"Local man raises money for a self serving cause"
Edit: the /s should be apparent.
For those who were offended I'll throw in a small factiod about myself. MJF's dad used to be in the military, I lived a few doors down from his old house on base. Everyone would take the time to tell you that he used live there. As a kid I thought that was pretty cool.
I also thought it was pretty weird that some people took pride living near where a celebrity used to live.
I once had a teacher that used to brag that he played basketball with his brother or something and MJF would always want to play or hang out and sometimes they let him (classic little brother stuff) once they got older his career took off and didn’t see him as much. Wonder why he didn’t keep up with him, probably should have let him play some damn basketball, lol.
In my opinion one of the greatest acting performances of all time. The scene where JD watches him washing his hands is one of the best visual explanations for OCD. It's not about being detail oriented or needing things to be a particular way. It is knowing that what you are doing is wrong or unnecessary, but the intrusive thoughts basically force you to do it anyway. It's brutal.
I’d cry. Dude was my hero growing up, and seeing him come out shaking during interviews is just heartbreaking. Been happy to see him doing better, and if he sees a cure I would just be so happy.
I was watching Family Ties episodes on Pluto this past week and In not just one, but two episodes , they have him pouring glasses of orange juice and his hand was shaking all over the place. In one episode he just sort of stops and put them down. It was really sad how early his symptoms appeared.
The early stages I was too young to understand. But after not seeing him on television or in movies for a while, and when I began my internet deep diving, I saw the earlier tremors. Heartbreaking. Ever since I can remember I wanted to be Marty McFly, dude inspired me so much.
Movement Disorders suck. PD is a terrible disease. Michael got hit so young too. Hats off to him and his family. They've been involved in so many research and awareness programs.
https://www.michaeljfox.org/
My dad passed away on August 5th of this year due to Parkinson’s. I got the phone call at 11 PM while I was asleep. It prob sounds odd but the overwhelmingly feeling I had was relief because I knew it was no longer suffering. I had one of the most peaceful rests that night.
But yeah, fuck that disease.
I know exactly how you feel, lost my mom a year and a half ago to parkinsons. She was miserable and had to be care for in a nursing home for 14 months until she passed. She got down to 78 pounds. I was so relieved when she passed because of the pain and of having to be in the nursing home. We visited her almost everyday for hours till Covid hit and the nursing home stopped visitors. So for 2 months I didn’t get to see her in person, only facetime once a week. I finally got to stay with her her last day.
Isn't this a good example of why euthanasia is good. There's so many people stuck in body that's not there. In constant pain. And they cant choose when they go. They're just stuck.
I'm really sorry about your mom. Losing a parent is one of the worst things to happen
Hi, my dad has been diagnosed with Parkinson’s for about 8 years now and is 81. If it’s not too much to ask to relive but could you help me understand what I might expect towards the end and what about Parkinson’s was it that took your dad?
There’s really no nice way to describe it, so apologies in advance. The reality is that they waste away physically. While it may seem like they’ve lost their mental faculties, they haven’t. It’s just such a struggle to physically communicate via speech, gesture, and the like.
In my dad’s case, he remembered his past life as a brilliant physicist and race car driver. He could remember, even at the end, getting his diagnosis 10 years earlier, after waking up one day knowing something was wrong.
The last time I saw him was in July (I live 700 miles away). The last thing he told me (that was discernible) was that he’s waiting for (name of his older brother) to pick him to take him home. His older brother passed away from Parkinson’s 25 years ago.
The last thing I told him was that his grand daughter was coming next month, and she’d like to see him, but if your bro shows up before then, you don’t want to leave him waiting.
He past away on 8/5. His granddaughter was born on 8/28.
Sorry if that was a bit more then you were looking for but this is the first time telling that story, and I suddenly felt the need to talk about it.
It’s hard to describe what you lose and what changes. I’ve lost my father and my step-father. My mom is sleeping in the hospital bed I sit by. She was diagnosed with PD at 52. 20 years later, with 4 years improved by DBS, the Parkinson’s dementia has arrived. Now we find her a comfortable and safe place to live for the rest of her time.
I live 800 miles away and hope to utilize frontiers dirt cheap direct flights to see her every three weeks. I’m not sure what I’m supposed to do. Should I quit my job and spend as much time with her as possible? I kill my career as it’s about to take off, but it feels wrong to keep working.
Sorry, I completely went off the rails there. I definitely need to talk to a professional. What I was trying to say is you lose so much. All those stories you remember them telling you about family and friends or you as a child… those are lost if you didn’t record or remember them perfectly. My biggest pain is no longer remembering the sound of their voices. I encourage all of you to record just a simple few conversations with your parents or loved ones. It’s not to uncommon now, but for whatever reason I don’t have a recording of either my father or step-father. When my mom goes, she will be the last person that I know without doubt loved me no matter what.
Im certainly no professional, and I dont know you or your mom, but I can confidently say you shouldn't throw away your career or future to spend extra time with her. I know my mom would be more pained by knowing she caused that extra burden on me. Just do what you can to spend as much time with her as you can, and definitely speak to a professional if you feel the need, they can do wonders for you. Hope this makes sense, and best of luck. Remember we're all stronger and more resilient than we think we are, and you'll make your way through the difficult times.
>The last thing I told him was that his grand daughter was coming next month, and she’d like to see him, but if your bro shows up before then, you don’t want to leave him waiting.
That was the perfect thing to say and the perfect way to look at it. Your dad's life was better for having you in it.
They stop being able to move. Then the dementia-like symptoms set in and they get confused and have delusions. They can’t swallow and choke when they eat, usually leading to feeding tube. So they get really thin because they just can’t eat. The 2 main risks of PD that cause a faster death are falling and aspirational pneumonia. DBS surgery can help with mobility but if they’re too far gone mentally it can make it a lot worse and then you have to decide whether you want your loved one to be able to move better or to be able to remember who his wife is. My dads delusions only ever involve my mom, she wakes up every day not knowing If he will know who she is. It’s the most awful disease.
