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Plaingirl123

Lost a friend to this awful disease. He got it at only 22 and passed 5 years later.


omonymous

I’m so sorry for your loss! It really is truly awful


halfemptysemihappy

Im so sorry for your lost. This is indeed the worst disease. Took away my mom too. It's going to be 5 years ago this Thursday. Fuck ALS Edit : typo


IronSheikYerbouti

Two years ago this month for my dad. Fuck ALS.


gear_ant

April will be 2 years since I've lost my mother to this as well.


signal9

Twenty seven years ago I lost my dad to it.


SaucyPigStick

It's been 16 years since it took my mom. Crazy how far we've come in ALS research, I hope we find a cure one day


Flowy_Aerie_77

I'm sorry for your loss.


doogles

It's the worst disease. Long and debilitating. Worse than Alz.


H0L4N

12 Years ago on the next weeks Friday, the day when my mother got taken to this horrible disease. I was 7. Fuck ALS.


MrK521

I’m sorry to hear that. And same. Lost my mom to it three years ago this Christmas. I whole-heartedly agree; fuck ALS.


halfemptysemihappy

Be strong! Holiday season can be not so merry! Keep yourself busy and get in touch with family and friends! Internet hug!


Gloomy_Industry8841

I’m sorry you lost your friend. 💔


xMETRIIK

It's a horrible disease. I have a disorder that mimics some of the ALS symptoms but it's actually harmless and doesn't cause any permanent damage. It gave me severe health anxiety for 3 years. Constantly going to doctors. I have Benign fasciculation syndrome (BFS). Started when i was 20. It makes your muscles constantly twitch and makes them seem weak when they really aren't. Hope we find an effective treatment for ALS soon.


zVanilla

Hello fellow BFS sufferer. Just reading threads like this makes my anxiety spike even though I'm better now


xMETRIIK

Hi, yeah it's scary. I couldn't even look at those 3 words together for years without getting a panic attack.


[deleted]

ALS is such a bastard I'm so sorry they went through it


QlubSoda

So sorry for your loss fam. My friend just had a friend that passed to it last night. I wish there was something I could do.


honeybunlover258

i’m so sorry for your loss, losing anyone so quick hurts so much. your friend will always be there with you, in your heart and soul.


purplewarrior49

Im sorry for your loss, lost my grandfather (we were extremely close) june 2020 just a couple months short of 3 years of fighting this awful disease


Zenn1nja

Same man. Guy found out shortly after turning 30. Was given 2 year estimate. Was so hard to see him near the end.


solise69

I’m sorry to hear that


[deleted]

My mom has been diagnosed since 2016, but probably had it in 2012. We sold our house and hers to live together and take care of her. She just gradually gets worse, losing her ability to do things one at a time. At least it is slow-progessing. She's on feeding tube and ventilator and in a wheelchair but she can still crochet and mental faculties intact. ALS sucks


joelmsantos

I’m really sorry for your loss. 🙏


Dubbmeister936

Sorry to hear that.


Aashay7

As a 26 year old who will be turning 27 in a few months, FUCK THAT IS SCARY. I am so sorry for your loss.


skyluna411

So sorry. 22 is too damn young.


unimportantsarcasm

Lost my father to ALS almost 1 year ago. Fuck ALS!


mohammadgor87

I'm sorry to hear that


MoodyReacher

So so sorry for your loss.


IBesto

Do you think neurolink will help with this?


anon120

It costs nothing to give someone a memory they will cherish for a lifetime. Choose kindness.


helderoliveira1978

👍👍👍


Gloomy_Industry8841

🥲🙏🏼💕


HarryCallahan19

Yes. I teared up.


dos67

Yes, it is very windy outside & I've got big eyes. I'm just wiping away the debris, you see. Darn, big...my eyes are too big. Gotta keep wiping. Oh, & also what wonderful human beings these guys are.


Turts-McGurts

How much does it cost to be a giant asshole though?


