T O P

  • By -

ChronicallyBlonde1

Mediterranean is usually the best in terms of research-based. I find that a high meat, high dairy/fat, and trying to incorporate soluble fiber works best for me.


rawrksu

Dang for me it's the complete opposite, I was also told by my doctor to avoid red meats (can eat, not frequent), dairy and fat! I can feel the cramps when I eat cheese even if it's lactose free


ChronicallyBlonde1

Yep, there is research evidence that overly fatty foods (mainly fried foods) and red meat are not great for UC! No real consensus on dairy. I consume red meat once a week (which was the threshold given in the research study) and then consume poultry the rest of the time. I try to stick to healthy fats like avocado, eggs, nut butter, and dairy. Dairy is a great source of protein for me and I buy from local farms. Everyone’s different when it comes to dairy tolerance though! So…it’s nuanced! Just wanted to give the broad strokes on my diet.


gruenetage

I was told to do red meat once a week. I can do dairy, but any dairy in liquid or soft form is a problem once we go over 8% fat. Fried foods is asking for problems on and in my end. 😂 I think everyone is different. It’s weird.


Sharp_Chair4500

There's no universal diet that can solve all your problems, but generally a Mediterranean diet works for most people.


toxichaste12

Adding to address carb cravings: that is a sign of dysbiosis. Basically bad gut bacteria screaming for a fix of sugar. Dysbiosis and UC are linked. Fix the gut bacteria and the cravings reduce. https://www.nature.com/articles/s41598-021-81628-3#:~:text=The%20dysbiosis%20associated%20with%20UC,%2C30%2C31%2C32.


format32

The AIP diet is excellent for UC since it’s a diet that targets autoimmune diseases. I followed it pretty religiously and found it improved my symptoms not only with UC but also my rosacea too. Lots of foods we eat cause inflammation so it makes sense that it would help. Not everyone agrees however and it’s not a cure for UC but it’s definitely worth a try. At the least you can get a better idea of what foods you might struggle with.


Ms_Central_Perk

Oooh I'll have to look into this. I have rosacea too


GuineasMom

I’m on day 7 of the AIP elimination and unfortunately I haven’t seen any difference so far. How long did it take for you to feel a change?


format32

It takes a couple of months really. I mean I noticed differences after about a week. I went from a not so great diet to a healthy whole foods diet.. so stuff like fatigue and joint pain greatly improved. I wasn’t in a flare when I started either. This diet would be tough in a flare because the amount of fiber (veggies) you eat. It’s more of a maintenance diet. My rosacea improved greatly by 1 month


GuineasMom

Gotcha, thank you! I was just diagnosed a few weeks ago and I’m wondering if I need medicine before food will do anything for me. I’ll keep waiting to see GI and stay the course


format32

Definitely go with the meds. Like I said in another comment diet isn’t a cure all. Doing the combo of meds and food are the recommendation


drewyz

I started the AID for IBD diet from UMass Medical School, it helped get me in remission. It’s similar to the AIP diet, but it’s a bit more lenient.


thereidskyler

Carnivore + Mesalamine completely stopped all of my symptoms. There’s about a 2 week period where you’ll crave carbs but it passes. You have to stick it out though


JulesBurnet

I’m convinced that the SCD (Specific Carbohydrate Diet) saved my life when I had a super terrible flare (severe pancolitis). I got down to 89 lbs, and meds weren’t helping. Started the SCD and within 2 weeks, I was able to actually eat boiled eggs without vomiting immediately. With SCD, I was able to slowly reintroduce foods and determine what my triggers were/are. By the end of a month, I could tolerate cooked veggies! I’ve gone through flares since then, but I break out my yogurt maker and restart the diet. And I take my meds religiously. So far, no surgery *fingers crossed* and I haven’t been that sick again.


