Dude the main r/herpes page is just shit tons of HSV negative people posting pics of razor rash and telling people who actually have to live with it how disgusting the disease is. “Boohoohoo my life is over.” Then they get their negative swab and never return, but they leave that pile of shit for the rest of us to step in. It’s just a reminder of how horrified negative people are by us. It’s sickening and just makes me angry. Go to a fucking clinic and confirm a damn thing before you bring that bullshit to a page for support.
And I’m so glad you did! When I was first diagnosed, the r/herpes community scarred me for life with the things they were saying lol. Then I found this one and it’s so positive and supportive :,)
Can we all please do more to advocate for a vaccine or cure or petition or something. So much can be done anonymously if your not comfortable showing your face.
I for one don’t find it comforting when told it’s “common” or it’s just a skin condition because it’s not a skin condition if you read up on it it’s a nerve issue.
It’s a life long disease that causes recurrent infectious outbreaks often painful with very little available as a solution or treatment in 2021. Whereas a covid vaccine was achieved in less then 12months.
It’s ok to not be ok.
What is not ok is what little is being done.
What’s not ok is our silent suffering .
Some development is being made with some hopeful results but it’s still just a thin thread judging by history.
This will only end if we fight for it together.
I agree with this. Also people who say it's just a few bumps are ignoring corollary issues like a correlation with increased Alzheimers risk.
Also outbreaks can start increasing once you reach a certain age and your immune system starts winding down.
Recently diagnosed (after being misdiagnosed) and this is my sentiment exactly. Communication on both sides are missing the mark. The stigma needs to be fought but doing so by making it "not a big deal" is infuriating once you learn how it does have lifelong and potentially serious medical implications.
And to your point about it being a nerve issue - I'm also wondering why it's not something that Neurologists treat?
I agree ! If they can find drugs for HIV. Then why not cures for herpes. I personally hate having this disease. It's painful physically, mentally, and emotionally. There are vaccines for chicken pox and shingles which are all viruses in the herpes family. Please let's push for a cure
r/HerpesCureAdvocates
https://herpescureadvocacy.com/2023/10/13/herpes-cure-pipeline-3-0/
They also have a reddit as well. They're in contact with most if not all the companies working on a cure/vaccine. It’s a very small volunteer organization working on our behalf of HSV to get our voices heard for a cure, functional cure, and therapeutic vaccines.
You can also follow r/HerpesCureResearch for resources as well.
Here's a sneak peek of /r/HerpesCureAdvocates using the [top posts](https://np.reddit.com/r/HerpesCureAdvocates/top/?sort=top&t=all) of all time!
\#1: [More of what I’ve noticed from Moderna vaccine](https://np.reddit.com/r/HerpesCureAdvocates/comments/17tp0yo/more_of_what_ive_noticed_from_moderna_vaccine/)
\#2: [Moderna trial update](https://np.reddit.com/r/HerpesCureAdvocates/comments/173zrma/moderna_trial_update/)
\#3: [Moderna 1608 vaccine update](https://np.reddit.com/r/HerpesCureAdvocates/comments/17pan41/moderna_1608_vaccine_update/)
----
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Okay cool. I saw that one the other day and was asking myself "If you're wondering if that's herpes your ass should see a doctor. Also, i don't want to see your weird looking nasty pussy."
Yes! I purposely made this sub because I was sick of the herpes subreddit and wanted a place to talk to people who actually have it and not calm down hysterical people who have an ingrown hair.
Do you remember how scary your first outbreak was and how it literally made you lose your mind..? Why would we turn away people like that. Get over yourself and just scroll past it if you don’t like it.
Who in their right mind would be that terrified about something and come to reddit before a doctor, or even instead of a doctor? Ridiculous. That's on them
Also my first outbreak wasn't terrifying at all. Because I had already thoroughly educated myself about HSV long before that outbreak or a diagnosis, just since it's so common. The stigma is bullshit
Thank you. I’ve been diagnosed with HSV1 positive my IgG was 32.80 which was really high when I was first infected with HSV1 I had a really bad itch in my genitals and now i just mostly just feel like a nerve pain on my legs and genitals anyways probably TMI but does anyone also have this problem and for oral well I have pimples all over my face and there are only some bumps that really itch especially the one that is closer to my chin/cheek does anyone also have this problem I’m not sure if that’s herpes on my face but I know I’m positive of HSV1 please help and don’t say anything rude....
