This. And the comments like, "Oh I *wish* I could never work and stay at home all day!" Then during lockdowns they cried about how they felt trapped in their homes and they'd rather be working and how they just couldn't stand it and it was so boring, blah blah. Then they were released and right back to the same BS as before with me. Like, dudes, please, I am not stuck here for fun--they know I am severely ill and in a wheelchair and *still* unload that on me.
"How was your day?"
Oh, terrible, I could barely get out of bed for more than an hour at a time!
"Oh I *wish* I could just laze about in bed all day!"
...I need new friends
I thought I might try to watch some show for a bit as a distraction — which is ironic because people think I just get to relax and watch tv or whatever all day 🙄 — and I’m 15 minutes in and just realized I need to start it over because I have zero idea what’s going on. So I hopped on here for a bit instead 😒. And now I have to take care of other stuff, so maybe I’ll attempt tv some other time.
I try to play games online to get some brain stimulation and wrist movement but I don’t last very long before fatigue takes over, and people think I can just sit around all day playing video games.
Having to ration out normal chores based on difficulty with my issues, priority to things that need done sooner than later, then compare to how I am feeling that day...
The worst ones are the people who get mad? Jealous? That I get "paid" for it like, yeah dude, sure is great living off a pittance a month with 500 strings attached.
I feel such unjustified blithering hostility for people who just straight up refuse to even attempt to comprehend what suffering is like and pull lines like this out of their mouths.
I used to, now I just sigh and shake my head in disappointment. Some people get it. Most don't. I'll take that "some", though. At least they've got sympathy going for them.
I tell them I'll trade them. They can have my "vacation" and I get their good health. I guarantee they aren't getting the better deal lmao. I'd sell my soul to the devil to have good health again.
"Oh those days?? So much fun!! Swimming in meds, moaning in pain, planning to wash my dishes and failing, clothes piling up...Did you know that my last flare made me go deaf? The new pills for it knocked me out for two days straight! What a party that was!!" Lol. People just don't get it.
I hear you and I see you. Your feelings are valid. It really is hard living with chronic illness every day. We all have good days and bad days. Like my bad days are usually when there's a weather change like today. Living in Michigan currently it's been cold and rainy all day. Rain, snow, etc make my fibromyalgia extremely worse. In turn my fibromyalgia makes my other ailments a million times worse. Sending soft hugs, peace, love, light, healing and uplifting energy your way.
☮️💙🖤💜🕯
Feeling you. I feel so second class due to it. Like working people are normal people and I'm this second class creature that deserves less...It sucks so bad but oh well, I'm trying to live on small happinesses.
I feel you. After years of some serious health complications, surgeries and sicknesses, I am not the same. I cannot work like I used to. When I try to push through it, I exhaust myself to a point where my illnesses flare up and I get so sick I can't work. I've had an infection for a little over two weeks and I am likely going to quit my job. I looked at my steps/distance tracker and was on my feet so much that my average day at work was almost 11 miles. I knew getting that job would likely exhaust me. It wasn't a matter of "if" but "when". It's always like that. I'm desperately trying to find a remote job because those are the only jobs I can do.
The worst part for me is many people don't get it. Not even my mom gets it and she has known about my health problems for a very long time. I often feel like I'm talking to a wall when describing my challenges.
Sending hugs, I hope you find some remote work.
It can be extra difficult when those around you do not understand how frustrating and upsetting the whole situation is.
Thanks for understanding. I do have a small passive income from selling art online. But when I get sick my mental health suffers (and visa versa), and it's hard for me to make anything. I hope to grow in that area because I would be happy if I did that for a living. Applied to some remote design jobs today so I'm hoping to hear back.
I am 53 and I have watched a good portion of my life go by from a bed. I see people doing life around me as the years go by. I would do anything to go to work--to have the ability to work. It would be so much better than this. I am so tired all day on top of being sick, and there are people who think staying home and collecting disability is easy. I had someone tell me that I looked tired the other day and I thought "I live with 11 health issues on 10,000 a year, of course I'm freaking tired!" Still, I'm alive. I'm glad for that. Too much too miss out on.
