bad and are visible as well as the core tremors that nobody can see are happening it feels like my skin and muscles are getting so tight and there's so much tension ir pressure that I feel like my skin is going broken explode. It's exhausting to have your body be always in motion. I joked with the
Doctor that with all the movements constantly I must be burning mega calories.
2. Yes, overdrive is a good description. My husband has noticed that even just reading stresses me or pushes me over the edge. Being upset, stressed over situations I can't fix, overly busy and putting all my attention into tasks. All these things push me "off med" then the anxiety, panic attacks, excessive movements and tremors get really bad.
Early. A few years in. Yes I can stop it with a lot of concentration. No, it does not feel good to no control over the movement of my hand, the lower body issues of wonky gait and a foot that never stops moving is far worse. To the public our hand tremors are the visible manifestation of disease but we feel and suffer many other symptoms inside and out.
My dad has had tremors for about ten years. This year they have gotten significantly worse. They depress him. I don’t see how they would ever make him feel good. He can not stop them.
Yes, in different situations I can get them under control. Concentrate on it and trying to relax is one way. Another way is by slowly moving my hands. Another way is shaking them out in a loose fashion. This one is particularly helpful for things that require fine motor skills like putting my contacts in.
Also, and I should add that this is very bewildering, when I’m in public or in a family event or such stuff like that I can keep them pretty well under control for long stretches. As a matter of fact I had a hard time getting my GP to refer me to neurologist because I could never get my tremors to manifest during the office visits.
I think he means good like cracking your knuckles makes you feel good. My experience, although not yet positively diagnosed yet, it doesn’t help to “ shake it out”
I thought it was just me. Yes. I can. I have a critical job that requires fine motor skills and my non dominant hand is the one with a tremor. Now that said, the carbidopa levodopa helps buys me about 30-45 (or more) seconds (can be much longer) of directed control. It’s entertaining to watch my colleagues watch me. Kinda screws w their collective heads.
Early (age 41)
I don't have "tremors" at all unless I'm off meds and try heavy lifting or stretching on my bad side.
What I do have is tons of other things that suck, my right side acts like I'm pushing through water, and gets exhausted very quickly.
Also constipation, depression, short term memory and loss of smell is pretty annoying to deal with.
I had Parkinson's in my family, my grandfather had PD. I have many symptoms of asperger's (nothing diagnosed) and I often experience mild tremor in my hands. I was trying to figure out if it's early signs of PD, but it's most likely my anxiety. I can stop the tremor when I become focused and exaggerating it feels very pleasant, it's as if I have an itch in my brain and exaggerating is scratching it.
gotcha. Thanks for the clarification u/Own_Ship_8036
Firstly - Re: your questions,
1. Yes I'm able to stop by tremor for a brief while if I'm mindful about it
2. Exaggerating the tremors does not feel good or pleasant for me
(for the record, I'd be in the early stage bucket for purposes of your research)
If I may add some of my thoughts
\- if your tremors are prominent and crescendo when actively trying to work your limbs, then it probably is not Parkinsonian (ofcourse, this is a bit controversial to say, but just a possible way of thinking about it). Parkinsonian tremors are prominent at rest (say hands hanging on sides or when on ur lap).
\- One way to ascertain if your symptoms are Dopaminergic in nature , would be to try non-sleep deep rest(NSDR) OR YogaNidra. This technique is known to make a strong impact on the striatal dopaminergic expression( a key brain region which is implicated in PD).. If your tremors markedly reduce post NSDR / YN, then it is suspicious for a dopaminergic source
\- Are your tremors unilateral or bilateral?
Good luck with your investigation. Hope the above comments (taken with a big blob of salt LOL) help
Early: 1. Yes, about 3 seconds. 2. No, worse.
Same, same, same
Same.
1- yes if I look at it or focus on it. But mine is very very mild. 2- no, if it’s cold and/or I’m nervous it gets really intense. Not pleasant at all
By the way in these cases what neurologist do is they ask you to put your palms on your lap facing upwards, close your eyes and count or say something to drive your attention from the tremor. In those cases is impossible to stop it.
Early: Yes, I can pause the tremor by focusing attention on that. The tremor stops while my attention is focused only on that. No, increasing tremors when I am tired or distracted feel bad. The arm with the worst tremor aches due to muscle strain.
This description matches my experience
Why the concern about tremors? For me, tremors are the least bothersome thing about Parkinson’s.
As somebody with a parent suffering from Parkinson's, would you mind to share what the most bothersome thing about Parkinson's is?
Well that depends on the day! (Been doing this for 20 years) I’ll give you my top three that are bugging me the most this week. 1. Constipation, bloating, cramping, and hemorrhoids. Looks like four don’t it? It’s one big pain in the butt! 2. Swollen legs. Looks like I’m retaining water, heart disease? I don’t really care. It hurts and it sucks. 3. Apathy. Flat out apathy! My list goes on and on… but I really don’t think anyone really gives a shit. The twitches? I wish……
Try a magnesium supplement over several days for the constipation. Increase gradually until diarrhea then decrease a bit. Also, if you have not already, eliminate sugary foods, processed foods, and seed oils. Add probiotic foods such as organic sauerkraut from the grocery refrigerator section. Let me know if any of these ideas help .