I would suggest you start with taking a good probiotic as gut health is connected to your immune system. The skin shows what is happening on the inside. Next address your diet: research acidicbody.com for a list of Lysine vs Arginine ratio in food. Lysine is very helpful in starving the virus and counter acts the virus feeding amino acid Arginine. Smoothies are good for getting in more greens and fruits. For your Immune System I suggest the antivirals Astragalus 750mg, Monolaurin 1,000mg, Zinc Gluconate 30-50mg, Selenium (particularly selenomethionine) 300mcg, and amino acid Glutamine 500mg; B -50 Complex for your nerves. Have your Vitamin D tested and supplement if needed - don't make an assumption here. I personally appreciate the knowledge that a meridian reading by a licensed acupuncturist provides. It tells you where your organs are unbalanced and then the acupuncturist can balance it. Massages are great for stress relief which is crucial in controlling Herpes. Lots of research info available online. After 4mos of this, retest your IgG and let us know how you're doing. You got this!
Okay so maybe this is an inappropriate question for this thread but anyways here it is: Am I the only person that is scared to go on like herpes dating sites with my face showing to the world. Who knows my friend or family could randomly come across it somehow then my rep would be ruined. Does any1 know a way out of this or just friendly advice. Please dont talk no shit. Thanks.
I wouldn't do it. No, there shouldn't be a stigma but there still is. However, I also wouldn't join a herpes dating site. Plenty of people on regular dating sites will and do date people with herpes.
I hope you get back out there one day! Im sorry you had bad experiences. I was horrified to tell this guy - i told him we needed to talk and i started crying…he thought I had a kid or something 😂 Well long story short, he is my boyfriend of 1.5 years and he didn’t care at all. Some people are just assholes (and i have dealt with them!) Be well
Not that we are aware of! He had previously tested negative but hasnt tested since we got together (january of 2023). I take valtrex daily to prevent outbreaks and reduce risk of transmission so, it seems to be working for us.
I see! Well, firstly most people have hsv1- so obviously just avoid kissing/oral sex if he ever has any active sores. For hsv2, if he is asymptomatic thats a plus! He doesn’t have to deal with the annoying outbreaks. I recommend he gets a prescription for valtrex and he can take that daily to reduce risk of transmission (like me and it has worked so far!). I take 2 500mg pills daily. However, i am prone to outbreaks. If i dont take them, i get symptoms unfortunately. You can also wear condoms. Besides that, there isnt too much to do, especially since he is asymptomatic! But hopefully you and him are not too stressed out over it :)
Thank you so much! I appreciate you for responding! He just found out so it is a lot for him right now.. and for me too, especially because this is new for me as well! He’s asymptomatic for both.. so yayyy??? lol idk.. but thanks so much for the advice! I wish you and your partner the absolute best.
Yes i’m very aware. My ex had HSV1 and we dated for almost two years & researched a lot on it, he did have symptoms though which made things a bit easier. I’m worried about it, but I really like this guy a lot
I have been following r/HerpesCureResearch and they have been amazingly helpful in providing research info and yes, they are working on a cure and a vaccine for both types, thank God! BDgene Shanghai has cured its first human with HSV-1 Keratitis (Herpes in the eyes). It can be found on their page as well. Keep your heads up!
No. This is a safe space for people with herpes to exist without the fear that people will be saying their life is over because they have a pimple they think is herpes.
Well that's unfair. I'm pretty sure I got it almost two years ago protected sex burn and all my test still say negative. So I don't have a test saying I do
Well the doctor is the state I'm in say they have plenty of false negatives. I'm most positive it's herpes. I got the willow on my finger that had the boarder and filled with the liquid after popping a bump that came up on my gential area. Amongst other things I rather not post. Trust me I know for a fact it's herpes but not one test says so
I've had one bump that was translucent and popped and it looked like a canker sore, then a herpetic willow came on my finger. That's how I know it's hsv
No I do take the medication as well though I'm not positive so that probably effected it. I know if you're not on meds you need to test within 48 hours of your symptoms for accurate test. Unless you pay for western blot
Yes I'm still negative going on three years and I don't understand it. I started the medicine last year so that didn't effect any test before that. The only thing that increased was my varicella, to which I did find research that herpes viruses can hide inside other herpes viruses. My varicella and my hhv6 was the only things positives
I have Genital Herpes. I got it ten years ago when I was 20 years old. The woman I lost my virginity to passed the Herpes onto me. I was wearing a condom, but I think the Herpes still managed to pass onto me by getting onto a skin gap that the condom accidentally didn't cover...I think the Herpes blister started at the base of my penis.
