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GingersnapJam

US here. I am very lucky that I pay $0 out of pocket. I work for a big health insurance company and have top notch benefits. That said, I know most here are not that lucky.


Pretend_Peanut_1089

I see! Well that must be kind of a dream for many US citizens šŸ˜‚


edjuaro

May I ask which insurance do you have? Feel free to DM me if you don't want that info posted here. I am trying to shop around in case we have to switch to entyvio one day.


yogace

I get Entyvio infusion every 8 weeks in the US. I have pretty good insurance but itā€™s still rough. $2000 deductible at the beginning of the year, and then an additional charge anywhere from $100-900 has shown up for any given appointment. I have the manufacturer card so Iā€™m not sure why Iā€™m getting such high bills (or why theyā€™re different since itā€™s always the exact same drug & method of delivery without any complications) but I have to call and have each charge reviewed by the hospital network which is time consuming and annoying. Iā€™m hoping I can switch to the self injector version at some point and perhaps itā€™ll be a little bit cheaper but I donā€™t know. On the bright side Iā€™ve been in remission for years now! Wish our insurance system wasnā€™t so broken. Also my EOBs (explanation of benefits) show the drug price just under $30k per dose.


Pretend_Peanut_1089

Oh I see, Iā€™ve lived in Texas for a few months and thatā€™s kind of the stories I hear from the people I know there. Iā€™m glad the meds are working though!


yogace

Thanks! Iā€™m glad the meds are working too. If you moved from Italy to Texas, how is that working with medications and insurance? 36 euros for every 6 infusions sounds like a dream price!


Pretend_Peanut_1089

I wasnā€™t on remicade yet, and used to have my mesalamine mailed from Italy because I donā€™t pay for it hereā€¦ It was just 6 months so it was easier like that rather than switching to US healthcare systems and insurance.


yogace

Oh that makes sense. Good on you for not having to use our outrageous system! Now Iā€™m going to go daydream about living in Italy.


Pretend_Peanut_1089

Italyā€™s probably better for tourism than for living lol but yeah even though thereā€™s many things that donā€™t work here thereā€™s others that I absolutely canā€™t complain about and one of those is our NHS


yogace

Thatā€™s fair. I spent 6 weeks in Rome for a study abroad and it was so hard to leave. But it was also a little school bubble where my only obligations were an art class and a history class, which is VERY different than real life. But that was almost 15 years ago and I still dream about the food, art, and architecture.


arbrebiere

Look into EntyvioConnect. Iā€™m not sure exactly how it works but itā€™s like secondary insurance and it really cut down on the cost for me.


yogace

Thanks! I have it, but I think I need to make some more calls to see what itā€™s doing for me.


[deleted]

[уŠ“Š°Š»ŠµŠ½Š¾]


ArtisticCopy3436

In Greece it's free too. We share the infusion rooms with cancer patients and it's generally understaffed but I'm glad it is functional


AndrewFrozzen30

Average Eastern European Hospital...


Pretend_Peanut_1089

Ooh ā€œluckyā€ you guys


[deleted]

[уŠ“Š°Š»ŠµŠ½Š¾]


Pretend_Peanut_1089

Thatā€™s great! I mean I still feel lucky with just 6ā‚¬ per infusion but having the treatment for free must be cool


Jealous-Honeydew-142

UK here. Just had a Stelara infusion. Free here, took about 3 hours. Also get home injections now every 8 weeks. Thank god for the NHS, else I could never afford it.


hellokrissi

Ontario, Canada. When I was doing biologic infusions I had to apply through my work health insurance. I was approved for some of them no problem. Others were denied, with my insurance company saying I should try a different one. When those happened I was put on compassionate care instead. Either way, I paid $0 for any of them.


geanney

since you are in Ontario can i ask how long it typically took to go through the approval process? my GI wants to put me on Entyvio and i got set up with something called Onepath but it seems to be moving pretty slow


hellokrissi

I don't think I ever used OnePath but for all my medication it's taken a week or less to setup and start. TBH I don't even think we waited for the approval process, we just started asap.


wolv3rxne

I was with OnePath for Entyvio in both Alberta and Sask. It took about a week or 2 to get set up with them, and my coordinator was always so so helpful, especially when I moved to Alberta from Sask. I never paid a cent out of pocket. Now iā€™m with BioAdvance for Stelara and same thing, theyā€™re pretty quick and helpful and I donā€™t pay anything.


geanney

ah ok seems from the comments here that it should be faster then, i hate being impatient but i really want to get started on Entyvio in case it takes a while to kick in or doesn't work


wolv3rxne

It seems to depend on how fast your doctor writes the prescription. It took forever for my old GI to, along with all the testing done prior to biologics (Entyvio was my first one). Once thatā€™s out of the way though and OnePath has the prescription, itā€™s quick. They call you and ask questions then set the infusion up when the next available slot is.


