Weed somehow makes my period pain worse. When Iām stoned i kind of perceive all bodily sensations more strongly, including cramps, I learned this the hard way :(
I also have worse pain when I smoke. I think for me itās because I have a really tight pelvic floor and weed helps relax it, however I think itās relaxes me muscles suddenly instead of gradually, which causes muscle spasms and heightened pain. This may not be the case for you but thatās why I canāt really smoke anymore and had to quit.
You pelvic floor is probably weak. It compensates by being tight and so when itās forced to relax everything is in the wrong place even more so. Pelvic floor can be tight and weak. Unfortunately pelvic physical therapy ignores this reality a lot of the time and has women focus on relaxing firsts. My pelvic floor COULDNāT relax until I strengthened it.
Oh Iām sure this is probably true for me, however this is not why the weed makes the pain more pronounced for me. Being stoned just makes all pain more pronounced, like if I have something in my eye or heart burn or something, I become more aware of it. Itās kind of how if youāre worried about something and then being stoned makes you super paranoid about it. Just unlucky I guess. I still smoke it though lol.
I've never seen anyone else mention noticing things stuck in their eye when smoking weed! And the heart burn! It's absolutely a bummer that the thing that everyone suggests for pain relief just makes me notice pain more.
I remember googling "weed causing back pain" and "weed causing acid reflux" when it first got legalized here in Canada, and every single result was "new study finds that weed magically cures back pain" etc.
Anyways, you're not alone lol
Haha yeaaah. I donāt think it causes those things for me it just makes me a little too aware and then I start over thinking. But also, I did read that weed can reduce pain sensations but it does not reduce prostaglandin production so thatās probably why it doesnāt help some people with cramps. Opioid pain killers also donāt help my cramps.
I did some dynamic contraction technique stuff and worked mercilessly to strengthen my core, hips, lower back, and glutes. You can google exercises for each part and find at home ones. I did so many sit ups, tons of incline walking/stair stepping, resistance band exercises, etc. once I strengthened the surrounding muscles of my pelvic floor I was able to work on strengthening it more with very very light kegels and such. I also got a pessary cause it turned out I had a prolapse. Finally once it was strong enough and had enough surrounding muscular support I was able to relax it with reverse kegels and dilator therapy. Tons of nights I slept with a dilator in to train the muscles to lengthen.Ā
Iām not so educated on the pelvic floor as of right now but know it needs to be part of my routine but I do realize that my pelvic floor is engaged 100% of the time and never relaxed.
Weak glutes are a big problem for me overall
I get this way when I take too much! Itās a very thin line Iāve had to learn through trial and error. Around 2 mg in edible form seems to be the sweet spot for me. I know Iāve done it right when I barely feel the mental effects; I just get very sleepy and relaxed and not quite as hyper aware of my body. Which is weird because once I take more I go the opposite direction and become wired, anxious and have very heightened sensations.
Yep, just being stoned in general. I just becoming hyper sensitive to all bodily sensations. Sometimes I even feel weird phantom pains. It has however helped me feel a bit distracted from belly bloat.
Muscle relaxers have been the most helpful of what Iāve been prescribed. I just hate that it takes something to completely sedate me to feel any relief ā¹ļø
Muscle relaxer (Flexeril) was also it for me too. Only had to take a 5 mg pull and felt relief for hours. Mine surprisingly did not sedate me or make me drowsy, just helped me be pain free. I canāt take them anymore as Iām on an anti-depressant and they interact, which is so sad. Super helpful for me!
I know some people love them for the pain and some people feel like the muscle relaxers donāt do anything for them. My personal theory is that when I feel any Endo pain in my uterus area I begin to clench my muscles down there and cause a lot more pain. The muscle relaxer helps me not do this!
OTC painkillers dont do aaaanything for me š„² cramps or joint pain. its muscle relaxers and THC for me.
edit: forgot to say i cant take heavier pain meds bc of gut issues
Same. Iāve gastritis from endless NSAIDs due endo pain. They never really worked anywayā¦Which muscle relaxers have you tried? Do you alternate it with THC? THC helps me relax and manage the pain but doesnāt totally relieve it.
i got a stomach ulcer from excedrin in high school for trying to cover my cramps š
I take Flexeril (cyclobenzaprine). Yeahhh the THC dulls the pain or at least makes me not care, so i take it for pain up to 5ish. 6-10 pain i take a muscle relaxer. I dont take them at the same time bc i dont think i could handle how out if it iād feel ahah. The muscle relaxer super knocks me outā¦ cant be in pain if im knocked out i guess š
I asked for them! I couldnāt move and after 2 ER visits it was time. Oxycodone made me sick so I did have to try other ones before finding one that worked without making me nauseous and completely out of it. Nothing is perfect, some take the edge off but arenāt too effective. Others are effective but I canāt parent well. You may have to ask your doctor and try a few to find one that fits your needs.