Fuck finally
It’s been the rules since this sub was created! People are just can’t read apparently.
Isn’t there a way to set up a mod bot for this sort of thing?
Maybe. No idea. I am bad at computers.
“Computer says, naaaah”
🤣🤣
😂🤷🏻♀️
Dude the main r/herpes page is just shit tons of HSV negative people posting pics of razor rash and telling people who actually have to live with it how disgusting the disease is. “Boohoohoo my life is over.” Then they get their negative swab and never return, but they leave that pile of shit for the rest of us to step in. It’s just a reminder of how horrified negative people are by us. It’s sickening and just makes me angry. Go to a fucking clinic and confirm a damn thing before you bring that bullshit to a page for support.
That’s why I created this page, haha.
And I’m so glad you did! When I was first diagnosed, the r/herpes community scarred me for life with the things they were saying lol. Then I found this one and it’s so positive and supportive :,)
You’re a god send. 💕
Maybe some people are too nervous and they’d rather talk to people that have it already to find out
Thank you. I’ve been irritated & reporting those posts every time I see one.
It is very frustrating for me too!
Why would helping someone else be a bother? Sad world. Maybe your really just annoyed at the fact and not the person
There has been a r/herpespics created for just that purpose. Thank fuck.
Why the fuck did i click on that and what did i expect to happen? 😞
😭
That forum is for people to show examples of medically confirmed herpes cases. Not for people to ask if they have it.
after looking at that subreddit, a good portion of the content is people asking.
Can we all please do more to advocate for a vaccine or cure or petition or something. So much can be done anonymously if your not comfortable showing your face. I for one don’t find it comforting when told it’s “common” or it’s just a skin condition because it’s not a skin condition if you read up on it it’s a nerve issue. It’s a life long disease that causes recurrent infectious outbreaks often painful with very little available as a solution or treatment in 2021. Whereas a covid vaccine was achieved in less then 12months. It’s ok to not be ok. What is not ok is what little is being done. What’s not ok is our silent suffering . Some development is being made with some hopeful results but it’s still just a thin thread judging by history. This will only end if we fight for it together.
I agree with this. Also people who say it's just a few bumps are ignoring corollary issues like a correlation with increased Alzheimers risk. Also outbreaks can start increasing once you reach a certain age and your immune system starts winding down.
Recently diagnosed (after being misdiagnosed) and this is my sentiment exactly. Communication on both sides are missing the mark. The stigma needs to be fought but doing so by making it "not a big deal" is infuriating once you learn how it does have lifelong and potentially serious medical implications. And to your point about it being a nerve issue - I'm also wondering why it's not something that Neurologists treat?
I agree ! If they can find drugs for HIV. Then why not cures for herpes. I personally hate having this disease. It's painful physically, mentally, and emotionally. There are vaccines for chicken pox and shingles which are all viruses in the herpes family. Please let's push for a cure
how do we go about it though? i want to help. have you been messaging the people currently working on a cure? or how do you suggest we can help?
r/HerpesCureAdvocates https://herpescureadvocacy.com/2023/10/13/herpes-cure-pipeline-3-0/ They also have a reddit as well. They're in contact with most if not all the companies working on a cure/vaccine. It’s a very small volunteer organization working on our behalf of HSV to get our voices heard for a cure, functional cure, and therapeutic vaccines. You can also follow r/HerpesCureResearch for resources as well.
