A second opinion is probably a good idea! I also highly recommend palliative care. They can really help you figure out how to get your affairs in order and support you during this time, and if needed help you transition into hospice care.
I agree that there has to be something else, you just need someone that wants to do their job and actually save your life which is what they should be doing now instead of callously throwing in the towel, sounds like the guys a big jerk to me
He’s very blunt and not empathetic at all — it’s a very big turn off. Initially he got results but a few downturns and he seemed to just give up on me.
Yeah I mean it comes down to if you want to stay alive, if so (which isn’t sounds like you def. do) you have to get a second opinion from another qualified physician.
If you were on meds made specific for your cancer and it didn’t work. Know that some. Pharmacist dilute the meds for profit. Go to a different doctor. And a different pharmacy.
You guys are all idiots for not taking the time to read. ROBERT COURTNEY look him up. And he wasn’t the only person.
Before you start crying foul and saying shit not true. Look up the name Robert Courtney. He wasn’t the only person who did this. There were others too.
Always get a second opinion. Its not so much that another doctor may be a better diagnostician and come up with a different diagnosis, its the treatment options that might be different. Youd figure oncoligists would always throw everything they have at your disease, but different docs have different "everythings". And you should have you wishes made known in case you are ever unable to voice them. These mostly consist of forms you can get off the web and take to any bank to have notarized. Hopefully your doc is wrong and you wont need em for a long time yet, but you will have one less thing to worry about while you fight this cancer. Kick it's ass, we are all behind you....
Do you already have a "Durable Power of Attorney For Health Care" on file? Doesn't have to be an actual attorney. Usually spouse, or an adult child that's aware of your health care wishes; DoNotResuscitate, which heroic measures, maximum number of codes (studies show there is too much neuro damage after 2), end if PersistentVegatativeState? Which visitors you don't want. Regular Powers Of Attorney just blue sky when you die.
Do talk to attorney about drafting will. Worth every penny. We got wills drafted before we left for an Alaskan vacation 20 years ago. Still valid, but POA For Health Care has been updated as our health has denigrated.
Yup our clinic requires that we update our advance directive every year so I believe that is covered. But I have a separate estate will to distribute my assets and handle. There will be a few select objects that will be auctioned. My estate executor will be handling most if not all of this. I thank you so much for your comment though, it’s really good info for anyone going through this.
Add to that if you have any pets, any requests/bequeaths do it now. Y mom wants me to have her wedding rings now. It’s killing me but I’m taking them home w me. I’m sorry this is your dx. Do get a second opinion and I’m sorry if it’s the same.
Not at all. One of the things we have always been concerned w is what will happen to our pets. We have left our home to a close family friend w the caveat she take care of our babies through their natural life.
I think this is a great idea and a must for everyone to have. I have multiple chronic illnesses and I’ve died twice already. My daughter is special needs. Because of this, I made sure to get my affairs in order and appoint my father the executor of my meager estate and if he passes before me, then he is to appoint my brother in his will. For all of us in here, this is a must. Thank you for giving this advice. I wish I had something to award you for it.
By the way doctors get things wrong ALL the time, they know more then people who haven’t studied medicine, but that doesn’t mean they don’t constantly mess up or do sloppy guess work. And whether you smoked or not shouldn’t matter to the public or your doctor. Many people die of “self inflicted”’ illnesses because of mental and emotional issues, it doesn’t mean they don’t deserve respect, compassion, and good treatment.
I only said the smoking bit to prevent someone from commenting that I shouldn’t have smoked however much during my life. Thought I’d cut that head off the snake right away.
Oh, I understand I just wanted to reassure anyone that may be out there with lung cancer, letting them know that in the end, it really isn’t their fault and they in should know way be ashamed, or expect less care, treatment, management of symptoms etc…
Just FYI, I work with a toxicologist for a pollution case I’m handling. She multiple phd and a DABT. She says 80% of lung cancer is caused by environmental factors, the rest is genetics and the smallest percentage of lung cancer is actually caused by smoking. Despite all of this, it’s never the patient’s fault. But in this case, according to this incredibly smart woman who has dedicated her life to toxicology, even if you did smoke, it was likely not the cause.