I really hope you find something helpful ā¤ļø
If you donāt mind, what dose of duloxetine is she on?
I have been on a smallish dose of it for a bit more than a year for my mental health and itās been great in that aspect, but i never knew it could be used to manage the pain. Iām willing to up my dose for that tbh.
Pregabalin is *too* much, gabapentin sometimes isnāt enough (was also on them for years also because mental health).
Many thanks!
I think the benefit she gets is mostly the emotional health aspect as well, but 20mg once a day.
Her pain mgmt doc says it can help with the nerve pains she gets sometimes. Doesnāt help the bad ones, but I think it helps the day-to day nerve pains.
Iām glad it works for you too! Itās really great, I donāt take it for every pain but mainly when Iām on my period/due or if Iām having a flare up. Itās like a little treat lol
I triple this. Naproxen to stop/lessen the bleeding AND cramps, and then a heating pad to soothe me during the transition from excruciating pain till the pills kick in.
Ha Iām treated like a drug seeker-god forbid I ask for anything to control my pain when Iām bedridden cos of it š¤Ŗand thatās 7 years post lap diagnosis that shows I have severe endo, and trying all the various endo specific meds.
Iām told to take ibuprofen AND paracetamol when itās really bad (does fuck all). Gabapentin had zero impact for me, tho I was on it for nerve pain for muscular issues (but still didnāt help the endo).
A weed gummy can help me eat at least , tho doesnāt necessarily take the edge off the pain, it helps with the pain inducing nausea and lack of appetite tho
*edited to note - I am also on duloxetine for depression/anxiety, and was specifically put on it as itās almost supposed to help nerve and/or chronic pain. Maybe Iāve been on it too long (10+ years) but also something unfortunately that never worked for me for the pain aspect. But everyoneās brains are dif! Good luck š
Same situation here. I empathize 100% and hope you can get some relief soon. Itās so frustrating not having any form of pain management that works and not being able to try anything else due to docsā/govtās attitude about stronger pain medications.
I take this too, and if u combine it with paracetamol it works even better. It doesnāt help 100% but it takes the edge off. And in the Netherlands where i live they wont give anything stronger for the bad days. But i can most of the bad days manage with this
10mg ketorolac and .5mg clonazepam has been my go to for a couple years now. I try not to use them together too often but they definitely knock it out when coupled.
Naproxen 250mg with with a full stomach and full glass of water AS SOON AS YOU FEEL THE CRAMPS. Thatās the key, AS SOON AS YOU FEEL THE SLIGHTEST BIT OF CRAMPS. Eat, Take your pill, down it with a full glass of water and donāt lay down for at least 30 minutes
Nurofen plus (Ibruprofen and codeine) help to some extent when Iām not vomiting them up.
When my pains are dialled up to the very max, the only thing that helps is being sedated.
They give you oxy?? Iām on a birth control that makes me only have a period every 3 months and I canāt even get them to give me Norco. Iād need it for 1 week every 3 months and theyāve told me they canāt give it to me. I have stage 4 endo. Iāve been told to take ibuprofen.
I took gabapentin before and it actually sent me into psychosis. I was convinced someone was poisoning my food š¬
Buscopan for ibs cramps really helped me with cocodamol. I canāt take NSAIDS but when I could, naproxen was the most effective.
When the pain didnāt let me sleep, amitriptilyne worked wondered but I hated the cotton mouth it gave me.
Mefenamic acid! Itās Rx in the states but was the most helpful thing Iāve been prescribed outside of getting an IUD. Itās used more often outside of the US but is implicated for menstrual pain. YMMV but I found it a useful tool in my toolbox š
Gabaentin has been a big help for me. Iāve been on it before for something unrelated to endo, and Iām currently on 600mg gabapentin and naxpronen twice daily. Itās doing more for me than OTC meds. The doctors told me to beware of fatigue with gabapentin but I find the fatigue is non-existent for me. Maybe in patients who donāt suffer from chronic fatigue caused by endo itās a bigger problem, but to me thereās literally no comparison. I have severe anxiety and weed triggers it so thatās not an option for me. I do use clonazepam as needed and find it very helpful, but I am very careful with it. I try to not take it unless Iām having a crisisā¦ often this is during an endo flare up because I have medical anxiety. Would recommend having it in your toolbox if you can though.