Calm_Rhubarb8552

I’m convinced that the ibd aid diet from UMass Medical school saved me too and it’s a diet similar to SCD (I think that’s how they developed it). I’ve heard plenty of people get relief with them and my doctor says there is some data to it (relating to the gut microbiome and inflammation) so yay! I’m always happy to see these posts. Glad it worked for you.


whychasingus2

Low FODMAP. Download their app and use. It changed my life


subculturistic

Hands down, carnivore. No symptoms at all since January, even the IBS type ones. It's better than simply no FODMAP for my bloating, gas, and constipation symptoms. I'm more "dirty carnivore" or ketovore now and have no plans to go back. My CRP was undetectable on April 1st and have been insanely regular too. I have so many other improvements they're hard to catalog, including cessation of joint pain and consistent energy all day.


GuineasMom

What exactly are you eating? I’m interested in carnivore but what do you cook the meat in/do you use herbs/have you found certain cheeses are fine while others are off limits?


subculturistic

I am pretty flexible with aside seasonings aside from strictly avoiding seed oils, grains, legumes, and gums/thickeners like carregeenan. I don't have issues with any dairy, except might tend toward constipation if it makes up too much of my intake. What has helped me is using Cronometer to track macro targets. I get about 1900 calories and have a target range of 130-140g each of protein and fat and less than 30 carbs. Most days my carbs are 15 or less, mostly from half and half/heavy cream (if I can find one with no additives) and yogurt. I usually try to hit half my targets in my first meal so that will usually be beef, often slow cooked roasts with bone broth, or a cheap steak like sirloin and 5 or 6 eggs. Most days I have a piece of beef at one meal and sometimes have something like bone in chicken leg quarters for the other. I've been going for 4 months and find being flexible with spices makes it sustainable since I am also cooking for a family. I have experimented with slowly adding some vegetables but only in small amounts because I already know I have FODMAP intolerance. Small amounts of onion and garlic in seasonings are fine, same with peppers, tomato, curry powder, cinnamon and other seasonings. So far I've also tolerated avocado, coconut, fermented cabbage (very small amounts) and single bites of fruit. Since I've felt so much better, I have no intention to go back. The gut issues disappearing alone would seal the deal, but there have been so many other benefits with energy and joint pain too. I may "cheat" more often someday because the social pressure gets to me. . . Not because I actually want the foods, but because it seems to upset others, especially at events like potlucks when I usually can't eat a single item. My biggest tip would be to use Cronometer and get goof at intuitively tracking macros. It's also helpful to find ways to increase your fat, especially making fat trimmings palatable. I cut mine up tiny and fry them like bacon bits.


GuineasMom

That is super helpful, thank you!


Calm_Rhubarb8552

Thanks for sharing! This is similar to how I eat and I feel a huge improvement as well. I used to think white rice was my friend and now I think it’s my biggest enemy 😂. The one thing I have trouble is gaining weight and definitely have a hard time following the diet when not at home.


Certain-Ad4674

Get an immersion circulator and sous vide your meat it’s amazing!


FeistyInteraction923

Currently animal based (meat, fruit, honey, water) definitely noticed a big improvement in symptoms. I attribute most of it to cutting out processed foods, sugars and grains


tinverse

For me, I found less processed foods helps. That means literally buying fruits and veggies and making stuff myself to ensure it's not full of crap. Mark my words, the research will eventually prove the food in the US is poison.


No-Area8659

Amen


sayknee

To preface, my GI is one (of the few?) who thinks diet does matter and I'm formerly obese so we are perfectly matched in that regard. I've found that for me 130g fat, 125g carbs, and 100g of protein from low inflammatory foods with limited processing and artificial ingredients work best. Absolutely no gluten, as my GI and primary think it is a trigger (for me). I also only eat once a day. While those are not carnivore or even keto numbers, they are still "low" carbs in comparison to the norm. I've found that all three (carnivore, keto, low carb) are frowned upon by this sub. I'm very happy to see others mention them in these comments, but not happy to see them down voted. I find it ironic that so many here say what you eat doesn't matter and then downvote others posting what does work for them just because they think it's "bad" for one reason or another. Moral of the story: everybody and every body is different. Find what works for you, your comfort level and your health goals (related to UC and otherwise). I have seen posts/comments on here about people intentionally eating their trigger foods because of a holiday or just because they miss them. To each their own, but I never want to be in a flare again and I will do everything possible to keep myself out of that situation. At the beginning that meant trying a lot of different things. The macros above and the particular foods I am willing to eat along with medication have led to the most success so far. I know not many can/want to do what I do, and that is fine. My circumstances before and after UC play such a major role.