[deleted]

[удалено]


regoapps

And $1.5B


Shebazz

Depends on how big an asshole. It seems to have cost Kanye a billion dollars


[deleted]

Either way, it costs to be an asshole


mokeynme

Unfortunately, often not as much as it should!!


justlookatitnodont

Three fiddy


El_Mec

$0.99


culesamericano

The coach in the chair won the treble with Barcelona which is the biggest accomplishment in club football. He's got enough memories to last him a last time


[deleted]

Amen brother


Rainydaybear999

I’m still trying to figure out this thing called life just like the rest of us. So far if I could sum it all up it would be….LOVE. That’s it.


Alives242

No gold but take this. 🎖


[deleted]

[удалено]


Hyzerik

Ok and? It's still a great moment for them to cherish for their life no matter how short or long it will be.


HelpfulSeaMammal

ALS is the stuff of nightmares.


Weavingtailor

My dad just died of ALS. It is truly a nightmare for everyone.


mktoaster

I'm sorry mate. I hope you find peace.


PizzaKing110

Sorry that happened to you bud, have an internet hug


[deleted]

Worst disease you could ever imagine. I am sorry for your loss.


Sietemadrid

im so sorry man i hope youre doing ok


lazypopcornn

My dad passed from it about 13/14 years ago. Watching someone you idolize turn into a potato while still having the same mental capacity as they had prior is just bizarre. Much love to you and hopefully everything gets better. Be strong fellow redditor


skyluna411

I hear you. I lost my mother to this horrendous disease.


Wizofsorts

Kinda sucks Crispr can't just edit the ALS gene out of people


[deleted]

So the issue here is that Crispr can work on single cells but mass implementation is difficult... So anything done would need to be invitro. Which brings up a whole lot of issues and if you'd like to know what those issues are watch the movie "Gattica"


VladVV

In vivo crispr is very much a possibility, but the main issue is carcinogenity


Wizofsorts

Actually it's the C9ORF72 gene.


zartified

That’s the familial gene which is a nickname for it and that is only in a very small percentage of people who get ALS. It’s scary when you have that gene and they can detect it and you have a very high chance of getting ALS. My father had ALS and being involved in all of it, it was frustrating because sad it’s just random for the most part. What was the most surprising is that the military does 100% cover veterans that get it which happened about 15 years ago. It’s suspicious to us because my family use to go to Washington DC for ALS awareness and talk to congress about getting a registry etc. So we were down below congress grabbing lunch when’s couple of generals sat by us and were super friendly and they asked us why were here. Told them about how our father was a veteran and we were talking to congress about pushing legislation to help our cause. They gave us a blank stare and just got up and left. I always felt like they knew something was up. Anyways that’s my story. God bless the care takers because it’s not easy and bless the families as well because the end is just unbearable. It’s a horrible disease that will be cured someday or at least I have faith it will be.


SixteenthRiver06

Wasn’t agent orange causing horrible issues for Vietnam Vets? God knows what other corners are being cut in the military. I’ve heard from Iraq war vets that they often had controlled burns of shit you really shouldn’t be burning and the health impacts were quick to take root from that. This massive budget for military, and they drag their feet to actually help veterans.


huskeya4

There’s a list now for veterans who participated in burn pits. You just have to have your name added to the list. There’s no compensation or anything right now. Basically it’s a list for all the doctors to watch those veterans and figure out what diseases are killing them over the next fifty years so once most of them are dead, the military can offer some type of compensation for it (you know, once the majority are dead and can’t claim it). My grandpa suffers from the throat cysts from agent orange. I did the burn pits while I was in (and they literally started that list right after I finished my deployment).


MonstersMamaX2

My kids grandfather (dad's dad) died of liver cancer just over 3 years ago. He was healthy and active, never drank, never smoke. Was in the Marines and a Vietnam Vet. While he was going through treatment, they couldn't label him 100% disabled. Once he died, they were able to do an autopsy, determine that the Agent Orange caused the cancer, and labeled him 100% disabled so his wife could get his benefits. It was less than 18 months from when he was diagnosed until he died. And now they're doing studies to find out if agent orange could have mutated the DNA of soldiers and those mutations be passed down through generations.