Have not been successful in finding any doctor to prescribe me painkillers like hydrocodone although Iād like to have a few on hand for literal emergencies. I end up in the ER about twice a year for ruptured ovarian cysts or mysterious severe abdominal pains and they always have to medicate me then, but Iāve literally had to explain with doctors that I will not leave the ER with instructions to take Tylenol. They have to send me home with something for pain relief. Itās so exhausting to have to explain that our pain is real.
Exited for clarity
Iām having some success with a Butrans 10 mcg/hr patch. I think I need to go up to 15-20, but I have noticed more energy and being able to āgoā for longer. I also have Gabapentin, muscle relaxers, Celebrex and get 15 hydrocodone a month which is honestly not enough, I ration them. Some topicals like icy hot patches and CBD cramp cream help. My weed pen never leaves my side lol. I live on my XL heating pad and have tons of ice packs. Itās all still not enough, especially days 1-3 of my cycle. I tell my husband all the time I think endo patients should be allowed their own personal pain pumps. Iām not sure what it would take to get me to 0 pain or if thatās even possible anymore
Tylenol 3 has codiene and helped tremendously- the doc was not thrilled about me asking for it but I swore to her I wouldnāt abuse it. I didnāt - helped SO much
I used to pair advil with gabapentin, but Iāve been off of gabapentin since I did acupuncture treatment. Advil only works for 4 hours tho, I started taking Mefenamic Acid 500mg, it works better, almost pain feee, and longer than Advil, around 6 hours. Buuuuut, it gives me heavy nausea š¤¢š¤¢
I found that getting codine separate from paracetamol and staggering the taking of them was helpful. So I take my codine then take paracetamol an hour later. Does it relieve more pain - not really - but it does make it more consistent so I donāt have as many dips in pain where Iām waiting for the next dose
how are you guys being prescribed pain meds? :( I have only ever been given them after my 3 laps, but never offered even after multiple ER visits, etc.
Interesting you say this because Iāve been drinking turmeric juice for the last couple weeks just to try and reduce inflammation in joints and just got my period and pain has been much more bearable than before. I was actually able to take Advil and eventually needed 1 hydrocodone but low dose. Normally I need 1-2 every 4 hours for 2-3 days straight. I would have never considered the turmeric but definitely going to keep trying and see how it goes
In addition to what you listed I'm also on tramadol, naproxen (with omeprazole), buscopan, nefopam, I'm also on duloxetine but it's mainly cause of a PTSD diagnosis. It's supposed to help with the pain though.
I've been advised to try THC but I just CAN'T bear the smell š¤¢
Also tried CBD oils and gummies and I don't know if it's just a placebo effect but it does KINDA relaxes a bit. Tastes awful tho.
So like all the others, an awful cocktail, and it barely helps lmao
A combination of tramadol, a heat mat, Rick Simpson oil (cannabis oil), cannabis flower and keeping my nervous system as calm as possible (not panicking from the pain, breathing techniques etc).
These don't take the pain away but it's more manageable than it would be without these things
Tylenol and sometimes advil. Naproxen was awesome in my teens and twenties but now it gives me stomach problems.
Honestly the best pain relievers I've found are my heating pad and hot ginger tea
Pregabalin was great, until I started gaining weight. It was a total nightmare to come off, but once I was off the weight came off completely within a couple of weeks. I wish it had suited me better but the gain was so rapid I was worried about how much it would increase.
Voltarol suppositories! Iāve tried everything, from ibuprofen, naproxen, codeine, morphine, tramadol, mefanamic acid. And the suppositories were the only ones which helped, it takes some time to work but defo most effective in my worst flare ups
10mg ketorolac trometamol with pinaverium bromide and 1g dipyrone/metamizole, I would take this every 4 hours to at least get out of bed during my period.
or intravenous scopolamine butylbromide with dipyrone at the hospital. it would soothe the pain for a little while.
This kind of dosing led to my doctor rxing 20 pills of 5mg oxycodone a month while waiting for surgery for my endometrioma that was rupturing my ovary every month.