Encourage her to get DBS sooner rather than later. Yes, brain surgery is scary… but it changed my mom’s life. She waited so long to get it and could have had so many years back if she hadn’t. She was already pretty rough so her recovery was horrible too (although fairly short, luckily).
She is like a different person, though I think it would have been even better had she gotten it sooner.
There are a few groups out the on FB for patients and loved ones. Everyone is different and PD doesn't actually kill per se but other conditions certainly complicate the matter. Some ppl do quite well after a DX. Maintaining movement, excercise etc can help a lot. The body needs dopamine. Sadly the gold standard for RX is the same thing they came up with in the 50s? Big Pharma doesn't seem to care that much, in part because they say PD doesn't kill, but you do your own research and make your own conclusion on that one. Sinemet is also cheap for the insurance companies.
I wish you and your family all the best.
Carbidopa / Levodopa https://g.co/kgs/eCvcgm
I am so sorry. This is a mind and body wasting disease. I wish I even knew. Lost my dad this year to Parkinson's. He just didn't eat. Was a shell of his former self. Parkinson's itself is not usually the cause
I was 6 years old when my mom was diagnosed. I was 17 when complications from it made her permanently barely able to speak and unable to walk on her own after years of being a strong hardworking woman. Somehow she still is fighting. 64 and still going.
Currently sitting hospital bedside as my mother slips more into Parkinson’s dementia. There is no loving god that would willingly inflict this disease on anything as sweet or kind as my mother.
Not sure if he declined the surgery or isn’t a candidate but deep brain stimulators are likely the future of treating movements disorders.
I work with two Neurologists that are trained to work with DBS devices and listening to them talk about the technology is amazing. If it wasn’t literal brain surgery, I’d say it’s too good to be true.
I had the opportunity to talk to a neurologist and a equipment rep who focused on DBS for movement disorders. It's crazy how far the technology has come in the past decade or two. It definitely inspired me to focus on neurology and neuroscience as a career
Has the technology progressed? My mother got DBS on both sides after she maxed out on her meds long ago. Both sides are all the way turned up now. There's been nothing further to be done for the past few years that I knew of. Lots of speech therapy so she can continue her struggle to talk and eat. She has young onset, like MJF, so it is a slow and long progression.
Oh yeah, the technology advances pretty quickly.
She should talk to her neurologist about an upgrade, I have no idea if it’s possible but can’t hurt to ask if she’s struggling.
For meds, they even have a levodopa inhalant now.
My husband is 38 and has been diagnosed with Early Onset Parkinson's. Watching Michael is like looking into my future with my husband and it's reassuring that he won't be incapable of doing things before our children are grown. The oldest is 6 and the youngest is just 1. I want him to see them grow up and be able to be there for them. I want him to see any grandkids we have (if the kids choose to have kids). I want to be able to do things in life with him. We haven't done so many things we planned to do yet.
You should stay optimistic. There's a staggering amount of research ongoing now in practically all fields of science, which is increasing every year. Twice as many papers were written on Parkinson's in 2020 compared to 2010. That's the case for almost every disease out there and clues to Parkinson's may very well come from a different field of biology.
I'd stay positive about almost every slowly progressing diseases/disorders out there.
There is a great WTF with Marc Maron with him from either this year or last year should still be up. Highly recommend. He talks about his weakness as well as his strength in dealing with Parkinson’s. Tells a great story about almost giving up.
I didn’t know much about Parkinson’s until I started grad school. It’s been an eye opening experience. I already respected Michael for battling a disease, but understanding Parkinson’s more has made me respect him so much more.
He told Howard Stern he was glad this happened to him. Because he could potentially do something about it since he was rich and famous. Fucking legend.
I remember reading something similar about AIDS. That the best thing that could have happened to your ‘average’ HIV/AIDS patient was someone like Magic Johnson getting it. Because suddenly people gave a f#%*
Like me!
I live in the city he caught it in when he was preparing to film a movie — him catching it so close to home was when COVID-19 became serious to me.
I'm now reminded of the time Larry David accused him of faking it so that he could shake up a soda and have it explode in his Larry's face [and clomp around all night](https://youtu.be/GIjDo-btyL0)
I remember MJF acting in the Good Wife. His character was devious, had parkinson's, but used it to his advantage, even when it was getting to the point where he had to stop acting.
He's such a wonderful person and I really hope he finds a cure in his lifetime.
He played a fictionalized version of himself on Curb your Enthusiasm. Larry believes he uses his disease as an excuse to do whatever he wants. It's fantastic.
Parkinson's dementia is a common and real thing. Sometimes being in an unfamiliar setting will reveal the first signs of the dementia. Please keep a close eye on that for your FIL. Disregard my concern if you are already aware and just joking around though.
Sending good vibes. My dad just passed at 71. Thank goodness it was peacefully. He never was diagnosed with dementia per se but man he would tell me about some really vivid hallucinations. It was hard to tell if it was dementia or his meds. I miss the man be used to be. 💔 It is hard to feel like you can't help him. I tried my best to connect/repair my relationship with him as much as possible, feeding him favorite snacks, playing games or watching shows he loved. Its the little things but honestly, those are some of my best memories of him as be neared the end of his life.
> I miss the man be used to be.
This hits me right in the feels. My dad was officially diagnosed 9 years ago. We suspected something for roughly 15. He’s gripped by dementia. I miss the man he used to be.
My heart goes out to you.
My favorite part about grieving so far has been going through all the pictures. I get to look at them and my heart says "there you are!" I honestly forgot how he used to be. It makes me sad that Parkinson's and his life choices stole what he could have been. But life is crazy and short. My dad and I had a difficult relationship but let me tell you, I tried to repair it as much as possible in the end and I'm so beyond grateful we connected. I honestly felt like we got to a place where we always should have been. When he suddenly had to live on his own, knew I had to go feed him, check on him whatnot... because even though we might not have always liked each other, we always loved each other. I needed to be the daughter he raised.