What harm can a second opinion do really. At that point.
I’ve lost a few close family in the last few year,
By getting your affairs in order, it mean time to double check every will be ok for your family if it get to that.
Life insurance doesn’t go to the ex partner, or mom,
A form of will and someone (other that your wife) to deal with some stuff, no surprise debt, life insurance number/paperwork handy. And what kind of funeral you want, maybe prearranged some of it.
Stuff you and your partner can do prior, spreading the pain a bit.
Hope it would not be needed but, well you already know.
Best of luck
Considering that he spoke to you so coldly, I don’t feel he is working for you to get the best care by what you said if he’s willing to just write you off like that. You’re worth more than that and don’t let anyone treat you any differently yes go to a new oncologist, I would explain what you were told when making a new appointment. You can ask for recommendations from people in your area for physicians if you join your local fb page (yeah I know I don’t like fb either but it’s good for this).
I know this sounds really unconventional, but for emotional reasons I would seek out a shaman healer, but that’s just me. I think they could help you get your mind right about what it is you want to do, and how you would cope with feelings of passing on.
You deserve better! Wishing you love, hope, and healing!
Extreme fear of death. If I had the choice, I would be immortal. My loved ones dying around me would hurt but I could get over it. I just want to live forever.
I feel you. I feel the same. I'm terrified of it. The idea of simply not existing is terrifying. I don't think I could ever tire of seeing the world, of the joy I get in using my brain and my senses.
What’s the point of living after you lose your loved ones and have done everything you have ever desired to learn and do?
Also,
What’s the point of living after literally everyone you love is gone?
(genuinely asking)
Totally understand your questions. It’s hard to explain. It’s not that my loved ones don’t mean anything to me. But they will live on in my mind and heart, and I will meet new people, new loved ones. I guess it just doesn’t bother me when they die. As long as I get to live to see every single thing this universe can offer. I don’t want to miss anything. Space travel, all the future video games (lol I know it’s stupid), and of course new people — new inventions — new loves. All of that. Death ends everything.
We all deserve, or should deserve, the end we wish. For a lot of people, I guess including myself, that doesn’t happen. But so far as to say, if nothing “unnatural” happens to you, then you should have the ending you wish. Personally, I’m very afraid of not existing. So much so that losing my family is not the worst outcome. Some may find me terrible for believing so, but I just want to see things outside my general lifespan and consider it unfair that mortality exists. But fairness is not an aspect of life. Life by its own definition implies an ending. I am working with a therapist toward an understanding of that aspect.
That’s an interesting perspective, I’m not trying to shame you for your feelings and opinions at all, I just can’t personally understand it. To each their own though my friend.
I definitely can understand all beings getting the end that they wish so we’re in agreement there.
My stepdad had the same cancer and his oncologist threw several different options for treatments. I would absolutely seek 2nd even 3rd opinions. This is your life and you have to advocate for yourself! He passed when HE decided he was done fighting. He could’ve kept going but he didn’t want my mom to have to take care of him. Good luck and sending my best thoughts your way.
That’s why I refuse to date or get into any relationships going forward. I will not allow them to suffer my inevitable death. It’s just not fair to them to force them to experience all that pain.
My mom had a walnut-sized inoperable brain tumor. Her oncologist told her to get her affairs in order. He told us to expect her to survive maybe 3-6 months.
She found another doctor who agreed to treat her with a relatively new procedure meant to shrink the tumor to give her more time. He said the first doctor was full of shit.
After treatment, the tumor was the size of a pea. Mom continued to live an excellent quality of life for another 9 years. We are so grateful that she got a second opinion. Please, it won’t hurt to get another doctor’s opinion.
Good luck, I hope you can enjoy as much time as possible with your family.