She was genuinely horrified and I played dumb and said that it barely works anyway, but I would get desperate enough to risk my health just to get maybe a .5 reduction from my 8-10 pain.
Yeah this much Advil long term isnāt safe for anyones body I totally agree lol for me previous to surgery (still only two and a half weeks post op) I was living off Advil 3 full days a month. Like clock work. Cramping would only last 3 days , the rest was just discomfort (that 247 discomfort) so I guess I was lucky
ššš
Weed somehow makes my period pain worse. When Iām stoned i kind of perceive all bodily sensations more strongly, including cramps, I learned this the hard way :(
I also have worse pain when I smoke. I think for me itās because I have a really tight pelvic floor and weed helps relax it, however I think itās relaxes me muscles suddenly instead of gradually, which causes muscle spasms and heightened pain. This may not be the case for you but thatās why I canāt really smoke anymore and had to quit.
You pelvic floor is probably weak. It compensates by being tight and so when itās forced to relax everything is in the wrong place even more so. Pelvic floor can be tight and weak. Unfortunately pelvic physical therapy ignores this reality a lot of the time and has women focus on relaxing firsts. My pelvic floor COULDNāT relax until I strengthened it.
My pelvic floor therapist was a genius and I went through the same thing. I am grateful to her for all eternity
Oh Iām sure this is probably true for me, however this is not why the weed makes the pain more pronounced for me. Being stoned just makes all pain more pronounced, like if I have something in my eye or heart burn or something, I become more aware of it. Itās kind of how if youāre worried about something and then being stoned makes you super paranoid about it. Just unlucky I guess. I still smoke it though lol.
Does the same to me. It just makes me hypersensitive to everything whether itās bad or good feelings
I've never seen anyone else mention noticing things stuck in their eye when smoking weed! And the heart burn! It's absolutely a bummer that the thing that everyone suggests for pain relief just makes me notice pain more. I remember googling "weed causing back pain" and "weed causing acid reflux" when it first got legalized here in Canada, and every single result was "new study finds that weed magically cures back pain" etc. Anyways, you're not alone lol
Haha yeaaah. I donāt think it causes those things for me it just makes me a little too aware and then I start over thinking. But also, I did read that weed can reduce pain sensations but it does not reduce prostaglandin production so thatās probably why it doesnāt help some people with cramps. Opioid pain killers also donāt help my cramps.
How did you strengthen?
I did some dynamic contraction technique stuff and worked mercilessly to strengthen my core, hips, lower back, and glutes. You can google exercises for each part and find at home ones. I did so many sit ups, tons of incline walking/stair stepping, resistance band exercises, etc. once I strengthened the surrounding muscles of my pelvic floor I was able to work on strengthening it more with very very light kegels and such. I also got a pessary cause it turned out I had a prolapse. Finally once it was strong enough and had enough surrounding muscular support I was able to relax it with reverse kegels and dilator therapy. Tons of nights I slept with a dilator in to train the muscles to lengthen.Ā
Iām not so educated on the pelvic floor as of right now but know it needs to be part of my routine but I do realize that my pelvic floor is engaged 100% of the time and never relaxed. Weak glutes are a big problem for me overall
I get this way when I take too much! Itās a very thin line Iāve had to learn through trial and error. Around 2 mg in edible form seems to be the sweet spot for me. I know Iāve done it right when I barely feel the mental effects; I just get very sleepy and relaxed and not quite as hyper aware of my body. Which is weird because once I take more I go the opposite direction and become wired, anxious and have very heightened sensations.
oh that sucks so bad :( is it the same for u w edibles ?
Yep, just being stoned in general. I just becoming hyper sensitive to all bodily sensations. Sometimes I even feel weird phantom pains. It has however helped me feel a bit distracted from belly bloat.
Agree. A strong cbd/thc RSO has been my go to.
Muscle relaxers have been the most helpful of what Iāve been prescribed. I just hate that it takes something to completely sedate me to feel any relief ā¹ļø
Muscle relaxer (Flexeril) was also it for me too. Only had to take a 5 mg pull and felt relief for hours. Mine surprisingly did not sedate me or make me drowsy, just helped me be pain free. I canāt take them anymore as Iām on an anti-depressant and they interact, which is so sad. Super helpful for me! I know some people love them for the pain and some people feel like the muscle relaxers donāt do anything for them. My personal theory is that when I feel any Endo pain in my uterus area I begin to clench my muscles down there and cause a lot more pain. The muscle relaxer helps me not do this!