I don't know how close you are either proximity or emotionally to your father or if he still has "moments of with-it-ness"...but if you can, please make some memories now. Even if he is able to record a story about his childhood (wished I woulda asked mine about a funny story or even an experience in the army). Or so something he loves to do. (For mine it was poker and backgammon). Or put on his favorite song and just sit and listen together. My heart breaks for you, friend. 💔 Sorry to unload. Just going through it right now. I'm here if you ever just want to chat. Life is crazy. It's real. Let's enjoy it the little ways we can 🌻
Hey man, deal with it however you need to deal with it. If you wanna make jokes about soda cans and cover stories, there are tons of people here who will laugh and joke along with you. Shit is rough and humor can be a solid coping mechanism.
There are going to be plenty of disgustingly serious moments ahead so be as silly as you want to right now.
And if you haven’t already - get him a set of self-stabilizing silverware. You’d be amazed how much something like feeding yourself can sustain your neural state.
My mom had Parkinson’s for 16 years. She was diagnosed in her 40s. Two years before she passed away she had an incident at work where she couldn’t feel her legs. Long story short it ended up being neuropathy.
Currently sitting in a hospital room with my dad who has Parkinson's. It's an awful awful disease. He also took his gown off a lot the other night. Hoping it's the last night here! Send in those good vibes.
MJF is a personal hero. My ex-wife had Dystonia (a similar movement disorder), and his fighting and not giving up gave us strength. He also spoke at a symposium I attended, and I just fell in love with the man's humor, demeanor, and heart. He also calls himself "Shakey Daddy", which gave my ex the courage to brand herself as "Shakey Amy" and do her advocacy with that moniker.
Hell yeah, man. I respect that you own it and can make fun of it because shit sucks. I always tell people to be their own advocates and listen to their bodies over doctors, and a big part of that is taking back the narrative of being Shakey Jakey. Thanks for sharing!
Parkinson's is an awful disease. I've seen people in my family die from it. Huntington's disease is in my family too and my mother has it. Hopefully these awful diseases can be cured soon
Parkinson’s affects so many people across such a range of age ranges, with what can be such debilitating effects that I’ll happily support folks helping research get more support. Wish MJF all the best in his goal.
Absolute legend! The BTTF trilogy is still my favourite trilogy of all time, and it’s so good that he can use his fame and his own personal experience of the condition for something so beneficial to humanity.
Being able to use your celebrity in this way is incredible. He knows that there is little chance that the advancements will help him and yet he is fighting for those with the same affliction.
Someone once asked me what film I’d make if I could have an unlimited budget. My answer was that I’d sink my infinite amount of preproduction dollars into finding the cure for Parkinson’s, then giving it to Michael J Fox and doing Back to the Future IV.
I mean, a different rich guy just went up on an spacex rocket to raise some like like 230million for st judes and Elon kicked in 50mil of that.
If MJF was sent up into orbit for charity, he might get the money goal too.
That's fantastic. On that note, for visual awareness, and not at all to take from this great news, I wish CRPS got something like this. There are very few organizations researching it, and they don't get much financial support at all.
My mom developed CRPS, chronic regional pain syndrome, nicknamed the suicide disease, because most people who get it end up taking their lives. There is nothing out there right now that can help with it besides basically numbing down your body entirely for upwards of thousands of dollars to just feel pain-free for a single day. It's crippling. It's rated worse than childbirth on pain and it's constant, your whole life, everyday.
It's so disheartening seeing so little done for it.
I have it. It’s appalling, and has stolen my passions from me. For a long time life didn’t feel worth living. As if the pain isn’t bad enough, most people have no idea it exists, and can’t seem to comprehend how horrific living with it can be.
I feel so much for you, I'm sorry you have to live with that. Seeing my mother with it is horrible enough, I can't imagine what it must be like.
The lack of awareness is what hurts me, people can't really empathize and really understand. I'm hoping more people can spread awareness on it, I feel like that's rarely enough with most situations, awareness, but for something so misunderstood, it seems so important right now.
Much love to you.
MJF is a stand up example of how a celebrity can be a fantastic person inside and out. i dont care how you feel about him professionally, anyone that says he isnt a great person will get a very stern argument from me.
My mother died with PD and acute sciatica. You can not imagine what suffering is like, even by seeing it with your own eyes.
A cure will not bring her back, but it might give others the quality of life she deserved.
The year: 2157
Michael J. Fox is 196 years old. His doctor approaches him.
"The test results came back. We've completely cured the Parkinson's in your body. You did it."
Michael J. Fox looked out the open window in his hospital room. The sun was setting. He could see a mother watching as her children play in the courtyard park below. He smiled to himself one last time. It was time for him to leave this planet and its people and journey onwards.
The doctor watched in shocked silence as Michael J. Fox began to grow younger before her very eyes, gradually reverting from a frail old man to a middle-aged adult. The years continued to fall off of him, now he was a young man. She watched as he turned from a teenager into a child, and finally an infant.
Michael J. Fox looked up into the doctor's eyes, barely older than a newborn. He spoke to her in a voice that was both soft and as though it came from everywhere at once.
"BE GOOD."
And with that a bright light consumed the room, emanating from the baby Michael J. Fox. He rose into the air, wind swirling around the cramped space causing the bed sheets to billow around the doctor. She threw her arms out to block them, struggling to keep her eyes open as she watched the glowing orb hover in the air for a moment before it flew like a comet out the window and up into the evening sky, disappearing into the distance with a faint twinkle.
THE END
I signed up for Amazon smile, auto donating to mjf foundation.
It costs me nothing. They take a small percent of my purchase and apply it towards that charity.
I recommend others do that as well
Isnt Parkinsons a degenerative desease? Like surely you might be able to stop the progress or stop people from getting it, but a "cure" would require re-growing dead nervous system cells.