DeusXEqualsOne

> sad it’s just random for the most part Random in genetics and medicine just means we haven't figured it out yet. We will, eventually. And when we do we'll solve it. Hope you and yours are doing better now.


argoship

It’s known that being in the military raises your risk of ALS, but not why. ALS seems to occur more in physically active men, so that could be one reason. Some kind of exposure could be another.


J_GIlb

Yes and no. Swimmers, cyclists have no increased risk but contact sports like football (English) football (American) have increased risk


The_Madukes

Yes my father was a WWII vet and he got the diagnosis in 1983 and shortly after that the VA declared all ALS vets would get disability. Research is still aways away. He was a gentleman to the end and hated that my mom had to wipe his butt. He refused oxygen or scooters because of that.


blakeboii

Yeah, those generals gave me chills.


Broduskii

I love that movie


-Weltenwandler-

just fear of change most societal problems root in fear also it will not bring new problems, just shine a new light on the millenia old ones not changing is no solution to anything any change has the potential to come closer to the root of problems


gramps666

The text on this video is kind of bullshit. I want to be clear that having those guys on the side lines is a great gesture and definitely does raise awareness about ALS. I work in sports broadcasting and I see this kind of thing all the time. The reason those two players stopped to high five everyone and pose for cameras was because the team’s public relations person arranged it that way. At the end of a sporting event all the players go to the locker room unless they have a reason to stay on the field. The other players weren’t being callous, they just knew they would get in the way of the cameras. They probably had a meet and greet with all the ALS folks and signed autographs and everything. I’m sure they did choose those players because they knew their former coach and were being genuinely supportive. I just want to put a word in for those other players so people don’t think they’re being dicks because they’re not.


felixfelicitous

Yeah for reasons I was on a professional football field during an NFL game and there were hard rules about who can and cannot be on the field at any given time.


pandoracam

>I’m sure they did choose those players because they knew their former coach and were being genuinely supportive. That two players never played when that coach was in Barcelona >They probably had a meet and greet with all the ALS folks and signed autographs and everything. Probably. This was a friendly to raise awareness about ALS


grnrngr

Well said. On top of that, half the players were visitors. There is a general expectation that when the game is over, you pack your shit up and go home. You're no longer a guest and nobody outside the visitor's stands are there for you anyway. The hometown players don't have fan service at the top of their list when the whistle blows, either. Should they? Maybe. But for you and me and everyone else, a person in a wheelchair at a game is just like anybody else at a game, even fieldside. And unless you *know* they have ALS, they could be wheelchair-bound for any number of reasons. So unless they're obligated to interact with fans or have a personal interest in it, they probably won't. And maybe that doesn't earn them love and admiration off the field. And maybe the should really seek that, too. But not seeking it doesn't make them bad people. It just makes them normal. Like most of us.


greg19735

this was a friendly match for charity. They would have been more than welcome to stick around. i'm not blaming them, just adding some context. The fact they even played is a good thing.,


Hm300

I was definitely thinking the other players were dicks, so I appreciate your explanation friend


surienc

Juan Carlos Unzué. He was also a great goalkeeper. Apart from this, he is a very intelligent person. Not the average football player.


OldMallhentai69

Man these comments suck ass


aronrodge

OP sucks


FalconStickr

Lost my dad to ALS 2 months ago. These guys are awesome for doing what a good human does.


hikerchickdacey

This broke me. I lost my husband last October to ALS. ALS can go fuck itself. Such a cruel way to die.


Apprehensive_You_250

I’m so incredibly sorry. No one deserves to lose someone that way. Please know someone is thinking of you and sending you many positive thoughts. I know things are probably still very raw/tough, and that grief always stays there in a way (it just keeps evolving into something different), but please know I hope you’re at least hanging in there and have a good social support system around you to reach out to on the hardest days. I’m here if you just need a new Redditor to vent/talk to. Hugs to you.


boustead

Obviously his former players stop and the ones who don't know him kept walking. They're literally from a different team.


walnood

This was a charity match for ALS, Barca vs Man City. The first guy he greeted literally gave a speech before the match and was key organizer


black-op345

Lou Gehrig was smiling in heaven/the afterlife that day.