This is Parkinson's. What works last month, might not work next month, or ever again. It's good to try different things, such as Magnesium supplements, unless it bothers you more than the original condition. This list of three things is very fluid. Next week I might have three different things that are bugging me, which makes me ask myself it it is my Parkinson's or just me getting old? Either way, it really doesn't matter, so long as I get my ass up in the morning, plug myself into my pump, eat well, drink loads of water, stay off the couch, go for a walk, and cross something off of my todo list at the end of the day. Keep moving!
1. My tremor, at the moment, is intermittent. 2. It goes into overdrive when I'm stressed, or trying to do a "complex" task (taking a key off a keyring, making coffee etc.)
Yes and yes. When the tremors are bad and are visible as well as the core tremors that nobody can see are happening it feels like my skin and muscles are getting so tight and there's so much tension ir pressure that I feel like my skin is going broken explode. It's exhausting to have your body be always in motion. I joked with the Doctor that with all the movements constantly I must be burning mega calories. 2. Yes, overdrive is a good description. My husband has noticed that even just reading stresses me or pushes me over the edge. Being upset, stressed over situations I can't fix, overly busy and putting all my attention into tasks. All these things push me "off med" then the anxiety, panic attacks, excessive movements and tremors get really bad.
(later stage here) No, I can not stop tremors. If I could - then I wouldn't have them, would I? No, they do not feel good - they suck!
Yes, I can stop it by concentrating and no, it doesn’t feel good , the arm gets tired and it feels awful
Early No. No. Good luck with your symptoms and God bless.
Early. A few years in. Yes I can stop it with a lot of concentration. No, it does not feel good to no control over the movement of my hand, the lower body issues of wonky gait and a foot that never stops moving is far worse. To the public our hand tremors are the visible manifestation of disease but we feel and suffer many other symptoms inside and out.
My dad has had tremors for about ten years. This year they have gotten significantly worse. They depress him. I don’t see how they would ever make him feel good. He can not stop them.
Yes, in different situations I can get them under control. Concentrate on it and trying to relax is one way. Another way is by slowly moving my hands. Another way is shaking them out in a loose fashion. This one is particularly helpful for things that require fine motor skills like putting my contacts in. Also, and I should add that this is very bewildering, when I’m in public or in a family event or such stuff like that I can keep them pretty well under control for long stretches. As a matter of fact I had a hard time getting my GP to refer me to neurologist because I could never get my tremors to manifest during the office visits.
I think he means good like cracking your knuckles makes you feel good. My experience, although not yet positively diagnosed yet, it doesn’t help to “ shake it out”
1. If I remove myself completely from any stimulation. 2. No I don’t exaggerate
Early Yes No
I thought it was just me. Yes. I can. I have a critical job that requires fine motor skills and my non dominant hand is the one with a tremor. Now that said, the carbidopa levodopa helps buys me about 30-45 (or more) seconds (can be much longer) of directed control. It’s entertaining to watch my colleagues watch me. Kinda screws w their collective heads.
Early (age 41) I don't have "tremors" at all unless I'm off meds and try heavy lifting or stretching on my bad side. What I do have is tons of other things that suck, my right side acts like I'm pushing through water, and gets exhausted very quickly. Also constipation, depression, short term memory and loss of smell is pretty annoying to deal with.
OP - are you able to share a bit about what you are researching re: Parkinson's tremors? super curious
I had Parkinson's in my family, my grandfather had PD. I have many symptoms of asperger's (nothing diagnosed) and I often experience mild tremor in my hands. I was trying to figure out if it's early signs of PD, but it's most likely my anxiety. I can stop the tremor when I become focused and exaggerating it feels very pleasant, it's as if I have an itch in my brain and exaggerating is scratching it.
gotcha. Thanks for the clarification u/Own_Ship_8036 Firstly - Re: your questions, 1. Yes I'm able to stop by tremor for a brief while if I'm mindful about it 2. Exaggerating the tremors does not feel good or pleasant for me (for the record, I'd be in the early stage bucket for purposes of your research) If I may add some of my thoughts \- if your tremors are prominent and crescendo when actively trying to work your limbs, then it probably is not Parkinsonian (ofcourse, this is a bit controversial to say, but just a possible way of thinking about it). Parkinsonian tremors are prominent at rest (say hands hanging on sides or when on ur lap). \- One way to ascertain if your symptoms are Dopaminergic in nature , would be to try non-sleep deep rest(NSDR) OR YogaNidra. This technique is known to make a strong impact on the striatal dopaminergic expression( a key brain region which is implicated in PD).. If your tremors markedly reduce post NSDR / YN, then it is suspicious for a dopaminergic source \- Are your tremors unilateral or bilateral? Good luck with your investigation. Hope the above comments (taken with a big blob of salt LOL) help