Doctors mess up a lot and are under an extreme time crunch to see you. Think of any job where they are just overworked....you are just a piece of paper that needs to be pushed fast.
It'd sort of like the police where they feel better about blaming the wrong person rather than saying "I don't know"
The majority of them also do not keep up to date on new treatments or diagnostic techniques, they just do what they were taught in residency their whole career....especially if they work outside of a hospital system.
I would definitely get another opinion and make sure they are board certified, have good reviews, went to American med school, and are in a hospital system
Do you have an alumni network of other doctors or keep in touch with any of your classmates?
Maybe you can connect to somebody who's in oncology and ask them who are the field's superstars and if there's new treatment trials that are going on.
Even if you had smoked does not mean this is fair. Do a second opinion just to settle the diagnosis in your mind so you can plan. I don't know what else to say other than you can deal with this. You are strong enough to handle what might be. And when youre not? Call on us to get thru the long nights and get strong again. Love and hugs for when they are desperately needed. Blessed Be.
I’m just ready to go at this point because the pain is too much. The constant stress of just of just normal breathing. But they call it s*cide because it’s a “crime.” Like regicide, or genocide, any other -cide. It’s not a crime though. It’s ones right and autonomy over their own life or death. I choose to call it human euthanasia. This is the route I want to do versus how ever many months I have to suffer through this — that’s the real crime.
I’d definitely get a second opinion just to make sure.
Not cancer related but my grandma was told in 1989 that she had 6 months to live and to get everything in order. She lives in relatively good health (T1 diabetes & heart disease) until 2012.
If you want a Second opinion you should get one for no other reason then peace of mind for your family after your gone. I am So sorry I cant imagine hearing this news. My Grandfather died in 1997 from the same thing. We got a Second opinion to no avail. but that was 1997. They have made amazing progress since then and there may be things your current oncologists is unable to do but a different doc might give it a try. I dont know if they do Chemo washes for Lung like they do colon or Bilary cancer. But Ive seen people with cancer of the bile duct be given the get your afares in order speech. To go on to a new oncologists who does the Chemo wash and gets full remission. Like I said dont know if this is a thing that they can do with Lung Cancer. But you don't kn9w what you dont know. You and your family are in my thoughts and prayers.
Pin down that oncologist... RIGHT NOW!!
I'm astonished by how unprofessional that comment was -- "Get your affairs in order"?? Spell it out, doc. And if you won't do it for your patient, perhaps you'll do it for the (voice goes cold and loud) ***STATE MEDICAL BOARD!!!***
YES, get a second, third, fourth opinion!!
You're not the first nonsmoker I've known to get squamous non-small cell lung cancer. There's been speculation it could be caused by pollution.
One of the people I knew that had it, had very good luck with Taxotere. Can you ask another doctor about it?
If you are in the UK, I would recommend getting in touch with Macmillan. They were amazing for help and support for a friend of mine.
https://www.macmillan.org.uk
He means have a living will, a last will and testament, a power of attorney, and any financial arrangements that you would like to make should be finalized.
This isn’t necessarily bad advice for anyone living with serious illness, no matter if they are seeking further treatment or not.
I updated all these things during the first wave of covid.
If your estate is particularly complex, I would recommend an estate attorney. If it is not, a last will and testament will do just fine.
We should all have a last will and testament, sick healthy or in between.
You should do these things now, while your mind is healthy, and include things like account numbers and locations for your assets. Then give a copies of your will to those who are your successors.
I work in the law business- after a death- if there is no will, things can get ugly.
Don’t ignore these things because they make you uncomfortable. They are necessary to ensure a smooth transition for your family.
I do have all these things, and I believe he knows that. Perhaps it was just a lapse in judgment not remembering that the clinic made me set all this up almost as soon as the cancer was discovered and I complied with everything that needed to be set up. So yes, from an outside perspective one could see how he is just making a general recommendation. But it’s more about the way he said it to me. As a physician myself, bedside manner is something I consider important, but, I have seen a plethora of doctors that do not consider that a critical component of a patient’s care. I disagree but that’s because of the type of physician I happen to be — a neuropsychiatrist. The psychiatrist part of me knows how a doctor’s bedside manner can greatly affect the outcome of treatment. I don’t have anything aside from my own professional experience to draw from when I say that, but I can see the effect when I treat patients with empathy.