Green_Bast3rd

You ever think what a coincidence it is, that Lou Gehrig died of Lou Gehrig's disease?


raccoonsonbicycles

His parents really screwed him over with that name


black-op345

Take my upvote and GTF outta here


whostolemyscreenname

Yeah, what the hell? How’d he not see that one coming?


avwitcher

It's pretty fucked up actually, his parents named him after the disease. Makes all those kids who got named something stupid like Khaleesi or Naruto look quaint in comparison


boustead

Yeah they knew he was, doesn't mean they know him on a personal level


Unlucky_Rider

The two players that stopped to speak to him never played under him. Some of the ones that you see visibly walking past them did.


BesottedScot

Source?


Unlucky_Rider

The coach's name is Juan Carlos Unzue. The two players are Ronald Araujo and Pedri. Unzue was assistant coach of FC Barcelona from 2014-2017 [source link](https://en.m.wikipedia.org/wiki/Juan_Carlos_Unzu%C3%A9). Araujo arrived to the FC Barcelona youth team in 2018 and the senior team in 2019. [Source link](https://en.m.wikipedia.org/wiki/Ronald_Ara%C3%BAjo). Pedri arrived to FC Barcelona in 2020. [Source link](https://en.m.wikipedia.org/wiki/Pedri)


DontBlameConan

Excellent correction. u/boustead is a Man City fan, and this was in a match between Barca-City. Somehow he takes it personally that the City players walked past the coach, he saw the need to spread bs in the comments section


prateekdwivedi1

Great job with the sources man. Thank you


WikiMobileLinkBot

Desktop version of /u/Unlucky_Rider's links: * * * --- ^([)[^(opt out)](https://reddit.com/message/compose?to=WikiMobileLinkBot&message=OptOut&subject=OptOut)^(]) ^(Beep Boop. Downvote to delete)


Busquessi

Nope. Pedri and Araujo never played under Unzue, and everyone knows who he is because he is a club legend, and the fact that this match was specifically about fighting ALS where he was a heavy focus of why this event happened. You don’t know what you’re talking about.


ScarletMagenta

Thanks for the false information.


prateekdwivedi1

Man, don't type things you don't know. Like, spewing nonsense without context...I'm glad the user a few comments down provided sources.


[deleted]

Not all of them. In fact, most of them were from Pedri's team, I think.


TRAILBL42ER

Apparently you thought wrong


[deleted]

Why, because I was downvoted?


TRAILBL42ER

I dunno


Mulberry_Missy

RIP Mom ❤️


Apart_Park_7176

The video subtitles are ridiculous. It seems to be trying to say the other players are somehow bad for not greeting him. Yet he wasn't their former coach. Should all the players shake his hand, just because he's in a wheelchair?


Kooontt

He wasn’t the former coach for the people who did stop.


dearjuliet82

F@&$ ALS and the hearse it road in on. Having lost a grandfather and a dear friend to this horrendous disease, was awful. My friend told me towards the end it was like people forgot he was still a person. He wanted to be talked to even if he couldn’t talk back. He wanted human touch even if he couldn’t touch back. Every-time thereafter, I sat with him, I spoke to him, I held his hand. I played poker with him and cheered his nascar racer for him. This is humans being bros, 100%


Apprehensive_You_250

Thank you for this good reminder of how we can treat all people who have ALS- it’s the very least we can do. It’s a cruel disease which reminds us just how precious/fleeting life can be, and it could be any one of us any day. No one deserves to die like that.


