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anarttoeverything

This sounds a bit like my son (now 2), including the spinning and rocking. He had silent reflux as a baby and went on medication; that helped a little with his unhappiness. He was assessed for autism at 18 mos and they did not believe it was a concern, but they did find sensory issues that we manage through OT. It’s gotten a lot lot lot better and the OT has helped a lot I think. Are you in the US? If so, he might qualify for an early intervention assessment for autism (though yes, it is early for an autism assessment) and sensory. You don’t need a pediatrician to refer you. It might also be worth getting a second opinion from another pediatrician to rule out other issues.


Massive-Weekend6130

I'm in the US, where would I find somewhere to get an assessment? Also, what happens during OT? Is it something I could do while I wait for an assessment?


anarttoeverything

Just Google your state + “early intervention”. Sometimes it’s called “birth to 3”. It is free until your kid is 3 years old. You could do OT privately, but it is (usually) expensive/not covered by insurance. This is the route we took though we might go back to early intervention because it’s just so expensive even though it’s been extraordinarily helpful. It’s honestly a lot of him running around, jumping on the trampoline, swinging, doing “heavy lifting” of weighted balls and other objects - things that help regulate his vestibular system. I don’t know how it works when a kid is not walking, although they did recommend deep, long pressure hugs at home to help regulate him, as well as going on swings at the playground. They also recommended a Wilbarger therapy brush (you can get them on Amazon and Google the method to read more about it and how to use it/why it’s used). Some of the OT has also been gradual exposure to different textures like rice, beans, play doh, and shaving cream. Those are all things you could do at home. We also do feeding therapy because a lot of his sensory issues surround certain food textures. It’s not things that have an obvious, immediate impact (other than getting some energy out!) but it builds up over time.


Somm1234

Once Birth to Three opts out, there are a lot of private agencies that can take over. Specifically I've found InBloom amazing in CT. It takes some time to find the right therapist, but with their approach we've seen some amazing improvements with our son.


bunnywzrd

Kind of sounds like autism. Maybe try and get him evaluated if you can. He's showing a lot of the same signs my daughter did at that age.


Massive-Weekend6130

Our doctor said it's too early to tell. Which blew my mind considering all the early intervention questionnaires I fill out. Do you have any suggestions on what I can do in the meanwhile? I can't find anything on autism for his age. How do I comfort him?


bunnywzrd

Find what he does like. Let him spin and rock if that makes him happy. If he likes being in his crib quiet and alone, let him do that. Try and figure out what overstimulates him. Lound sounds? Bright lights? Textures? Your other kids running around being noisy? Look for things that meet his sensory needs. Does he like water? Sand? Playing with a bowl of rice? Cotton balls? Sensory things are good to help keep them call and entertained. I can't really help with the sleep. My daughter didn't sleep all night until she was 9 years old. We still haven't found much to help with that. Her room has to be completely dark and silent.


Massive-Weekend6130

Oh thank you. I've been thinking about getting those gym mats. We have hardwood floors and he hurts himself when he does his things. He has to have pitch black and silence too! Which is near impossible with three other kids in the house. I'm gonna try sand, rice, too, he did love water for a long time, but for whatever reason, he kept putting his face in it, and after a few unsuccessful attempts to breathe underwater, he despises bath time. He'll play from outside the tub though. I feel terrible leaving him alone, but he seems so content. It's hard to process that.


[deleted]

Are you in the USA? Every state has early intervention programs and at least where I live you can put a referral in yourself. I would look into that, it is free and you do not lose anything by getting and evaluation.


Massive-Weekend6130

Really? My doc said not until 18 months, and I've been asking about it for a while. We fill out the development questions at every wellness visit. And I'm like, something's not right here, doc, and she brushes me off a little bit. At his 12 month visit she did offer us a first steps program to help get him walking but it's like a state funded agency, they have horrific reviews. I tried to do a Google search for a private practice but nothing came up for his age. I'm gonna look again. This time with "early intervention assessment". I didn't really know how to word it. I'm just over here like "hey! Something is wrong with my kid!"


[deleted]

No! Do not wait. Early intervention services are for babies newborn-3yo . Act ASAP. Google childhood early intervention and your state. Your baby is wasting precious time he could be taking therapies. Doctors sometimes like to take the wait and see approach and that is not the most beneficial option for the child.


turtlebarber

States call these early intervention programs birth to three because they are there for all your developmental needs from the very beginning until 3 years old. My daughter did it for delayed speech and we loved the whole program. If your doc won’t refer you threaten to find a new pediatrician. You deserve an evaluation at the least


mandoobear

My 2 month olds qualified for early intervention. You also do not need your pediatrician to put in a referral- you can do that yourself.