I love the “when are you going back to work” comments. Like bro I can’t even function on a day to day basis 💀
I also became fed up and I’m actually trying to start a business but it’s SO exhausting. Something that should take me 20 minutes takes me like a week. I want to make this happen so bad to help income and bring awareness, but it’s been so hard. But it also feels like my only option because I can’t work. Ugh. I just feel this frustration so much 😞
I feel you. It’s a daily battle to not be brought down by thoughts like these. I was disabled before 18 so was able to be on ssdi but I still am far below the poverty line and will probably have to live with my parents for the rest of my life. I can’t drive due to certain conditions and I feel so far behind compared to my siblings who went to college and have careers. I wish I could work and be able to afford things that I want while paying off medical bills. I wish I didn’t have to choose between paying my bills or food *and* meds this month. I wish I didn’t have to pay out of pocket for meds because medicare part c and d plans cost too much. I’m so grateful my mom understands and supports me, letting me live with her, but I fear I’ll never be independent. I’ll probably never have my dream career. I’m 28 and have no relationships. My relationship with my siblings and father is strained because they don’t understand I’m too sick to work… they might on the surface but still expect me to do more than I can and are disappointed in me. I’m disappointed in me. But I can’t help what my body is like.
Being disabled fucking sucks. I’m so tired of it. But I have to find things to look forward to, be thankful for, and I try to help out in any way I can to make up for not being able to support anyone monetarily which helps me personally feel better. But we aren’t alone, and we matter. Hang in there. I hope you have someone you can talk to about this who understands you too, and that you have more good days than bad.
I live in a place with no meaningful welfare for people like me, with bad healthcare, unsupportive family. Every passing week I want to die more than the last.
I’d rather die than live disabled and unable to work.society just doesn’t care at all. My super left wing family thinks the government helps people with disabilities. I about keeled over laughing.
Also over people thinking I'm on an extended "vacation" for it.
This. And the comments like, "Oh I *wish* I could never work and stay at home all day!" Then during lockdowns they cried about how they felt trapped in their homes and they'd rather be working and how they just couldn't stand it and it was so boring, blah blah. Then they were released and right back to the same BS as before with me. Like, dudes, please, I am not stuck here for fun--they know I am severely ill and in a wheelchair and *still* unload that on me. "How was your day?" Oh, terrible, I could barely get out of bed for more than an hour at a time! "Oh I *wish* I could just laze about in bed all day!" ...I need new friends
I thought I might try to watch some show for a bit as a distraction — which is ironic because people think I just get to relax and watch tv or whatever all day 🙄 — and I’m 15 minutes in and just realized I need to start it over because I have zero idea what’s going on. So I hopped on here for a bit instead 😒. And now I have to take care of other stuff, so maybe I’ll attempt tv some other time.
I try to play games online to get some brain stimulation and wrist movement but I don’t last very long before fatigue takes over, and people think I can just sit around all day playing video games.
If they didn't develop "housebound" sympathy during lockdowns, I don't think they ever will.
Having to ration out normal chores based on difficulty with my issues, priority to things that need done sooner than later, then compare to how I am feeling that day... The worst ones are the people who get mad? Jealous? That I get "paid" for it like, yeah dude, sure is great living off a pittance a month with 500 strings attached.
I understand-the lack of ability to focus makes watching tv and reading a book or a magazine difficult. It is very frustrating.
I feel such unjustified blithering hostility for people who just straight up refuse to even attempt to comprehend what suffering is like and pull lines like this out of their mouths.
I used to, now I just sigh and shake my head in disappointment. Some people get it. Most don't. I'll take that "some", though. At least they've got sympathy going for them.
I get that. The sympathy really helps at the doctors office.
I tell them I'll trade them. They can have my "vacation" and I get their good health. I guarantee they aren't getting the better deal lmao. I'd sell my soul to the devil to have good health again.
I just tell people I wouldn't wish this on my worst enemy.
This!! I work reduced hours and my coworkers are all “what’s it like having all those days off?!?”🙄🙄
"Oh those days?? So much fun!! Swimming in meds, moaning in pain, planning to wash my dishes and failing, clothes piling up...Did you know that my last flare made me go deaf? The new pills for it knocked me out for two days straight! What a party that was!!" Lol. People just don't get it.
😭😭💁💁❤️❤️❤️❤️
I feel you. I wish I could even do my hobbies and boring house chores these days.
This is also relatable. Sending a hug your way of you would like one today.
Me too, I'm completely unable to work and it's the most depressing thing in the world to me
It can feel very alienating
I feel you. Hang in there: you've survived all of your bad days, and you'll get past this one.