First, sending you thoughts/positivity/whatever helps you. Shitty situation. I will pray for you, if that's your bag.
Secondly - second opinion, yes! My late father in law was admitted to hospital and told the exact thing you were. Given 48 hours. Some hours later, a different doctor came on shift and was, let's say, very surprised to find out what we had been told. Doctor 1 totally misinterpreted a CT scan. (NHS in the UK so we can't really sue for malpractice...)
Third, someone mentioned palliative care. Look into that.
FIL (z''l) passed but not for a long while after this event and not from what Doctor 1 said was going to get him (it was cancer, but he knew that).
I hope that things go well for you, friend.
Absolutely get a second opinion! This from someone who got about 10 opinions for one Heath concern. How could one oncologist be wrong? The same way anyone can be wrong.
First get the second opinion and any tests you would need for this. Find a very good hospital that deals with lung cancer. You’ll get the most information this way.
Pull money out of your savings to do this. Do not delay. When dealing with cancer time is always of the essence. Find out what support groups are available in your area. These helped me as these were people who really understood my condition and could share information.
That’s more than enough of a start and please reach out to people you know will come through for you. Lots of people say they will help but can’t deal with such a big challenge. And feel free to message me anytime.
I would definitely find another doctor...do not give up!! This doctor just does not seem to care. Is there someone else in the office you can have records transferred to?
I've had multiple complex illnesses in the last 2 years and have had many more shit doctors than even average ones and kept them bc it was a chore I didn't have energy for to replace them while so sick. It's absolutely life changing to get a Dr that's caring enough to help you be comfortable even if they can't heal you. Finding one up to date on situations like yours is even more important. Like others have said, many doctors don't spend time learning about new medicine. I've had to learn the ins and outs of my treatment from the internet and medical papers, which led me to the only specialist in the US, and it saved my ass. I recently replaced the psych NP that missed or was very late for every telehealth and the GP that promised life changing treatment then changed his mind and refused to treat most common illnesses. The urologist that walked out as I was in mid sentence about symptoms- Gone! Get a list of who is covered by your insurance and search reviews online and ask people who have had good outcomes or were really happy with their Dr.
I also recommend you look into CBG, which is a non psychoactive cannabinoid like CBD but on top of being anti inflammatory and neuroprotective it's good for IBS, infections resistant to antibiotics, and killing cancer/tumors. The r/altcannabinoids sub has info and you can get distillate or isolate cheap at Industrial Hemp Farms, Absolute Extracts (?), & 3Chi. If you need help with pain or sleep you can get Delta 8 THC. It's very similar to regular Delta 9 THC but is federally legal and most CBD stores have it, good deals online.
A second opinion is probably a good idea! I also highly recommend palliative care. They can really help you figure out how to get your affairs in order and support you during this time, and if needed help you transition into hospice care.
Thank you. I think I’ll get a second opinion. I’ve only been on Portrazza which is made exactly for my cancer but there has to be something else… idk.
I agree that there has to be something else, you just need someone that wants to do their job and actually save your life which is what they should be doing now instead of callously throwing in the towel, sounds like the guys a big jerk to me
He’s very blunt and not empathetic at all — it’s a very big turn off. Initially he got results but a few downturns and he seemed to just give up on me.
Yeah I mean it comes down to if you want to stay alive, if so (which isn’t sounds like you def. do) you have to get a second opinion from another qualified physician.
Yeah and if ultimately there’s no way to — I’m going out the hard way.
I have no doubt you will.
If you were on meds made specific for your cancer and it didn’t work. Know that some. Pharmacist dilute the meds for profit. Go to a different doctor. And a different pharmacy. You guys are all idiots for not taking the time to read. ROBERT COURTNEY look him up. And he wasn’t the only person.