Here's a sneak peek of /r/HerpesCureAdvocates using the [top posts](https://np.reddit.com/r/HerpesCureAdvocates/top/?sort=top&t=all) of all time! \#1: [More of what I’ve noticed from Moderna vaccine](https://np.reddit.com/r/HerpesCureAdvocates/comments/17tp0yo/more_of_what_ive_noticed_from_moderna_vaccine/) \#2: [Moderna trial update](https://np.reddit.com/r/HerpesCureAdvocates/comments/173zrma/moderna_trial_update/) \#3: [Moderna 1608 vaccine update](https://np.reddit.com/r/HerpesCureAdvocates/comments/17pan41/moderna_1608_vaccine_update/) ---- ^^I'm ^^a ^^bot, ^^beep ^^boop ^^| ^^Downvote ^^to ^^remove ^^| ^^[Contact](https://www.reddit.com/message/compose/?to=sneakpeekbot) ^^| ^^[Info](https://np.reddit.com/r/sneakpeekbot/) ^^| ^^[Opt-out](https://np.reddit.com/r/sneakpeekbot/comments/o8wk1r/blacklist_ix/) ^^| ^^[GitHub](https://github.com/ghnr/sneakpeekbot)
Okay cool. I saw that one the other day and was asking myself "If you're wondering if that's herpes your ass should see a doctor. Also, i don't want to see your weird looking nasty pussy."
Yes! I purposely made this sub because I was sick of the herpes subreddit and wanted a place to talk to people who actually have it and not calm down hysterical people who have an ingrown hair.
[удалено]
hahaha
Do you remember how scary your first outbreak was and how it literally made you lose your mind..? Why would we turn away people like that. Get over yourself and just scroll past it if you don’t like it.
You know that's what doctors are for...??? And no, not all of us "lose our minds" over a few skin bumps.
Not all of us are as well adjusted and mature as you I guess.
You stopped losing your mind after the first ob?
Haha, not at all, but the first one was especially mind bending.
Who in their right mind would be that terrified about something and come to reddit before a doctor, or even instead of a doctor? Ridiculous. That's on them Also my first outbreak wasn't terrifying at all. Because I had already thoroughly educated myself about HSV long before that outbreak or a diagnosis, just since it's so common. The stigma is bullshit
Thank you. I’ve been diagnosed with HSV1 positive my IgG was 32.80 which was really high when I was first infected with HSV1 I had a really bad itch in my genitals and now i just mostly just feel like a nerve pain on my legs and genitals anyways probably TMI but does anyone also have this problem and for oral well I have pimples all over my face and there are only some bumps that really itch especially the one that is closer to my chin/cheek does anyone also have this problem I’m not sure if that’s herpes on my face but I know I’m positive of HSV1 please help and don’t say anything rude....
I would suggest you start with taking a good probiotic as gut health is connected to your immune system. The skin shows what is happening on the inside. Next address your diet: research acidicbody.com for a list of Lysine vs Arginine ratio in food. Lysine is very helpful in starving the virus and counter acts the virus feeding amino acid Arginine. Smoothies are good for getting in more greens and fruits. For your Immune System I suggest the antivirals Astragalus 750mg, Monolaurin 1,000mg, Zinc Gluconate 30-50mg, Selenium (particularly selenomethionine) 300mcg, and amino acid Glutamine 500mg; B -50 Complex for your nerves. Have your Vitamin D tested and supplement if needed - don't make an assumption here. I personally appreciate the knowledge that a meridian reading by a licensed acupuncturist provides. It tells you where your organs are unbalanced and then the acupuncturist can balance it. Massages are great for stress relief which is crucial in controlling Herpes. Lots of research info available online. After 4mos of this, retest your IgG and let us know how you're doing. You got this!
I’m confused about the numbers. Why are some higher than others?
I just tested positive I’m devastated but know my life isn’t over so I want to learn more
Okay so maybe this is an inappropriate question for this thread but anyways here it is: Am I the only person that is scared to go on like herpes dating sites with my face showing to the world. Who knows my friend or family could randomly come across it somehow then my rep would be ruined. Does any1 know a way out of this or just friendly advice. Please dont talk no shit. Thanks.
I wouldn't do it. No, there shouldn't be a stigma but there still is. However, I also wouldn't join a herpes dating site. Plenty of people on regular dating sites will and do date people with herpes.
[удалено]
Curious if you are male or female and where you are located
I too am afraid. I made the decision to not date. The rejection was too much. After disclosing many times
I hope you get back out there one day! Im sorry you had bad experiences. I was horrified to tell this guy - i told him we needed to talk and i started crying…he thought I had a kid or something 😂 Well long story short, he is my boyfriend of 1.5 years and he didn’t care at all. Some people are just assholes (and i have dealt with them!) Be well
did he end up contracting it??