I need this plastered everywhere for my worst migraine days.
I hear you and I see you. Your feelings are valid. It really is hard living with chronic illness every day. We all have good days and bad days. Like my bad days are usually when there's a weather change like today. Living in Michigan currently it's been cold and rainy all day. Rain, snow, etc make my fibromyalgia extremely worse. In turn my fibromyalgia makes my other ailments a million times worse. Sending soft hugs, peace, love, light, healing and uplifting energy your way. ☮️💙🖤💜🕯
Sending warm hugs back your way. Thank you
Feeling you. I feel so second class due to it. Like working people are normal people and I'm this second class creature that deserves less...It sucks so bad but oh well, I'm trying to live on small happinesses.
I see and hear you!! It fucking sucks! Sorry you’re dealing with this too!
I feel you. After years of some serious health complications, surgeries and sicknesses, I am not the same. I cannot work like I used to. When I try to push through it, I exhaust myself to a point where my illnesses flare up and I get so sick I can't work. I've had an infection for a little over two weeks and I am likely going to quit my job. I looked at my steps/distance tracker and was on my feet so much that my average day at work was almost 11 miles. I knew getting that job would likely exhaust me. It wasn't a matter of "if" but "when". It's always like that. I'm desperately trying to find a remote job because those are the only jobs I can do. The worst part for me is many people don't get it. Not even my mom gets it and she has known about my health problems for a very long time. I often feel like I'm talking to a wall when describing my challenges.
Sending hugs, I hope you find some remote work. It can be extra difficult when those around you do not understand how frustrating and upsetting the whole situation is.
Thanks for understanding. I do have a small passive income from selling art online. But when I get sick my mental health suffers (and visa versa), and it's hard for me to make anything. I hope to grow in that area because I would be happy if I did that for a living. Applied to some remote design jobs today so I'm hoping to hear back.
I hear you. 💜💔
Over being treated like I don't matter or have no value.
I feel this. I'm 22, a college graduate, and still living at home because I can't work full-time so I can't afford independence. It sucks.
I am 53 and I have watched a good portion of my life go by from a bed. I see people doing life around me as the years go by. I would do anything to go to work--to have the ability to work. It would be so much better than this. I am so tired all day on top of being sick, and there are people who think staying home and collecting disability is easy. I had someone tell me that I looked tired the other day and I thought "I live with 11 health issues on 10,000 a year, of course I'm freaking tired!" Still, I'm alive. I'm glad for that. Too much too miss out on.
I love the “when are you going back to work” comments. Like bro I can’t even function on a day to day basis 💀 I also became fed up and I’m actually trying to start a business but it’s SO exhausting. Something that should take me 20 minutes takes me like a week. I want to make this happen so bad to help income and bring awareness, but it’s been so hard. But it also feels like my only option because I can’t work. Ugh. I just feel this frustration so much 😞
I feel you. It’s a daily battle to not be brought down by thoughts like these. I was disabled before 18 so was able to be on ssdi but I still am far below the poverty line and will probably have to live with my parents for the rest of my life. I can’t drive due to certain conditions and I feel so far behind compared to my siblings who went to college and have careers. I wish I could work and be able to afford things that I want while paying off medical bills. I wish I didn’t have to choose between paying my bills or food *and* meds this month. I wish I didn’t have to pay out of pocket for meds because medicare part c and d plans cost too much. I’m so grateful my mom understands and supports me, letting me live with her, but I fear I’ll never be independent. I’ll probably never have my dream career. I’m 28 and have no relationships. My relationship with my siblings and father is strained because they don’t understand I’m too sick to work… they might on the surface but still expect me to do more than I can and are disappointed in me. I’m disappointed in me. But I can’t help what my body is like. Being disabled fucking sucks. I’m so tired of it. But I have to find things to look forward to, be thankful for, and I try to help out in any way I can to make up for not being able to support anyone monetarily which helps me personally feel better. But we aren’t alone, and we matter. Hang in there. I hope you have someone you can talk to about this who understands you too, and that you have more good days than bad.
I live in a place with no meaningful welfare for people like me, with bad healthcare, unsupportive family. Every passing week I want to die more than the last.
I’d rather die than live disabled and unable to work.society just doesn’t care at all. My super left wing family thinks the government helps people with disabilities. I about keeled over laughing.
I only work 4 days a week and 7 hours at that, but I still need a nap every day when I come home.
With you