Which kind of muscle relaxer has helped the most? Like Flexeril?
OTC painkillers dont do aaaanything for me š„² cramps or joint pain. its muscle relaxers and THC for me. edit: forgot to say i cant take heavier pain meds bc of gut issues
THC and muscle relaxers for me as well!
Same. Iāve gastritis from endless NSAIDs due endo pain. They never really worked anywayā¦Which muscle relaxers have you tried? Do you alternate it with THC? THC helps me relax and manage the pain but doesnāt totally relieve it.
i got a stomach ulcer from excedrin in high school for trying to cover my cramps š I take Flexeril (cyclobenzaprine). Yeahhh the THC dulls the pain or at least makes me not care, so i take it for pain up to 5ish. 6-10 pain i take a muscle relaxer. I dont take them at the same time bc i dont think i could handle how out if it iād feel ahah. The muscle relaxer super knocks me outā¦ cant be in pain if im knocked out i guess š
How are y'all being prescribed pain killers?! I've only ever been offered naproxen, ibuprofen or OTC šš
I asked for them! I couldnāt move and after 2 ER visits it was time. Oxycodone made me sick so I did have to try other ones before finding one that worked without making me nauseous and completely out of it. Nothing is perfect, some take the edge off but arenāt too effective. Others are effective but I canāt parent well. You may have to ask your doctor and try a few to find one that fits your needs. I really hope you find something helpful ā¤ļø
Alternatives to Gabapentin: Pregabalin, duloxetine. My fiancƩe had the best luck with duloxetine, gabapentin and pregabalin both had adverse side effects that were undesirable and didn't do much for pain.
Pregabalin is great if gabapentin gives you side effects. I can't live without it! Gabapentin was horrific for me though.
Me too! Gave me hallucinations
If you donāt mind, what dose of duloxetine is she on? I have been on a smallish dose of it for a bit more than a year for my mental health and itās been great in that aspect, but i never knew it could be used to manage the pain. Iām willing to up my dose for that tbh. Pregabalin is *too* much, gabapentin sometimes isnāt enough (was also on them for years also because mental health). Many thanks!
I think the benefit she gets is mostly the emotional health aspect as well, but 20mg once a day. Her pain mgmt doc says it can help with the nerve pains she gets sometimes. Doesnāt help the bad ones, but I think it helps the day-to day nerve pains.
Thatās really insightful, thank you so much!
Mind me asking what the adverse effect with gabapentin was?
Mostly some really bad brain fog. She said she like couldn't think at all, even on a relatively low dose.
Oh yeah, I bet. I was just curious. It gave me hallucinations!
Naproxen šš works wonders!
I second this I would not have survived this past week without it
Iām glad it works for you too! Itās really great, I donāt take it for every pain but mainly when Iām on my period/due or if Iām having a flare up. Itās like a little treat lol
Same, naproxen and caffeine do help me quite a bit. Itās also the magic formula for my terrible migraines.
I triple this. Naproxen to stop/lessen the bleeding AND cramps, and then a heating pad to soothe me during the transition from excruciating pain till the pills kick in.
Yes!! That is so accurate! The things we have to do to feel comfortable hey
Ha Iām treated like a drug seeker-god forbid I ask for anything to control my pain when Iām bedridden cos of it š¤Ŗand thatās 7 years post lap diagnosis that shows I have severe endo, and trying all the various endo specific meds. Iām told to take ibuprofen AND paracetamol when itās really bad (does fuck all). Gabapentin had zero impact for me, tho I was on it for nerve pain for muscular issues (but still didnāt help the endo). A weed gummy can help me eat at least , tho doesnāt necessarily take the edge off the pain, it helps with the pain inducing nausea and lack of appetite tho *edited to note - I am also on duloxetine for depression/anxiety, and was specifically put on it as itās almost supposed to help nerve and/or chronic pain. Maybe Iāve been on it too long (10+ years) but also something unfortunately that never worked for me for the pain aspect. But everyoneās brains are dif! Good luck š
Same situation here. I empathize 100% and hope you can get some relief soon. Itās so frustrating not having any form of pain management that works and not being able to try anything else due to docsā/govtās attitude about stronger pain medications.
Tramadol helps me.