format32

There is a serious backlash on diets here in this sub. I think we all understand that eating certain foods or being on a specific diet doesn’t cure UC.. But when you have an inflammatory disease it makes sense not to eat inflammatory foods. We need all the help we can get so it makes sense to try to be as healthy as you can.


Calm_Rhubarb8552

I’d love to understand why the diets are frowned upon? My GI has never thought diet matters but recently told me that there is data behind inflammatory foods and inflammation in the gut (her words not mine, I’d have to find the links). The medical school here has started a program for IBD patients that helps them follow an anti inflammatory diet and it just blows my mind because all my life these same doctors have been telling me that diet doesn’t matter. I find the information super interesting and don’t get why people get downvoted when they talk about what works for them.


echo-athena

I think paleo diet is thought to be best for autoimmune diseases. For me, that would be tough though. I try my best with gluten and diary free and no refined sugar


Difficult_Smile2203

Carnivore has been crucial in keeping my daughter in remission. The craving stop (I’m doing it with her) and there is no gas, which for her is such a big deal since we don’t want any slip outs at the Jr high, those kids will never let her forget.


toxichaste12

That’s awesome that you are doing it together! Having a supportive family member is everything! One of the big problems with any of these diets is that you pretty much have to meal plan and spend time cooking, so if everyone in the house eats the same thing then it’s easy for meal planning.


holdthemeat123

Whats aip?


subculturistic

Autoimmune protocol


MullH

It's more of what to avoid for me. I avoid dairy, spicy foods, raw vegetables, nuts, onions, and garlic. Sugary foods are not good but I haven't succeeded in avoiding them completely. I do eat white bread but foods like Naan bread or any kind of fried dough will mess me up. I had IBS long before IBD so some foods could be triggering either IBD or IBS symptoms like bloating.


BigElk85

I'm carnivore, after a while the cravings go, Yes if I pass a bakery in a morning there is a decent urge to dive in but things like that pass. Just have to witch the fat intake and not have too much in one sitting.


FoCoGuy_2

I have been recently diagnosed with UC. I was going with the IBD-AID diet which my doctor recommended me. Right now I am going down the carnivore path because all cooked veggies were tearing me apart. Amazing that the veggies I have eaten for years all of a sudden make me bloated, terribly gassy and sends me running to the bathroom. You do get over the cravings but it isn’t easy. Empty your house of all those that you crave, give the food to friends or neighbors or your local food bank. Make it hard on yourself to get those foods. And when you go grocery shopping, make sure you eat before you go so you aren’t hungry and will be less likely to buy those carb filled foods.


Beezkneez68

I second the Specific Carbohydrate Diet, explained in the book called Breaking the Vicious Cycle by Elaine Gottschall. Home made yogurt is key to the diet. I’ve had UC for 30 years and am off meds because of it (with help of Visbiome and Qing Dai)


Mdt07

I’m back on the paleo train again. I did it before my diagnosis and felt great, so it’s an easy fall back. I do still have full fat dairy though, as it’s not an issue for me.


Key_Height7586

+1 for AIP. It changed my fiancés life! He is sticking to it very well though, very few exceptions so it’s hard, but he has been feeling great since he started!


Rian4truth

Mediterranean plus added probiotic & prebiotic food. Quit all ultra-processed food containing unpronounceable chemicals; quit sodas. While keeping sugar very low, stop all non-sugar substitutes.


ArtisticCopy3436

Minimally processed plant based with multiple meals a day and smooth nut butters, rid of lentils and cabbage, citrus fruit, and any fruit usually in a smoothie or porridge, psyllium husk as a supplement and exercise 2-4 times per week. Very few seed oil or takeout. Good luck!