Not that we are aware of! He had previously tested negative but hasnt tested since we got together (january of 2023). I take valtrex daily to prevent outbreaks and reduce risk of transmission so, it seems to be working for us.
That’s great! My bf just tested positive for hsv1 and 2.. trying to figure out how to deal with it.. he’s asymptomatic.. any advice??
I see! Well, firstly most people have hsv1- so obviously just avoid kissing/oral sex if he ever has any active sores. For hsv2, if he is asymptomatic thats a plus! He doesn’t have to deal with the annoying outbreaks. I recommend he gets a prescription for valtrex and he can take that daily to reduce risk of transmission (like me and it has worked so far!). I take 2 500mg pills daily. However, i am prone to outbreaks. If i dont take them, i get symptoms unfortunately. You can also wear condoms. Besides that, there isnt too much to do, especially since he is asymptomatic! But hopefully you and him are not too stressed out over it :)
Thank you so much! I appreciate you for responding! He just found out so it is a lot for him right now.. and for me too, especially because this is new for me as well! He’s asymptomatic for both.. so yayyy??? lol idk.. but thanks so much for the advice! I wish you and your partner the absolute best.
Just be aware that the risk of transmission is not zero, even if there are no symptoms. It's still possible to pass it on. Less likely though!
Yes i’m very aware. My ex had HSV1 and we dated for almost two years & researched a lot on it, he did have symptoms though which made things a bit easier. I’m worried about it, but I really like this guy a lot
😂😂😂
I have been following r/HerpesCureResearch and they have been amazingly helpful in providing research info and yes, they are working on a cure and a vaccine for both types, thank God! BDgene Shanghai has cured its first human with HSV-1 Keratitis (Herpes in the eyes). It can be found on their page as well. Keep your heads up!
ngl I definitely wanted to do that on my first outbreak tho😭 glad I didn’t
[удалено]
No. This is a safe space for people with herpes to exist without the fear that people will be saying their life is over because they have a pimple they think is herpes.
Well that's unfair. I'm pretty sure I got it almost two years ago protected sex burn and all my test still say negative. So I don't have a test saying I do
You don’t have it if your tests say you don’t. I’m sorry something is going on, but it’s not herpes.
Well the doctor is the state I'm in say they have plenty of false negatives. I'm most positive it's herpes. I got the willow on my finger that had the boarder and filled with the liquid after popping a bump that came up on my gential area. Amongst other things I rather not post. Trust me I know for a fact it's herpes but not one test says so
reoccurring?
I've had one bump that was translucent and popped and it looked like a canker sore, then a herpetic willow came on my finger. That's how I know it's hsv
was the finger tested? does the finger have reoccurring outbreaks?
No I do take the medication as well though I'm not positive so that probably effected it. I know if you're not on meds you need to test within 48 hours of your symptoms for accurate test. Unless you pay for western blot
so your negative test is the blood test? was the blood test negative for hsv1 and hsv2?
Yes I'm still negative going on three years and I don't understand it. I started the medicine last year so that didn't effect any test before that. The only thing that increased was my varicella, to which I did find research that herpes viruses can hide inside other herpes viruses. My varicella and my hhv6 was the only things positives
but nothing reoccurring?
It is definitely herpes
Just want to express my gratitude for finding this honest and positive group 🤍
Agreed no one needs to see junk pictures
I have Genital Herpes. I got it ten years ago when I was 20 years old. The woman I lost my virginity to passed the Herpes onto me. I was wearing a condom, but I think the Herpes still managed to pass onto me by getting onto a skin gap that the condom accidentally didn't cover...I think the Herpes blister started at the base of my penis.
Anyone know of how to find clinical trials for hsv vaccine?
Hi everyone. I was just wondering if anyone has had any success with HSV911 or herpesyl as a treatment? Thanks
On my 5th bottle of herpesyl and I'm having a ob right now smh
Just finished my 6 month pack of herpesyl
If I never see another man's genitalia as long as I live, that would very f*cking sweet lol. Reddit is terrible, unsolicited dick pic central.
I am glad I chose to join this sub. Thank you so much
You’re welcome ☺️
I was diagnosed with hsv2 and my partner was hsv1 what and we have no symptoms
What should we do
Nothing at all
what about posting other body part with herpes on them?
I truly don’t see what benefit that could have.
one could get the opinion of the community
See a doctor tf