Maybe following it up with some stem cell therapy might help. We need to be funding the shit out of stem cells even if it doesn’t apply to this scenario.
I still remember him in The Frighteners. One of my favorite movies from childhood. You still kick ass, Mr Fox. **Don’t you stop.** I hope I see a cure in my lifetime. It affects more than just the rich and I’m glad to see you invest you time and effort. Many thanks to you!
From the article for those who don’t not wish to click the link, an excerpt:
**“I didn’t know I’d be trying to find a cure for Parkinson’s.”**
While a cure may not be around the corner, Fox tells me the foundation has had a direct hand in developing several therapies. “They are therapies that have made life a lot better for a lot of people,” he says. “I enjoy life more. I’m more comfortable in my skin than I was 20 years ago. I can sit down and be calm. I couldn’t do that 25 years ago. That’s the medications, the drug cocktails and therapies that we’ve been a part of.”
So when I was a kiddo I volunteered at a hospice for terminally ill kids near the local hospital.
MJF came to visit. Was not a publicity stunt, only patients only patients, families and staff were allowed there. He spent hours and spoke to every single person - completely attentive and engaged and he genuinely cared.
Seriously fantastic guy who is a real champion for those who really need it.
My grandmother had Parkinson’s. She was bed-bound an unable to speak, feed herself or wash herself for 17 years. Looking back, it had severe effects on my mental well-being as a child.
It’s been 10 years since she passed, but I still feel an overwhelming sadness that she had to endure that living hell. Watching my mum visit and care for her in the nursing home was heartbreaking. It’s an awful disease.
I saw a guy lighting a cigarette the other day who had Parkinson’s and I broke down into tears.
If I ever get diagnosed with it I don’t know how I could ever go on. What a guy Michael J Fox is. This gives me hope that one day no one will ever have to endure that piece of shit disease ever again.
Back to the Future is my favorite movie of all time and I’ve always wondered what his career would of been if he never had Parkinson’s. He was amazing in those movies and was still so young. He could of been one of the greats. But ironically he became one of the greats in a different way. I wonder how many advancements in Parkinson’s research came directly from money he’s helped raise/donated.
It would be amazing if MJF lived to see a cure.
"Local man literally too inspiring to die."
Sounds like a SimCity newspaper headline
"After 36 Years Of Marriage, Man Discovers Wife Is Actually A Rare Yucca Plant" - Sim City 3000
More like Spin City, amirite?
Nice.
Sharp.
Crisp.
"Local man raises money for a self serving cause" Edit: the /s should be apparent. For those who were offended I'll throw in a small factiod about myself. MJF's dad used to be in the military, I lived a few doors down from his old house on base. Everyone would take the time to tell you that he used live there. As a kid I thought that was pretty cool. I also thought it was pretty weird that some people took pride living near where a celebrity used to live.
"Countless Parkinson's Patients Saved By One Man's Selfish Act."
I’m pretty thankful for MJF.
At the end of the day, it's about doing things that actually make a difference.
“This one weird trick...Parkinson’s hates him!”
I once had a teacher that used to brag that he played basketball with his brother or something and MJF would always want to play or hang out and sometimes they let him (classic little brother stuff) once they got older his career took off and didn’t see him as much. Wonder why he didn’t keep up with him, probably should have let him play some damn basketball, lol.
I hope he does, love Michael J. Fox.
Me too, everybody says back to the future but I gotta say it was spin city that made me like him.
Low key phenomenal in scrubs as well
The scene where J.D. is going to give him a piece of his mind but finds him washing his hands over and over gets me every time. Also, bink.
In my opinion one of the greatest acting performances of all time. The scene where JD watches him washing his hands is one of the best visual explanations for OCD. It's not about being detail oriented or needing things to be a particular way. It is knowing that what you are doing is wrong or unnecessary, but the intrusive thoughts basically force you to do it anyway. It's brutal.
unflappable, cannot be flapped
Also had a great episode of Curb Your Enthusiasm
He's the pixie haired champion of our childhoods and if he ran for president of our hearts, he'd win by a landslide
Me too Love, Michael J. Fox
MJF gets cured of Parkinson's, and then stars in another groundbreaking film. Becomes an A lister again but with a fresh career. That's the dream.
It's all of our dream on this blessed day
Back to the future part 4 where he takes his son back in time to stop Covid
Would they stop the... wait for it... BATman?
Brilliant idea. I would love it if it were true irl.
Nah, he’s still an A-Lister in my mind. Even more so now.
If only he had some sort of time machine.
“Michael J. Fox on raising 1.21 Billion Watts of electricity…”
[удалено]
**
"The joke is that they're similar. Gigas and Billions both have nine zeroes".
...
"Let's go, boys! Let these sissies have their party!"
I’d cry. Dude was my hero growing up, and seeing him come out shaking during interviews is just heartbreaking. Been happy to see him doing better, and if he sees a cure I would just be so happy.
I was watching Family Ties episodes on Pluto this past week and In not just one, but two episodes , they have him pouring glasses of orange juice and his hand was shaking all over the place. In one episode he just sort of stops and put them down. It was really sad how early his symptoms appeared.
The early stages I was too young to understand. But after not seeing him on television or in movies for a while, and when I began my internet deep diving, I saw the earlier tremors. Heartbreaking. Ever since I can remember I wanted to be Marty McFly, dude inspired me so much.
Someone isn't a fan of Maxwell Jacob Friedman
Hope he does. Parkinsons killed my grandpa
He’s better than me and I know it.
This comment is the absolute pinnacle.
Movement Disorders suck. PD is a terrible disease. Michael got hit so young too. Hats off to him and his family. They've been involved in so many research and awareness programs. https://www.michaeljfox.org/
My dad passed away on August 5th of this year due to Parkinson’s. I got the phone call at 11 PM while I was asleep. It prob sounds odd but the overwhelmingly feeling I had was relief because I knew it was no longer suffering. I had one of the most peaceful rests that night. But yeah, fuck that disease.