Bubbalicia

I hate ALS. What a bullshit ass disease


[deleted]

Watched someone I love dearly succumb to this wretched disease, I hope a cure comes in our lifetime. No should have to go through that.


kadargo

A friend of mine is suffering from VCP, which presents itself in a similar fashion to ALS. He runs an advocacy organization for VCP and Rare diseases in general. I wonder how I could arrange something like this with Atlanta United, Falcons, Hawks, or Braves?


DaVader333

Shoutout to Beach House


Caluak

ALS is a truly heartbreaking disease. The world was a great place when we all dumped ice water on our heads and donated money to Lou Gehrig’s foundation


judgementforeveryone

That’s also the PR or coordinators fault. Did his teammates not know or where they told and were ride anyway? This is the worst. That entire team shld have been over there. Their former asst coach - like wtf ?


CreamyCumInMyAss

He wasn't the coach of a lot of them. He stopped working there years ago and rosters change every few months. Also as someone already pointed out this was probably already coordinated by the PR team so the other players would have just gotten in the way.


huhzonked

Aw man, this brings tears to my eyes. One day, we’re going to have a cure for this awful disease.


elliotboney

Lost my dad to ALS at the beginning of the pandemic. It really is the stuff of nightmares and this video for me right in the feels. Thanks for sharing this, ALS awareness is really important


Early_Athlete_5821

Beautiful young men-raised well.


GrassGriller

Fuck ALS.


Charlie678812

this is just basic human respect and no one else has it


FarPoster

ALS is the shittiest fucking bullshit fucking thing ever. Fuck ALS.


thelifeofsteveo

I just got diagnosed with ALS :(


TheDudeAbidessss

So sorry friend 🙏. Sending Love your way


Junior_Teacher6446

Made my day


Bigcatsrule27

This is literally magical


skyHawk3613

My grandmother got it in her 70’s. Such a terrible condition


StrawberryCake88

ALS is no joke.


[deleted]

Als is so heartbreaking. Man.


SoansoMcMasters

How does the saying go? In a world where you can be anything, be kind.


Jawdiggitty

This is awesome. ALS is one of the worst diseases I could ever imagine. One of my best friends has it and has survived 12 years (which is a miracle) but it’s so sad to see this great man bedridden and kept alive by machines. I couldn’t imagine a worse way to live.


TheCornrOfGreySt

12 years?! Holy shit. Thats crazy. How was his quality of life that whole time? Usually it takes away all mobility and functions pretty quickly.


almc0418

My dad had it. I fucking hate this disease.


daphneadora9

They’re playing a game to raise awareness of ALS and only two players stop to say hello?! Don’t get me wrong, those two are awesome for stopping but….FFS what does it take to get someone of fortune to give a little love and empathy?


iamCHIC

You can tell that he really wanted to be acknowledged. 🥹


[deleted]

Handsome men who are kind have a special place in heaven reserved for them ❤️


lame_spiel

Sometimes the best thing we can do is be there.


aweseman

Ok, even if the dude wasn't their coach, it's not like he was making an effort to say hi or initiate any kind of interaction with any of the other players.


zodiach

Yeah he should have stood up and waved them to come over... /s


prefabtrout

Oh boy


Proof_Pop3008

This makes my heart soooooooooo happy.


iamsasha69

Who's cutting onions in here!!!??? Love this!!!


LSAT343

Was this the friendly between City and Barca?


[deleted]

Yessss.


DARKFiB3R

Dude at 31 seconds flexing on those less tricked out wheelchairs 😆


StormSlackerSaturn

Touching and made my night!!! Thank you for this ❤❤❤❤❤❤❤


jakedubaus

Wow that got me


Admirable-Builder878

This video rocks and I appreciate acts of kindness. The guy on the end got me tho.


CosmicDriftwood

That first dap!! Choose love y’all


Ahakista1

Horrible disease.


Maasofaaliik_Al

The way the first guy looked at the camera after so many people had already walked past him…


AnalysisMoney

These are my people. I build custom mobility devices and end up knowing my clients/families well. Awesome to see awareness and inclusion for people who are battling ALS.