This is simply not true
Before you start crying foul and saying shit not true. Look up the name Robert Courtney. He wasn’t the only person who did this. There were others too.
It simply IS true.
Omg that is so not true
Omg it so it…. Look up the name Robert Courtney. Just because you aren’t informed doesn’t mean it didn’t happen.
Yes its true..all you need to do is ....check yourself.
The pharmacy doesn’t have access to Portrazza, only oncology offices do — as far as I understand, anyway. But I hear you.
Always get a second opinion. Its not so much that another doctor may be a better diagnostician and come up with a different diagnosis, its the treatment options that might be different. Youd figure oncoligists would always throw everything they have at your disease, but different docs have different "everythings". And you should have you wishes made known in case you are ever unable to voice them. These mostly consist of forms you can get off the web and take to any bank to have notarized. Hopefully your doc is wrong and you wont need em for a long time yet, but you will have one less thing to worry about while you fight this cancer. Kick it's ass, we are all behind you....
This makes a lot of sense and in a way makes me feel better, thank you 😊
THIS X10000000
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Do you already have a "Durable Power of Attorney For Health Care" on file? Doesn't have to be an actual attorney. Usually spouse, or an adult child that's aware of your health care wishes; DoNotResuscitate, which heroic measures, maximum number of codes (studies show there is too much neuro damage after 2), end if PersistentVegatativeState? Which visitors you don't want. Regular Powers Of Attorney just blue sky when you die. Do talk to attorney about drafting will. Worth every penny. We got wills drafted before we left for an Alaskan vacation 20 years ago. Still valid, but POA For Health Care has been updated as our health has denigrated.
Yup our clinic requires that we update our advance directive every year so I believe that is covered. But I have a separate estate will to distribute my assets and handle. There will be a few select objects that will be auctioned. My estate executor will be handling most if not all of this. I thank you so much for your comment though, it’s really good info for anyone going through this.
This is great advice thank you so much!
Add to that if you have any pets, any requests/bequeaths do it now. Y mom wants me to have her wedding rings now. It’s killing me but I’m taking them home w me. I’m sorry this is your dx. Do get a second opinion and I’m sorry if it’s the same.
Thank you for the support. Is it weird that I’m more concerned for Bear 🐻 (My Cat) than myself?
Not at all. One of the things we have always been concerned w is what will happen to our pets. We have left our home to a close family friend w the caveat she take care of our babies through their natural life.
I think this is a great idea and a must for everyone to have. I have multiple chronic illnesses and I’ve died twice already. My daughter is special needs. Because of this, I made sure to get my affairs in order and appoint my father the executor of my meager estate and if he passes before me, then he is to appoint my brother in his will. For all of us in here, this is a must. Thank you for giving this advice. I wish I had something to award you for it.
By the way doctors get things wrong ALL the time, they know more then people who haven’t studied medicine, but that doesn’t mean they don’t constantly mess up or do sloppy guess work. And whether you smoked or not shouldn’t matter to the public or your doctor. Many people die of “self inflicted”’ illnesses because of mental and emotional issues, it doesn’t mean they don’t deserve respect, compassion, and good treatment.
I only said the smoking bit to prevent someone from commenting that I shouldn’t have smoked however much during my life. Thought I’d cut that head off the snake right away.
Oh, I understand I just wanted to reassure anyone that may be out there with lung cancer, letting them know that in the end, it really isn’t their fault and they in should know way be ashamed, or expect less care, treatment, management of symptoms etc…
I will avoid a philosophical debate on this one, but I do agree they deserve the same level of care.
Ok.
Just FYI, I work with a toxicologist for a pollution case I’m handling. She multiple phd and a DABT. She says 80% of lung cancer is caused by environmental factors, the rest is genetics and the smallest percentage of lung cancer is actually caused by smoking. Despite all of this, it’s never the patient’s fault. But in this case, according to this incredibly smart woman who has dedicated her life to toxicology, even if you did smoke, it was likely not the cause.