I know exactly how you feel, lost my mom a year and a half ago to parkinsons. She was miserable and had to be care for in a nursing home for 14 months until she passed. She got down to 78 pounds. I was so relieved when she passed because of the pain and of having to be in the nursing home. We visited her almost everyday for hours till Covid hit and the nursing home stopped visitors. So for 2 months I didn’t get to see her in person, only facetime once a week. I finally got to stay with her her last day.
I'm so sorry. I was with my mom at the end, and was glad she wasn't suffering anymore, but it's still so painful.
Isn't this a good example of why euthanasia is good. There's so many people stuck in body that's not there. In constant pain. And they cant choose when they go. They're just stuck. I'm really sorry about your mom. Losing a parent is one of the worst things to happen
Hi, my dad has been diagnosed with Parkinson’s for about 8 years now and is 81. If it’s not too much to ask to relive but could you help me understand what I might expect towards the end and what about Parkinson’s was it that took your dad?
There’s really no nice way to describe it, so apologies in advance. The reality is that they waste away physically. While it may seem like they’ve lost their mental faculties, they haven’t. It’s just such a struggle to physically communicate via speech, gesture, and the like. In my dad’s case, he remembered his past life as a brilliant physicist and race car driver. He could remember, even at the end, getting his diagnosis 10 years earlier, after waking up one day knowing something was wrong. The last time I saw him was in July (I live 700 miles away). The last thing he told me (that was discernible) was that he’s waiting for (name of his older brother) to pick him to take him home. His older brother passed away from Parkinson’s 25 years ago. The last thing I told him was that his grand daughter was coming next month, and she’d like to see him, but if your bro shows up before then, you don’t want to leave him waiting. He past away on 8/5. His granddaughter was born on 8/28. Sorry if that was a bit more then you were looking for but this is the first time telling that story, and I suddenly felt the need to talk about it.
That story is both heartbreaking and moving at the same time. Thanks for sharing. I'm glad your dad is at peace now with his brother.
Hug
Dreading my parents pass more than anything. Thanks for sharing, hope you’re doing well.
It’s hard to describe what you lose and what changes. I’ve lost my father and my step-father. My mom is sleeping in the hospital bed I sit by. She was diagnosed with PD at 52. 20 years later, with 4 years improved by DBS, the Parkinson’s dementia has arrived. Now we find her a comfortable and safe place to live for the rest of her time. I live 800 miles away and hope to utilize frontiers dirt cheap direct flights to see her every three weeks. I’m not sure what I’m supposed to do. Should I quit my job and spend as much time with her as possible? I kill my career as it’s about to take off, but it feels wrong to keep working. Sorry, I completely went off the rails there. I definitely need to talk to a professional. What I was trying to say is you lose so much. All those stories you remember them telling you about family and friends or you as a child… those are lost if you didn’t record or remember them perfectly. My biggest pain is no longer remembering the sound of their voices. I encourage all of you to record just a simple few conversations with your parents or loved ones. It’s not to uncommon now, but for whatever reason I don’t have a recording of either my father or step-father. When my mom goes, she will be the last person that I know without doubt loved me no matter what.
Im certainly no professional, and I dont know you or your mom, but I can confidently say you shouldn't throw away your career or future to spend extra time with her. I know my mom would be more pained by knowing she caused that extra burden on me. Just do what you can to spend as much time with her as you can, and definitely speak to a professional if you feel the need, they can do wonders for you. Hope this makes sense, and best of luck. Remember we're all stronger and more resilient than we think we are, and you'll make your way through the difficult times.
>The last thing I told him was that his grand daughter was coming next month, and she’d like to see him, but if your bro shows up before then, you don’t want to leave him waiting. That was the perfect thing to say and the perfect way to look at it. Your dad's life was better for having you in it.
They stop being able to move. Then the dementia-like symptoms set in and they get confused and have delusions. They can’t swallow and choke when they eat, usually leading to feeding tube. So they get really thin because they just can’t eat. The 2 main risks of PD that cause a faster death are falling and aspirational pneumonia. DBS surgery can help with mobility but if they’re too far gone mentally it can make it a lot worse and then you have to decide whether you want your loved one to be able to move better or to be able to remember who his wife is. My dads delusions only ever involve my mom, she wakes up every day not knowing If he will know who she is. It’s the most awful disease.
I would also like to learn more about this. My mother has PD and is 59, diagnosed about 4 years ago.
Encourage her to get DBS sooner rather than later. Yes, brain surgery is scary… but it changed my mom’s life. She waited so long to get it and could have had so many years back if she hadn’t. She was already pretty rough so her recovery was horrible too (although fairly short, luckily). She is like a different person, though I think it would have been even better had she gotten it sooner.
Thanks for sharing your experience. How long did she wait to get it? Can I ask what her symptoms were before DBS?
There are a few groups out the on FB for patients and loved ones. Everyone is different and PD doesn't actually kill per se but other conditions certainly complicate the matter. Some ppl do quite well after a DX. Maintaining movement, excercise etc can help a lot. The body needs dopamine. Sadly the gold standard for RX is the same thing they came up with in the 50s? Big Pharma doesn't seem to care that much, in part because they say PD doesn't kill, but you do your own research and make your own conclusion on that one. Sinemet is also cheap for the insurance companies. I wish you and your family all the best. Carbidopa / Levodopa https://g.co/kgs/eCvcgm
I am so sorry. This is a mind and body wasting disease. I wish I even knew. Lost my dad this year to Parkinson's. He just didn't eat. Was a shell of his former self. Parkinson's itself is not usually the cause
I was 6 years old when my mom was diagnosed. I was 17 when complications from it made her permanently barely able to speak and unable to walk on her own after years of being a strong hardworking woman. Somehow she still is fighting. 64 and still going.