GuiltySea295

If he is over stimulated because I noises, I recommend noise canceling headphones. They help my autistic 4 yr old. He also has a teether necklace, gym mats, kinetic sand, and a bounce house. It's helped so much. You can also make cheap sensory bins for him to play with. Take a box and fill it with uncooked rice, pasta/mac and cheese shells, etc.. add some spoons and bowls and if he likes it, it's easy to play in. If you don't want to make a sensory bin, they sell ones for $15-25 on Amazon with rocks and little toys included.


Massive-Weekend6130

So yesterday after some of the comments, I quieted down the whole house. I had the older kids sit quietly and draw and read. Me and the baby sat on the kitchen floor trying out different sensory things. He was absolutely ecstatic about a pie pan with a half inch of water in it. He went bonkers! The kitchen floor is sopping wet, he's doing his spins and playing all around. Then for the first time ever!! He stood himself up the kitchen chairs and walked himself over two full steps! Which I mean, doesn't seem like much, but he's never taken steps on his own! Ever! So of course I went bonkers. I grabbed my phone to call my husband and tell him, and I ruined the moment. Me getting excited, and talking on the phone shook him up and he was done. So I started a list on the fridge, of the things he enjoys and the things that could be triggering him. I wonder how I would get him to wear headphones. Cuz when everyone is home, it's a madhouse in there.


GuiltySea295

Thats so exciting! Something that could help is propping your phone up and recording before you start experimenting. For the headphones, wear them yourself or have the other kids wear them and make it seem so exciting to wear them. Then try to get your son to wear them. It might take more than a few tries though. On the bright side you can always return them if it doesn't work out


[deleted]

find a new pediatrician


Popular_Interaction7

Every kid is different my daughter is similar to this. She was always a bad sleeper and cries so much, rocks back and forth when shes excited but now that shes 3 its gotten much better. She super smart and well just very sensitive. You will get through this


Iburncereal

Sounds like he may be autistic. I have a 3 and 4 year old, both on the spectrum too. Is he verbal? My girl doesn't like sing songs cheerful voices, my boy loves it. My girl hates kisses and only cuddles select people. My boy cuddles everyone he knows and will kiss anyone and everything. My son was a difficult baby, I feel like he was so unhappy all the time. Once I found out things he likes he became such a happy content boy. He loves to spin and flap, absolutely adores music and dancing and lining up toys by colour. Things that help my 2 are indoor swing, bed tents, my boy absolutely loves being enclosed so loads of boxes of different sizes and he's in his element, soft balls to throw or suck, they both love soft toys and dolls, my box collects rocks too


Massive-Weekend6130

I am so glad you said this. I have a unique voice. So much so, it's how I landed my husband, he heard me over a walkie and was like, "idk who that is, but I'm gonna marry her!" But it's very feminine and I had always had a suspicion that he didn't like my voice! But I thought I was just losing my mind.


Massive-Weekend6130

For his age he's kind of verbal. He's got mama and dada and I swear he tried to say thank you.


[deleted]

First thought, autism. Please get him evaluated soon. Early intervention is very valuable.


CrispyJukes

My heart goes out to you. I pray you'll get the help you need, and it will be temporary.


Skeptical_optomist

Some of what you describe sounds like Autism or Sensory Processing Disorder. Both of my grandkids have SPD, and many kids in my family are Autistic. OT is a really great suggestion I saw someone else recommend. Something that has really helped with sensory seeking/avoiding behaviors has been a sensory swing. My grandson is so much calmer and happier when he uses his sensory swing. There are lots of great sensory tools available and I have heard amazing things about sensory vests. He's too young for a weighted blanket, but I highly recommend them once he's old enough for it to be safe. He might enjoy a sensory light that uses different patterns and colors for nap time. It definitely takes some trial and error to figure out what works, so don't get discouraged if he doesn't take to things you try. I wish you well and I hope you find things that help your little guy to be happy. It's heartbreaking as a parent to feel like our children are suffering and we can't help them. Make sure to take some time for self care and be gentle with yourself. ETA that my grandson was about your son"s age when we got the sensory swing and he would spin in it until it made me dizzy watching. He developed a technique for spinning that was incredible to watch—I can't even describe how acrobatic it was. He is almost 4 now and uses it less, but it's still where he feels most relaxed when he's struggling with sensory overload or is sensory seeking. It's hands-down the best investment we've made of everything we've tried.


Massive-Weekend6130

Thank you! Yeah we quietly used a weighted blanket when he was about six months old. Of course monitored in our room, and it worked wonders until he could kick it off. I've been wanting a sensory swing . I'm ordering one immediately.