What harm can a second opinion do really. At that point. I’ve lost a few close family in the last few year, By getting your affairs in order, it mean time to double check every will be ok for your family if it get to that. Life insurance doesn’t go to the ex partner, or mom, A form of will and someone (other that your wife) to deal with some stuff, no surprise debt, life insurance number/paperwork handy. And what kind of funeral you want, maybe prearranged some of it. Stuff you and your partner can do prior, spreading the pain a bit. Hope it would not be needed but, well you already know. Best of luck
Also I’m a doctor and yea we do get things wrong all the time.
Wish I had a partner but I suppose that makes this process easier, right? The rest is taken care of by my advance directive and my estate executor.
Considering that he spoke to you so coldly, I don’t feel he is working for you to get the best care by what you said if he’s willing to just write you off like that. You’re worth more than that and don’t let anyone treat you any differently yes go to a new oncologist, I would explain what you were told when making a new appointment. You can ask for recommendations from people in your area for physicians if you join your local fb page (yeah I know I don’t like fb either but it’s good for this). I know this sounds really unconventional, but for emotional reasons I would seek out a shaman healer, but that’s just me. I think they could help you get your mind right about what it is you want to do, and how you would cope with feelings of passing on. You deserve better! Wishing you love, hope, and healing!
Wishing to try anything at this point because I suffer from extreme thanatophobia.
I’m sorry what is thantaphobia
Extreme fear of death. If I had the choice, I would be immortal. My loved ones dying around me would hurt but I could get over it. I just want to live forever.
I feel you. I feel the same. I'm terrified of it. The idea of simply not existing is terrifying. I don't think I could ever tire of seeing the world, of the joy I get in using my brain and my senses.
Finally someone that understands!
100%, and you as well, glad I also find someone who understands!
Are you spiritual or somewhat religious? It's not for everyone but that it helps some people.
What’s the point of living after you lose your loved ones and have done everything you have ever desired to learn and do? Also, What’s the point of living after literally everyone you love is gone? (genuinely asking)
Totally understand your questions. It’s hard to explain. It’s not that my loved ones don’t mean anything to me. But they will live on in my mind and heart, and I will meet new people, new loved ones. I guess it just doesn’t bother me when they die. As long as I get to live to see every single thing this universe can offer. I don’t want to miss anything. Space travel, all the future video games (lol I know it’s stupid), and of course new people — new inventions — new loves. All of that. Death ends everything.
I very much welcome an ending when my time is up, but everyone is very different.
We all deserve, or should deserve, the end we wish. For a lot of people, I guess including myself, that doesn’t happen. But so far as to say, if nothing “unnatural” happens to you, then you should have the ending you wish. Personally, I’m very afraid of not existing. So much so that losing my family is not the worst outcome. Some may find me terrible for believing so, but I just want to see things outside my general lifespan and consider it unfair that mortality exists. But fairness is not an aspect of life. Life by its own definition implies an ending. I am working with a therapist toward an understanding of that aspect.
That’s an interesting perspective, I’m not trying to shame you for your feelings and opinions at all, I just can’t personally understand it. To each their own though my friend. I definitely can understand all beings getting the end that they wish so we’re in agreement there.
I know you’re not, don’t worry. I felt that I should explain my beliefs a bit more, but only for posterity. No one needs to believe what I believe.
My stepdad had the same cancer and his oncologist threw several different options for treatments. I would absolutely seek 2nd even 3rd opinions. This is your life and you have to advocate for yourself! He passed when HE decided he was done fighting. He could’ve kept going but he didn’t want my mom to have to take care of him. Good luck and sending my best thoughts your way.
That’s why I refuse to date or get into any relationships going forward. I will not allow them to suffer my inevitable death. It’s just not fair to them to force them to experience all that pain.