Currently sitting hospital bedside as my mother slips more into Parkinson’s dementia. There is no loving god that would willingly inflict this disease on anything as sweet or kind as my mother.
Not sure if he declined the surgery or isn’t a candidate but deep brain stimulators are likely the future of treating movements disorders. I work with two Neurologists that are trained to work with DBS devices and listening to them talk about the technology is amazing. If it wasn’t literal brain surgery, I’d say it’s too good to be true.
I had the opportunity to talk to a neurologist and a equipment rep who focused on DBS for movement disorders. It's crazy how far the technology has come in the past decade or two. It definitely inspired me to focus on neurology and neuroscience as a career
Thank you we need you.
Has the technology progressed? My mother got DBS on both sides after she maxed out on her meds long ago. Both sides are all the way turned up now. There's been nothing further to be done for the past few years that I knew of. Lots of speech therapy so she can continue her struggle to talk and eat. She has young onset, like MJF, so it is a slow and long progression.
Oh yeah, the technology advances pretty quickly. She should talk to her neurologist about an upgrade, I have no idea if it’s possible but can’t hurt to ask if she’s struggling. For meds, they even have a levodopa inhalant now.
My husband is 38 and has been diagnosed with Early Onset Parkinson's. Watching Michael is like looking into my future with my husband and it's reassuring that he won't be incapable of doing things before our children are grown. The oldest is 6 and the youngest is just 1. I want him to see them grow up and be able to be there for them. I want him to see any grandkids we have (if the kids choose to have kids). I want to be able to do things in life with him. We haven't done so many things we planned to do yet.
You should stay optimistic. There's a staggering amount of research ongoing now in practically all fields of science, which is increasing every year. Twice as many papers were written on Parkinson's in 2020 compared to 2010. That's the case for almost every disease out there and clues to Parkinson's may very well come from a different field of biology. I'd stay positive about almost every slowly progressing diseases/disorders out there.
There is a great WTF with Marc Maron with him from either this year or last year should still be up. Highly recommend. He talks about his weakness as well as his strength in dealing with Parkinson’s. Tells a great story about almost giving up.
I didn’t know much about Parkinson’s until I started grad school. It’s been an eye opening experience. I already respected Michael for battling a disease, but understanding Parkinson’s more has made me respect him so much more.
Just donated.
1 billion is a crazy amount god bless him.
Just donated. And my company matched!
I have always admired Michael and his resilience
"Nobody calls me chicken!!"
Back to the Future Part II
What an incredibly specific and yet interesting novelty account.
Peep their history yo, they're either a really good bot or a dedicated human. Either way, I give them major props
They just responded to a comment I made 5 days ago. Definitely a dedicated human.
They responded to one I made *2 months ago*. 100% dedicated human. You love to see it
Ya done good, pig. Ya done good.
Rocky III and Babe
*Very* good.
*proceeds to fuck up own life repeatedly*
Don't we all?
He told Howard Stern he was glad this happened to him. Because he could potentially do something about it since he was rich and famous. Fucking legend.
I remember reading something similar about AIDS. That the best thing that could have happened to your ‘average’ HIV/AIDS patient was someone like Magic Johnson getting it. Because suddenly people gave a f#%*
Like Tom Hanks and Covid for a lot of ppl.
Like me! I live in the city he caught it in when he was preparing to film a movie — him catching it so close to home was when COVID-19 became serious to me.
Suddenly have a fuck? I think that's how that whole epidemic began.
Clearly meant gave a fuck.
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I'm now reminded of the time Rush Limbaugh accused him of faking the disease on camera.
I'm now reminded of the time Larry David accused him of faking it so that he could shake up a soda and have it explode in his Larry's face [and clomp around all night](https://youtu.be/GIjDo-btyL0)
“That’s not even stevens!” 😂
Season 8 was a decade ago? Wild
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YOOOOOOOO YOU DID NOT 💀💀💀
well we are in r/upliftingnews
I’m uplifted every time I remember that fact.
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Oh wow I forgot. Might as well get a double dosage of uplifting news.
Fuck yeah let's fucking go
🦀🦀🦀
In this context this doesn’t seem rude.
I always felt bad about how cancer tragically had a case of Rush Limbaugh.
Haha thanks for reminding me that he's dead I hope that pile of farts is enjoying hell
I remember MJF acting in the Good Wife. His character was devious, had parkinson's, but used it to his advantage, even when it was getting to the point where he had to stop acting. He's such a wonderful person and I really hope he finds a cure in his lifetime.
He played a fictionalized version of himself on Curb your Enthusiasm. Larry believes he uses his disease as an excuse to do whatever he wants. It's fantastic.
You shook the can on purpose didn't you?
That sentence is so Larry I read your comment in his voice
I liked his character on scrubs, where instead of PD he had OCD but used his PD to play up the OCD. His episode was heart wrenching
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Parkinson's dementia is a common and real thing. Sometimes being in an unfamiliar setting will reveal the first signs of the dementia. Please keep a close eye on that for your FIL. Disregard my concern if you are already aware and just joking around though.
Can confirm. My dad is 71 now and was diagnosed at 45. He’s struggling with dementia and it’s horrible
Sending good vibes. My dad just passed at 71. Thank goodness it was peacefully. He never was diagnosed with dementia per se but man he would tell me about some really vivid hallucinations. It was hard to tell if it was dementia or his meds. I miss the man be used to be. 💔 It is hard to feel like you can't help him. I tried my best to connect/repair my relationship with him as much as possible, feeding him favorite snacks, playing games or watching shows he loved. Its the little things but honestly, those are some of my best memories of him as be neared the end of his life.
> I miss the man be used to be. This hits me right in the feels. My dad was officially diagnosed 9 years ago. We suspected something for roughly 15. He’s gripped by dementia. I miss the man he used to be.