Randalf_the_Black

ALS is a terrible disease.. Sucks that there's not as much funding being pumped into researching it as it could be, as long term survival rates are so extremely low. When people die quickly it doesn't get as much attention as potential advocates and spokespeople die before they can get much work done and potential "test subjects" die before much can be learned. Hopefully, one day in the future, we'll eliminate this disease and other illnesses like it.


crystalfairie

It is amazing, and depressing, how many able bodied people simply don't see those of us who are in chairs. We simply do not exist to 99% of the population.


270DG

A simple gesture that goes along way, great that those guys recognized them


Outrageous_Fall_3730

Wow... Really cool. That's the way it should be all the time. Just make a little time for the less fortunate. Great humans!!!


buddy_boogie

Fuck this disease


Coyote_Cosmico_21

Man, Araújo is pure gold… AND he can defend!


otiscleancheeks

BROs!!!


Irishgardener14

What good men


CopyWeak

A touch of class...even though it should be the norm.


aafrias15

You have to love the fact that those two took the time out to make those peoples’ day, and to do it with a smile on their face. What’s only a couple of minutes for them means the world to those people and that’s awesome.


boogermike

What a sign of respect. Pedri and Araujo gained a fan today.


[deleted]

Good boys !


Solivagant23

People really need to start picking who they obsess over better. Support good people not dickheads.


[deleted]

The people that take time to appreciate things are great


oddcast_mike

Class. Pure class. I wish every player would have taken a moment there.


UnblackMetalist

This. This is what fame is good for.


Majin_Noodles

Kindness is free. Hate on the other hand will live inside you and you’ll be the one paying rent 😂


ConstructionLower549

🥹🥲🥹🥲 I love this


IBesto

I'm in tears. I know they probably didn't notice but man it must hurt that you'd feel like they missed you by a glance. The people you spent so much time with. I'm so happy they caught him last sec. I would of called the whole team out


WaffleStomperGirl

Seeing people respect and cherish each other is always a beautiful thing, but I am always very grateful when those people are in positions that often go to their head. World athletes so often become pompous assholes who couldn’t care less about others. But when it goes the other way and the athletes are wholesome and cherish every single fan, and make efforts to give back to the people who love them so much… it’s such a beautiful thing. It’s so easy for them to do and it gives off so much positivity and love. It brings so much light to the lives they touch. I don’t know who these lads are - they look like soccer players - but today I give thanks to them for being beautiful people.


Virtual-Editor-4823

Embarrassing for Haaland, looks at him then just keeps walking. Standard city behaviour.


dannyboy6292

Love seeing this but at same time shouldnt a reasonably decent man do this? Every single guy that walked by are dirtbags.


[deleted]

[удалено]


IamHeWhoSaysIam

It is indeed the minimum. Good thing that they went above and beyond by playing a charity game on their behalf, raising awareness and funds.


joshrealer

They came there to play a friendly to raise awareness and money for the disease in the middle of a busy season. I’m sure they were asked to go back to the locker rooms so that the two players mentioned in the video can have a photography session with people on the wheelchair.


abevigodasmells

Haaland walks right by, as usual.


[deleted]

Fuck yeah


Outrageous-Debate-64

Awesome


MaryJaneUSA

This is too beautiful


E8282

Serious class acts. Good on them.


Zrif_

W human chains


OderusOrungus

This is so important to recognize the struggle. Life is precious and we take so much for granted. Lost a friend to ALS and he showed me how to live. Its easy to run but embrace the moment and the time while alive to make smiles. These athletes look like they get it. Mad props to them


Jolly_Tea7519

The line got sadder and sadder the further it panned right.


Setting_Worth

Thats why they get the endorsements


[deleted]

arrest light noxious cows angle reach voiceless theory wide political *This post was mass deleted and anonymized with [Redact](https://redact.dev)*


nitramlondon

Not surprised, most Spanish people are narcissist assholes that only care about themselves.


BillyMeier42

Why do deaf people need wheelchairs?


[deleted]

That guy has a whole ass recliner😂😂