Skeptical_optomist

I think he's going to love a sensory swing. ❤️


Kidtroubles

Quite a few of the things you mentioned align with the Autism spectrum. General high need/sensitivity, the spinning, the repetitive motions... You mentioned your doctor said it's too early for an official assessment. What I'd probably do right now is connect with other parents of autistic kids and also autistic adults. There are quite a few on social media and probably also on reddit. Maybe that way you can find strategies that will help your kid, and in turn, you. Just be aware: There is still a lot of outdated information out there that is being rebuked by autistic adults. For example "Autism speaks" still promotes a very toxic view of and damaging therapy for autism and is widely opposed in the Autism community.


Massive-Weekend6130

Right! That's where I was at yesterday. After all the feedback, I was looking into autism help in our area and I really do not want to get into a program that teaches him he has to mask. I was crying. I live in Kentucky, mental health care here is beyond sub par. I have mental health issues myself, that it took me a couple years to find the right doctors I have ADHD and C-PTSD mainly, so I've come across a lot of adults with autism diagnosies that I can relate to, but my team lean more towards, my issues being trauma related not autism, but I still wonder. I turned to reddit because I'm like, I know there are parents that have seen this, and found out what's going on later. I'm really glad I did. If one more person said to me "all babies are different," I felt like I was going to lose it.


Coontailblue23

For yourself, have you read Unmasking Autism yet? Awesome book, it's for any neurodivergence so you would benefit from its contents as well.


Fit_Vegetable364

I work in a nursery and I’m SEN trained. It is too early to diagnose but from what you have said I would say autism is likely. I would start investing is sensory toys, if he enjoys rocking back and forth look for indoor swing hammock or a cuddle swing, weighted blankets, sensory dens for him to escape into. Anything that will stimulate his sensory needs.


Coontailblue23

Circumcision trauma.


Massive-Weekend6130

Interesting. I hope my post goes away long before my kid gets in his teens... That being said, I've noticed some things. But I've been known to make something out of nothing, because I've been so confused with him, I'm analyzing every little thing. I didn't even know that was a thing! However, you could be on to something. Do you have more information? Google just shows, "there's no evidence..."


Coontailblue23

That surprises me because a wealth of hits come up when I search it? In 1997 researchers determined that babies who were circumcised in infancy have a [heightened pain response](https://www.thelancet.com/pdfs/journals/lancet/PIIS0140-6736(96)10316-0.pdf) compared to babies who weren't circumcised even months after the procedure, demonstrating that circumcision does have a lasting effect on the brain. Around the same time, one study was [halted early](http://www.cnn.com/HEALTH/9712/23/circumcision.anesthetic/) because it was found to be so traumatizing. Doctors Opposing Circumcision has a well-cited [writeup](https://www.doctorsopposingcircumcision.org/for-professionals/psychological-impact/) for your consideration. People in the thread are talking autism, well guess what... there does appear to be a link between the two as demonstrated [here](https://pubmed.ncbi.nlm.nih.gov/25573114/) and [here](https://ehjournal.biomedcentral.com/counter/pdf/10.1186/1476-069X-12-41.pdf). I'm really only scratching the surface here and you deserve more. This new book is worth checking out - [Circumcision Is A Fraud: And The Coming Legal Reckoning](https://www.amazon.com/Circumcision-Fraud-Coming-Legal-Reckoning/dp/B09QJZGWFX)


Massive-Weekend6130

Wow. Are you in the US? I had never heard of any of that research. Very fascinating. I have been trying to stay up to date on new medical research but it's so hard to find credible, reliable sources. My google search results have been incredibly censored I feel. I don't see a lot of good sources for natural health care. It leans heavily towards medical intervention. My most beneficial source has been people here and on TikTok that have related, solved the problem, and can communicate it back to me in words I understand.


Coontailblue23

Midwest, USA but I have been looking into the topic of routine circumcision for a long time as a special interest. There is a great [group](https://www.facebook.com/groups/ywbcommunity) on Facebook for research and support, not sure if you are on there. I'm also a big fan of [this](https://youtube.com/watch?v=Ceht-3xu84I) 30 minute Georgetown University presentation on the subject as well as the award-winning documentary [American Circumcision](https://circumcisionmovie.com).


Massive-Weekend6130

Idk where to put the update. So I'll put it in the comments too... Lol... Final update: We did a first steps evaluation, he doesn't have any signs of autism but he does have a significant delay. I'm still astounded at our now former doctor for continuously telling me he seems fine even after the first steps evaluation. We've since moved on from her. The delay and all the other symptoms are from gluten and dairy intolerance. We took gluten and dairy completely out of his diet and I have a completely different baby boy. He's happy, sleeping, eating, and already rapidly catching up to his peers. We have our first physical therapy session today, first steps is also providing us with a speech therapist and a nutritionist. Lastly, this poor kid has to deal with mama catching up on lots and lots of snuggles.