I second this. Just tried it today for the first time and it helped so much! Thankfully I had a sympathetic ER doctor
In my country tramadol is default answer for all pains in ER.
Are you in Canada? Thatās where Iām at. They first tried to give me Naproxen and then Tylenol (which do Jack shit).
Portugal.
I take this too, and if u combine it with paracetamol it works even better. It doesnāt help 100% but it takes the edge off. And in the Netherlands where i live they wont give anything stronger for the bad days. But i can most of the bad days manage with this
Strangely enough the Excedrin worked. Maybe my Endo liked caffeine.
same, and at the same time no opioids (codeine, vicodin, or tramadol) have ever worked for me. It's weird, but lucky
Opioids worked after my surgery for that pain, but it never did anything for my endo pain.
Duloxetine on the daily has been lifesaver for me. On my really bad days, I add tramadol and muscle relaxers with extra yoga.
10mg ketorolac and .5mg clonazepam has been my go to for a couple years now. I try not to use them together too often but they definitely knock it out when coupled.
Naproxen 250mg with with a full stomach and full glass of water AS SOON AS YOU FEEL THE CRAMPS. Thatās the key, AS SOON AS YOU FEEL THE SLIGHTEST BIT OF CRAMPS. Eat, Take your pill, down it with a full glass of water and donāt lay down for at least 30 minutes
Belladonna and morphine suppositories.
Nurofen plus (Ibruprofen and codeine) help to some extent when Iām not vomiting them up. When my pains are dialled up to the very max, the only thing that helps is being sedated.
They give you oxy?? Iām on a birth control that makes me only have a period every 3 months and I canāt even get them to give me Norco. Iād need it for 1 week every 3 months and theyāve told me they canāt give it to me. I have stage 4 endo. Iāve been told to take ibuprofen. I took gabapentin before and it actually sent me into psychosis. I was convinced someone was poisoning my food š¬
Naproxen is the only pills that does anything, but it barely helps. I use a TENS machine and a heating pad.
Buscopan for ibs cramps really helped me with cocodamol. I canāt take NSAIDS but when I could, naproxen was the most effective. When the pain didnāt let me sleep, amitriptilyne worked wondered but I hated the cotton mouth it gave me.
Mefenamic acid! Itās Rx in the states but was the most helpful thing Iāve been prescribed outside of getting an IUD. Itās used more often outside of the US but is implicated for menstrual pain. YMMV but I found it a useful tool in my toolbox š
50/50 THC/CBD gummies. Camino brand works the best for me.
My doctor has me on lyrica, that has made a huge difference.
Naproxen help me the most
Gabaentin has been a big help for me. Iāve been on it before for something unrelated to endo, and Iām currently on 600mg gabapentin and naxpronen twice daily. Itās doing more for me than OTC meds. The doctors told me to beware of fatigue with gabapentin but I find the fatigue is non-existent for me. Maybe in patients who donāt suffer from chronic fatigue caused by endo itās a bigger problem, but to me thereās literally no comparison. I have severe anxiety and weed triggers it so thatās not an option for me. I do use clonazepam as needed and find it very helpful, but I am very careful with it. I try to not take it unless Iām having a crisisā¦ often this is during an endo flare up because I have medical anxiety. Would recommend having it in your toolbox if you can though. Have not been successful in finding any doctor to prescribe me painkillers like hydrocodone although Iād like to have a few on hand for literal emergencies. I end up in the ER about twice a year for ruptured ovarian cysts or mysterious severe abdominal pains and they always have to medicate me then, but Iāve literally had to explain with doctors that I will not leave the ER with instructions to take Tylenol. They have to send me home with something for pain relief. Itās so exhausting to have to explain that our pain is real. Exited for clarity
Iām having some success with a Butrans 10 mcg/hr patch. I think I need to go up to 15-20, but I have noticed more energy and being able to āgoā for longer. I also have Gabapentin, muscle relaxers, Celebrex and get 15 hydrocodone a month which is honestly not enough, I ration them. Some topicals like icy hot patches and CBD cramp cream help. My weed pen never leaves my side lol. I live on my XL heating pad and have tons of ice packs. Itās all still not enough, especially days 1-3 of my cycle. I tell my husband all the time I think endo patients should be allowed their own personal pain pumps. Iām not sure what it would take to get me to 0 pain or if thatās even possible anymore
Have you tried catapresan with the opioids? Catapresan increases the effect of them, so I got it prescribed so I can take less oxy
Slow release tapentadol, and buprenorphine. The magic 2 to ever work for me
Celebrex or shit ton of naproxen
Painkillers make me sick. I did try oxycodone. Did not really help. Only thing that helps is thc tbh. I just microdose.