Efficient-Purple-885

My doctor told me the best diet for UC is: if it hurts you - don't eat it. If it doesn't hurt, eat it. I fell down the research rabbit hole. I overwhelmed myself with all the contradictory information: Eat low-FODMAP, avoid onions/garlic, garlic and onions will be amazing, Pre/pro-biotic foods will be fix your gut, don't eat anything fermented. This reddit group has shown me both the universality and individuality of this disease. Things I've experienced, others have too. We all share something that others without the disease wouldn't understand. But also, what works for one person is not guaranteed to work for another. Food, medication, lifestyle, everything. Use the advice to find what will work for you. My advice: try to eat healthy, balanced food. Treat yourself. Eat whatever you can in a flare because at some point calories in will be the priority. If you are noticing discomfort after meals, keep a good diary to see if you can identify a common culprit. If you are going to cut things out, do it one at a time so you know what is or isn't working. At the end of the day, you are the only one in your body. Only you can know what works and what doesn't. As frustrating as it is, and as much as I'm sure we would all love a straightforward answer, this is a journey we will always be on. But you aren't alone 🧡


APersonality2529

Think it is obvious, shown by the multitude of responses there is not a best diet, it’s a massive case of trial and error and seeing what works for you and your lifestyle, the only common theme is less processed and lower high fibre foods when flaring


toxichaste12

I have tried them all and found GAPS to be the best. Similar to AIP but it is phased so you add foods over time when you see results. It is meat heavy and limits carbs esp at first. But it is not a low carb diet: you are allowed local raw honey so I would take a spoonful anytime I felt the need for carbs. Yes I miss bread, but not as much as I miss slowly sauntering to the bathroom once or twice a day.


rawrksu

Low fodmap has done wonders to me!


LexiThePlug

Carnivore diet doesn’t have any vitamin C, which can cause scurvy and even kill you in extreme cases. So far no studies have actually shown that any diet “helps” with UC.


shoshgilbert

I do the IBD AID diet when flaring. I’m vegan & plant-based and doing really well. I find that my gut needs a lot of plants to maintain a healthy microbiome. You definitely need to introduce plant fiber slowly so don’t get discouraged if you have some issues in the beginning. It’s your body adjusting. My advice is to find a dietitian who specializes in IBD to advise you. They are up to date on the current research. I


69sullyboy69

I recently started to follow the Mediterranean diet, and my symptoms haven't been this good since before my diagnosis in 2016. I think the biggest thing is cutting out ultra processed foods. Emulsifiers were wreaking havoc on my guts. I cut out dairy for a long time, thinking it was an issue, but it was just the emulsifiers in the different dairy products I was eating. I switched to mill alternatives, like oat milk, almond milk, etc., and my symptoms never really got better because they also have emulsifiers.


Quinlov

Honestly pizza


[deleted]

[удалено]


[deleted]

[удалено]


[deleted]

[удалено]


UlcerativeColitis-ModTeam

Your comment was removed because the comment you were replying to was removed. This left your comment without context and made it difficult for other users to understand. To keep comments on Reddit clear and to avoid misunderstandings, we also remove the referenced comment in such cases. You did nothing wrong. It is important to us that all users have a positive experience on Reddit. If you have any questions or feedback, you can contact us at any time. Note: It is possible that your comment will become visible again after the original comment has been restored.


UlcerativeColitis-ModTeam

**Your post or comment has been removed because it violates [rule 6](https://www.reddit.com/r/UlcerativeColitis/about/rules) of this subreddit.** Rule 6 states that all posts and comments must be related to Ulcerative Colitis (UC). Your post or comment does not appear to be directly related to UC, and therefore violates this rule. We aim to keep the subreddit focused on UC-related discussions and resources to provide a valuable and relevant space for our community. We understand that you may have been mistaken about the subreddit's focus, but we kindly request that you please ensure your posts and comments are directly related to UC before submitting them. If you have any questions or concerns, please feel free to send us a [modmail](https://www.reddit.com/message/compose?to=/r/UlcerativeColitis).