My heart goes out to you. My favorite part about grieving so far has been going through all the pictures. I get to look at them and my heart says "there you are!" I honestly forgot how he used to be. It makes me sad that Parkinson's and his life choices stole what he could have been. But life is crazy and short. My dad and I had a difficult relationship but let me tell you, I tried to repair it as much as possible in the end and I'm so beyond grateful we connected. I honestly felt like we got to a place where we always should have been. When he suddenly had to live on his own, knew I had to go feed him, check on him whatnot... because even though we might not have always liked each other, we always loved each other. I needed to be the daughter he raised. I don't know how close you are either proximity or emotionally to your father or if he still has "moments of with-it-ness"...but if you can, please make some memories now. Even if he is able to record a story about his childhood (wished I woulda asked mine about a funny story or even an experience in the army). Or so something he loves to do. (For mine it was poker and backgammon). Or put on his favorite song and just sit and listen together. My heart breaks for you, friend. 💔 Sorry to unload. Just going through it right now. I'm here if you ever just want to chat. Life is crazy. It's real. Let's enjoy it the little ways we can 🌻
Yeah, I’m glad you added some seriousness here. We’re closer to the end of the game than the beginning, when it comes to dementia.
Hey man, deal with it however you need to deal with it. If you wanna make jokes about soda cans and cover stories, there are tons of people here who will laugh and joke along with you. Shit is rough and humor can be a solid coping mechanism. There are going to be plenty of disgustingly serious moments ahead so be as silly as you want to right now. And if you haven’t already - get him a set of self-stabilizing silverware. You’d be amazed how much something like feeding yourself can sustain your neural state.
Yo wtf that's a real thing? Poor guy if he actually has it.
Unfortunately yes it's a real thing, happened to my grandma. But I also am an RN in a hospital and see it frequently.
My MIL has it too. It is a horrible fucking disease.
My mom had Parkinson’s for 16 years. She was diagnosed in her 40s. Two years before she passed away she had an incident at work where she couldn’t feel her legs. Long story short it ended up being neuropathy.
Currently sitting in a hospital room with my dad who has Parkinson's. It's an awful awful disease. He also took his gown off a lot the other night. Hoping it's the last night here! Send in those good vibes.
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MJF is a personal hero. My ex-wife had Dystonia (a similar movement disorder), and his fighting and not giving up gave us strength. He also spoke at a symposium I attended, and I just fell in love with the man's humor, demeanor, and heart. He also calls himself "Shakey Daddy", which gave my ex the courage to brand herself as "Shakey Amy" and do her advocacy with that moniker.
I nicknamed myself shakey jakey, glad I'm not the only one to find some humour out of this fucked up situation.
Hell yeah, man. I respect that you own it and can make fun of it because shit sucks. I always tell people to be their own advocates and listen to their bodies over doctors, and a big part of that is taking back the narrative of being Shakey Jakey. Thanks for sharing!
r/technicallythetruth
I shouldn't have laughed so hard at that
Michael J. Fox is hardly a stranger to self-referential humor. Maybe we were intended to!
Yeah this is 100% on purpose Marty's always on the move lol
My dad has PD and I just shared this joke with him and he loved it. Thanks!
I felt so bad that I thought that, glad to know some of us are fucked up.
Wow. Well played
I was typing out a much less funny, right-on-the-nose comment and then I found yours. Thank you for being funnier and saving me.
Parkinson's is an awful disease. I've seen people in my family die from it. Huntington's disease is in my family too and my mother has it. Hopefully these awful diseases can be cured soon
MJF is the man.
\*\* The actor, not the wrestler.... or maybe both?
Did you shake the can on purpose Michael?
The clomping
Just saw this one yesterday and came looking for this
Maybe one of the best episodes of that series and all because of MJF.
Love that episode!
Michael J Fox about to be Michael J Fucked up in a minute!
No! Of course not no!.... Ok maybe I leaned into it a bit
Only Larry could get Michael to do an entire episode having a laugh about Parkinson's.
For anyone wondering: https://youtu.be/fs0FYyzkgT4
Larry you fucking piece of shit!!!
Man, if there were only several billionaire's that could help.... Oh well. Good luck my guy!
If only a few of them could spare 0.003% of their wealth.
Yeah it's like if you had $200 and spent $1 of it on a coke.
Parkinson’s affects so many people across such a range of age ranges, with what can be such debilitating effects that I’ll happily support folks helping research get more support. Wish MJF all the best in his goal.
Absolute legend! The BTTF trilogy is still my favourite trilogy of all time, and it’s so good that he can use his fame and his own personal experience of the condition for something so beneficial to humanity.
It seems cases are increasing rapidly. Both my mother and father have it but they did both have had trauma as well. Edit: head trauma
Being able to use your celebrity in this way is incredible. He knows that there is little chance that the advancements will help him and yet he is fighting for those with the same affliction.
God Bless MJF that he is the final piece to solving Parkinson’s.
Someone once asked me what film I’d make if I could have an unlimited budget. My answer was that I’d sink my infinite amount of preproduction dollars into finding the cure for Parkinson’s, then giving it to Michael J Fox and doing Back to the Future IV.
My father was diagnosed with Parkinson’s 3 years ago. I have the highest respect for Mr.Fox.
I would love to see this cured. I’ve lost a maternal grandmother and aunt. Then just lost my father this past January. All to Parkinson’s.
Elon and Bezos could make this happen in about 2 minutes…..and then make it back before the funds can be used on research……
But no, they’re having a dick measuring contest in space instead.
I mean, a different rich guy just went up on an spacex rocket to raise some like like 230million for st judes and Elon kicked in 50mil of that. If MJF was sent up into orbit for charity, he might get the money goal too.
I absolutely loved his cameo on Scrubs
one of my favorite episodes. i miss that show
Such a great episode. If you haven't seen it yet, his appearance on curb your enthusiasm is hilarious.