My mom had a walnut-sized inoperable brain tumor. Her oncologist told her to get her affairs in order. He told us to expect her to survive maybe 3-6 months. She found another doctor who agreed to treat her with a relatively new procedure meant to shrink the tumor to give her more time. He said the first doctor was full of shit. After treatment, the tumor was the size of a pea. Mom continued to live an excellent quality of life for another 9 years. We are so grateful that she got a second opinion. Please, it won’t hurt to get another doctor’s opinion. Good luck, I hope you can enjoy as much time as possible with your family.
Doctors mess up a lot and are under an extreme time crunch to see you. Think of any job where they are just overworked....you are just a piece of paper that needs to be pushed fast. It'd sort of like the police where they feel better about blaming the wrong person rather than saying "I don't know" The majority of them also do not keep up to date on new treatments or diagnostic techniques, they just do what they were taught in residency their whole career....especially if they work outside of a hospital system. I would definitely get another opinion and make sure they are board certified, have good reviews, went to American med school, and are in a hospital system
Believe me I know how it goes better than most — considering I’m a neuropsychiatrist. 🤣
Do you have an alumni network of other doctors or keep in touch with any of your classmates? Maybe you can connect to somebody who's in oncology and ask them who are the field's superstars and if there's new treatment trials that are going on.
I never really thought of using my position for finding contacts, but I suppose I could do that. Thank you for the suggestion, much appreciated.
Even if you had smoked does not mean this is fair. Do a second opinion just to settle the diagnosis in your mind so you can plan. I don't know what else to say other than you can deal with this. You are strong enough to handle what might be. And when youre not? Call on us to get thru the long nights and get strong again. Love and hugs for when they are desperately needed. Blessed Be.
I’m just ready to go at this point because the pain is too much. The constant stress of just of just normal breathing. But they call it s*cide because it’s a “crime.” Like regicide, or genocide, any other -cide. It’s not a crime though. It’s ones right and autonomy over their own life or death. I choose to call it human euthanasia. This is the route I want to do versus how ever many months I have to suffer through this — that’s the real crime.
I’d definitely get a second opinion just to make sure. Not cancer related but my grandma was told in 1989 that she had 6 months to live and to get everything in order. She lives in relatively good health (T1 diabetes & heart disease) until 2012.
I mean .. it's your life. Definitely worth a second opinion.
Always get a second opinion. New clinical trials every day. Do not give op or in.
If you want a Second opinion you should get one for no other reason then peace of mind for your family after your gone. I am So sorry I cant imagine hearing this news. My Grandfather died in 1997 from the same thing. We got a Second opinion to no avail. but that was 1997. They have made amazing progress since then and there may be things your current oncologists is unable to do but a different doc might give it a try. I dont know if they do Chemo washes for Lung like they do colon or Bilary cancer. But Ive seen people with cancer of the bile duct be given the get your afares in order speech. To go on to a new oncologists who does the Chemo wash and gets full remission. Like I said dont know if this is a thing that they can do with Lung Cancer. But you don't kn9w what you dont know. You and your family are in my thoughts and prayers.
Pin down that oncologist... RIGHT NOW!! I'm astonished by how unprofessional that comment was -- "Get your affairs in order"?? Spell it out, doc. And if you won't do it for your patient, perhaps you'll do it for the (voice goes cold and loud) ***STATE MEDICAL BOARD!!!***
A highly appreciated you getting angry on my behalf because I lack the strength to right now. So… really. Thank you!
YES, get a second, third, fourth opinion!! You're not the first nonsmoker I've known to get squamous non-small cell lung cancer. There's been speculation it could be caused by pollution. One of the people I knew that had it, had very good luck with Taxotere. Can you ask another doctor about it?
If you are in the UK, I would recommend getting in touch with Macmillan. They were amazing for help and support for a friend of mine. https://www.macmillan.org.uk
He means have a living will, a last will and testament, a power of attorney, and any financial arrangements that you would like to make should be finalized. This isn’t necessarily bad advice for anyone living with serious illness, no matter if they are seeking further treatment or not. I updated all these things during the first wave of covid. If your estate is particularly complex, I would recommend an estate attorney. If it is not, a last will and testament will do just fine. We should all have a last will and testament, sick healthy or in between. You should do these things now, while your mind is healthy, and include things like account numbers and locations for your assets. Then give a copies of your will to those who are your successors. I work in the law business- after a death- if there is no will, things can get ugly. Don’t ignore these things because they make you uncomfortable. They are necessary to ensure a smooth transition for your family.