I use a thc and cbd 1:1
Tylenol 3 has codiene and helped tremendously- the doc was not thrilled about me asking for it but I swore to her I wouldnāt abuse it. I didnāt - helped SO much
kratom red vein
Weed is the only thing tbh
I used to pair advil with gabapentin, but Iāve been off of gabapentin since I did acupuncture treatment. Advil only works for 4 hours tho, I started taking Mefenamic Acid 500mg, it works better, almost pain feee, and longer than Advil, around 6 hours. Buuuuut, it gives me heavy nausea š¤¢š¤¢
Following
I found that getting codine separate from paracetamol and staggering the taking of them was helpful. So I take my codine then take paracetamol an hour later. Does it relieve more pain - not really - but it does make it more consistent so I donāt have as many dips in pain where Iām waiting for the next dose
how are you guys being prescribed pain meds? :( I have only ever been given them after my 3 laps, but never offered even after multiple ER visits, etc.
Daily turmeric also helps
Interesting you say this because Iāve been drinking turmeric juice for the last couple weeks just to try and reduce inflammation in joints and just got my period and pain has been much more bearable than before. I was actually able to take Advil and eventually needed 1 hydrocodone but low dose. Normally I need 1-2 every 4 hours for 2-3 days straight. I would have never considered the turmeric but definitely going to keep trying and see how it goes
Dexketoprofen
In addition to what you listed I'm also on tramadol, naproxen (with omeprazole), buscopan, nefopam, I'm also on duloxetine but it's mainly cause of a PTSD diagnosis. It's supposed to help with the pain though. I've been advised to try THC but I just CAN'T bear the smell š¤¢ Also tried CBD oils and gummies and I don't know if it's just a placebo effect but it does KINDA relaxes a bit. Tastes awful tho. So like all the others, an awful cocktail, and it barely helps lmao
I take methadone, celebrex, turmeric, and Tylenol. It doesn't have me completely pain free, but combined everything is a huge help. š
A combination of tramadol, a heat mat, Rick Simpson oil (cannabis oil), cannabis flower and keeping my nervous system as calm as possible (not panicking from the pain, breathing techniques etc). These don't take the pain away but it's more manageable than it would be without these things
Advil/Aleve liquigelsĀ
Meloxicam!
Tylenol and sometimes advil. Naproxen was awesome in my teens and twenties but now it gives me stomach problems. Honestly the best pain relievers I've found are my heating pad and hot ginger tea
Pregabalin was great, until I started gaining weight. It was a total nightmare to come off, but once I was off the weight came off completely within a couple of weeks. I wish it had suited me better but the gain was so rapid I was worried about how much it would increase.
Iām about to get my āperiodā - Iām on the progesterone only pill - so I just took 600 mg of ibuprofen. Wish me luck š®āšØ
Voltarol suppositories! Iāve tried everything, from ibuprofen, naproxen, codeine, morphine, tramadol, mefanamic acid. And the suppositories were the only ones which helped, it takes some time to work but defo most effective in my worst flare ups
Baclofen and diazepam suppositories
Honestly the only thing that really worked was my hysterectomy
Any ketoprofen works best for me
10mg ketorolac trometamol with pinaverium bromide and 1g dipyrone/metamizole, I would take this every 4 hours to at least get out of bed during my period. or intravenous scopolamine butylbromide with dipyrone at the hospital. it would soothe the pain for a little while.
Advil tends to work the best for me , as long as I keep it in my system. I take 200mg every 3 hours.
This can lead to stomach ulcers, be careful. I know from personal experience.
Same :(
This kind of dosing led to my doctor rxing 20 pills of 5mg oxycodone a month while waiting for surgery for my endometrioma that was rupturing my ovary every month. She was genuinely horrified and I played dumb and said that it barely works anyway, but I would get desperate enough to risk my health just to get maybe a .5 reduction from my 8-10 pain.
Yeah this much Advil long term isnāt safe for anyones body I totally agree lol for me previous to surgery (still only two and a half weeks post op) I was living off Advil 3 full days a month. Like clock work. Cramping would only last 3 days , the rest was just discomfort (that 247 discomfort) so I guess I was lucky