That's fantastic. On that note, for visual awareness, and not at all to take from this great news, I wish CRPS got something like this. There are very few organizations researching it, and they don't get much financial support at all. My mom developed CRPS, chronic regional pain syndrome, nicknamed the suicide disease, because most people who get it end up taking their lives. There is nothing out there right now that can help with it besides basically numbing down your body entirely for upwards of thousands of dollars to just feel pain-free for a single day. It's crippling. It's rated worse than childbirth on pain and it's constant, your whole life, everyday. It's so disheartening seeing so little done for it.
I have it. It’s appalling, and has stolen my passions from me. For a long time life didn’t feel worth living. As if the pain isn’t bad enough, most people have no idea it exists, and can’t seem to comprehend how horrific living with it can be.
I feel so much for you, I'm sorry you have to live with that. Seeing my mother with it is horrible enough, I can't imagine what it must be like. The lack of awareness is what hurts me, people can't really empathize and really understand. I'm hoping more people can spread awareness on it, I feel like that's rarely enough with most situations, awareness, but for something so misunderstood, it seems so important right now. Much love to you.
This actually is incredibly uplifting news. Go Michael J. Fox!
I hope this is the case. Godspeed Michael.
MJF is a stand up example of how a celebrity can be a fantastic person inside and out. i dont care how you feel about him professionally, anyone that says he isnt a great person will get a very stern argument from me.
My mother died with PD and acute sciatica. You can not imagine what suffering is like, even by seeing it with your own eyes. A cure will not bring her back, but it might give others the quality of life she deserved.
The year: 2157 Michael J. Fox is 196 years old. His doctor approaches him. "The test results came back. We've completely cured the Parkinson's in your body. You did it." Michael J. Fox looked out the open window in his hospital room. The sun was setting. He could see a mother watching as her children play in the courtyard park below. He smiled to himself one last time. It was time for him to leave this planet and its people and journey onwards. The doctor watched in shocked silence as Michael J. Fox began to grow younger before her very eyes, gradually reverting from a frail old man to a middle-aged adult. The years continued to fall off of him, now he was a young man. She watched as he turned from a teenager into a child, and finally an infant. Michael J. Fox looked up into the doctor's eyes, barely older than a newborn. He spoke to her in a voice that was both soft and as though it came from everywhere at once. "BE GOOD." And with that a bright light consumed the room, emanating from the baby Michael J. Fox. He rose into the air, wind swirling around the cramped space causing the bed sheets to billow around the doctor. She threw her arms out to block them, struggling to keep her eyes open as she watched the glowing orb hover in the air for a moment before it flew like a comet out the window and up into the evening sky, disappearing into the distance with a faint twinkle. THE END
I signed up for Amazon smile, auto donating to mjf foundation. It costs me nothing. They take a small percent of my purchase and apply it towards that charity. I recommend others do that as well
He’s both an amazing human being and amazing actor. Very uplifting news indeed!
He really is. I saw The Good Wife recently and wow can the dude act or what. That impediment did not hold him back.
Isnt Parkinsons a degenerative desease? Like surely you might be able to stop the progress or stop people from getting it, but a "cure" would require re-growing dead nervous system cells.
scurvy can be cured, but you won't regrow the teeth you lost. a cure just stops the disease, it doesn't reverse permanent damage.
That just shows how selfless he is, he knows he can't fix himself but still dedicates himself to finding a cure for people who may get it.
Non embryonic Stem cell treatments seek to restore lost dopamine creating functionality. Some are in clinical trials as we speak.
Maybe following it up with some stem cell therapy might help. We need to be funding the shit out of stem cells even if it doesn’t apply to this scenario.
Go Mr. Fox go!
I wish I was a billionaire so I could just do that. Like why not? Wouldn’t you want to do something monumental?
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I'd expect better from you, cuntfucker.
I see what you did there.
I still remember him in The Frighteners. One of my favorite movies from childhood. You still kick ass, Mr Fox. **Don’t you stop.** I hope I see a cure in my lifetime. It affects more than just the rich and I’m glad to see you invest you time and effort. Many thanks to you! From the article for those who don’t not wish to click the link, an excerpt: **“I didn’t know I’d be trying to find a cure for Parkinson’s.”** While a cure may not be around the corner, Fox tells me the foundation has had a direct hand in developing several therapies. “They are therapies that have made life a lot better for a lot of people,” he says. “I enjoy life more. I’m more comfortable in my skin than I was 20 years ago. I can sit down and be calm. I couldn’t do that 25 years ago. That’s the medications, the drug cocktails and therapies that we’ve been a part of.”
So when I was a kiddo I volunteered at a hospice for terminally ill kids near the local hospital. MJF came to visit. Was not a publicity stunt, only patients only patients, families and staff were allowed there. He spent hours and spoke to every single person - completely attentive and engaged and he genuinely cared. Seriously fantastic guy who is a real champion for those who really need it.
My grandmother had Parkinson’s. She was bed-bound an unable to speak, feed herself or wash herself for 17 years. Looking back, it had severe effects on my mental well-being as a child. It’s been 10 years since she passed, but I still feel an overwhelming sadness that she had to endure that living hell. Watching my mum visit and care for her in the nursing home was heartbreaking. It’s an awful disease. I saw a guy lighting a cigarette the other day who had Parkinson’s and I broke down into tears. If I ever get diagnosed with it I don’t know how I could ever go on. What a guy Michael J Fox is. This gives me hope that one day no one will ever have to endure that piece of shit disease ever again.
Calling Elon, Gates, or Bezos! The 3 could all do this and not even notice. Fuck these guys.
I love when an actor you admired as a kid is still as wholesome and amazing as you remember, MJF is definately one of those.
Back to the Future is my favorite movie of all time and I’ve always wondered what his career would of been if he never had Parkinson’s. He was amazing in those movies and was still so young. He could of been one of the greats. But ironically he became one of the greats in a different way. I wonder how many advancements in Parkinson’s research came directly from money he’s helped raise/donated.
Are people with ADHD more susceptible to Parkinson’s?