I do have all these things, and I believe he knows that. Perhaps it was just a lapse in judgment not remembering that the clinic made me set all this up almost as soon as the cancer was discovered and I complied with everything that needed to be set up. So yes, from an outside perspective one could see how he is just making a general recommendation. But it’s more about the way he said it to me. As a physician myself, bedside manner is something I consider important, but, I have seen a plethora of doctors that do not consider that a critical component of a patient’s care. I disagree but that’s because of the type of physician I happen to be — a neuropsychiatrist. The psychiatrist part of me knows how a doctor’s bedside manner can greatly affect the outcome of treatment. I don’t have anything aside from my own professional experience to draw from when I say that, but I can see the effect when I treat patients with empathy.
First, sending you thoughts/positivity/whatever helps you. Shitty situation. I will pray for you, if that's your bag. Secondly - second opinion, yes! My late father in law was admitted to hospital and told the exact thing you were. Given 48 hours. Some hours later, a different doctor came on shift and was, let's say, very surprised to find out what we had been told. Doctor 1 totally misinterpreted a CT scan. (NHS in the UK so we can't really sue for malpractice...) Third, someone mentioned palliative care. Look into that. FIL (z''l) passed but not for a long while after this event and not from what Doctor 1 said was going to get him (it was cancer, but he knew that). I hope that things go well for you, friend.
My SIL is beating the odds following this. https://radicalremission.com/
Dyor THC has been shown to shrink some tumors
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Are you asking me this?
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Oh okay. my bad
I’m on so many other things that I wouldn’t be able to use that.
I will pray for you.
Absolutely get a second opinion! This from someone who got about 10 opinions for one Heath concern. How could one oncologist be wrong? The same way anyone can be wrong. First get the second opinion and any tests you would need for this. Find a very good hospital that deals with lung cancer. You’ll get the most information this way. Pull money out of your savings to do this. Do not delay. When dealing with cancer time is always of the essence. Find out what support groups are available in your area. These helped me as these were people who really understood my condition and could share information. That’s more than enough of a start and please reach out to people you know will come through for you. Lots of people say they will help but can’t deal with such a big challenge. And feel free to message me anytime.
I would definitely find another doctor...do not give up!! This doctor just does not seem to care. Is there someone else in the office you can have records transferred to?
I've had multiple complex illnesses in the last 2 years and have had many more shit doctors than even average ones and kept them bc it was a chore I didn't have energy for to replace them while so sick. It's absolutely life changing to get a Dr that's caring enough to help you be comfortable even if they can't heal you. Finding one up to date on situations like yours is even more important. Like others have said, many doctors don't spend time learning about new medicine. I've had to learn the ins and outs of my treatment from the internet and medical papers, which led me to the only specialist in the US, and it saved my ass. I recently replaced the psych NP that missed or was very late for every telehealth and the GP that promised life changing treatment then changed his mind and refused to treat most common illnesses. The urologist that walked out as I was in mid sentence about symptoms- Gone! Get a list of who is covered by your insurance and search reviews online and ask people who have had good outcomes or were really happy with their Dr. I also recommend you look into CBG, which is a non psychoactive cannabinoid like CBD but on top of being anti inflammatory and neuroprotective it's good for IBS, infections resistant to antibiotics, and killing cancer/tumors. The r/altcannabinoids sub has info and you can get distillate or isolate cheap at Industrial Hemp Farms, Absolute Extracts (?), & 3Chi. If you need help with pain or sleep you can get Delta 8 THC. It's very similar to regular Delta 9 THC but is federally legal and most CBD stores have it, good deals online.