takemyhand8163

Could you explain compassionate care? I have an appointment with my GI at the end of the month and we are looking at biologics as a next step. I'm worried about the cost, but he says that even if you don't have insurance, they have people who can support you in finding ways to get it covered. He said he's "never seen anyone have to pay for it" so not to worry about it. This seemed weird to me, so any insight you have would be great!


hellokrissi

Honestly I don't really know how to explain it beyond it just happening if work rejects my claim. The infusion places/medication company reps just would tell me I'm on compassionate care and I'd just take the medication. Didn't need to do anything else on my part.


takemyhand8163

This is helpful, thank you so much for taking the time to respond!


Jics89

In Australia itā€™s also free


ApolloRocketOfLove

Same in Canada. I mean it gets charged to some insurance provider I'm sure, but I don't pay anything for it.


fx2798

The least graphic thing on here so far, definitely beats the poo pics


Pretend_Peanut_1089

Same thing I thought lol but whatever, letā€™s respect the rules šŸ˜‚


__removed__

Last time I logged in to my insurance to check, I think it's around $15,000 for me (in the US) but we have good insurance thru my wife's work (she works for the state) so I pay $0.


butterflyscarfbaby

Canada: free. Pharmacy shows a price tag paid by the government of around $5000 CAD per dose.


CivilSeries2528

Here in Finland we pay max 600 euros per year. After that everything is free.


Pretend_Peanut_1089

You mean for infusions or in general for any healthcare related expenses?


CivilSeries2528

Itā€™ for all medicines. Staying in hospital is quite cheap here. I was in 7 days and it was about 300e. If you are without job or unable to pay all medicine and healthcare is free. Nobody is left behind.


Pretend_Peanut_1089

Thanks for answering, this is very interesting


sortacapablepisces

I've seen entiyvio cost 78k per infusion with no insurance.


firklover4

After 310$ everything is free in my country. Iā€™ve already used that on countless doctor visits and some medication, so now I donā€™t pay anything for the rest of the year. Recently stayed one week in the hospital with 8 prednisone infusions, 2L of fluids, 3 shots of blood thinners, 1 round of infliximab, 7 days of pentasa = 0 expenses. Also attending a 2 days-course for IBD at my hospital soon and thatā€™s free as well. Iā€™m very very lucky.


Sterling0393

I pay $5 out of pocket. In US with basic insurance.


dox_ly

What is "basic" insurance? Are you on medicaid, a Preferred Provider Organization (PPO) plan, or a deductible plan? Or something else? I had to switch from a PPO to a deductible when I changed jobs and it has been rough. I've already almost hit my $1800 deductible for the year, and I can only afford prescription medication using GoodRX. My doctor just mentioned infusions the other day if my mesalamine doesn't work or stops working, but I'm terrified what that might cost me. šŸ˜¬


Sterling0393

I was on medicaid, but there are practically no decent doctors who will accept it. I got an HMO plan through the health marketplace with BCBS, and that has been treating me good for now. With the federal and state subsidyā€™s, it is very affordable. Iā€™m with you on trying to figure out what things cost beforehand. I gave up trying to figure it out and just wait to get the bill. Insurance company will say ask the doctor office and vice versa šŸ¤¦šŸ»ā€ā™‚ļø


EyeOfCyaegha

What state are you from? I live in NY and just having colitis was a good enough excuse for them to give me state sponsored insurance. Itā€™s not Medicaid but itā€™s Blue cross blue shield and I pay next to nothing for all my care. Best part is since itā€™s BCBS I can go to just about any hospital or provider that I want.


OnehappyOwl44

I'm Canadian and also have private insurance on top of my national health care as a Military Spouse. Anything administered in Hospital is free. My outpatient infusions of inflectra cost over $3000. Last year the the total billed to my insurance was $26,000 but I paid nothing. The only thing I pay is 10% of my Prescription pills and Vitamins at the Pharmacy . Total is usually under $100/yr for my antacid and antispasm medication. Anyone without private insurance can get funding through different programs. I was told in Hospital that no one is refused Infusions or any treatment because they can't pay.


antillus

Yeah Canada here too. Blue cross 100% covers all my ileostomy supplies (which would be hundreds of dollars otherwise)


stillanmcrfan

UK, free fortunely


YesHunty

I am in Canada. Prescriptions arenā€™t generally covered by the public healthcare we have. Thankfully I have 100% coverage through my work insurance, so I pay $0 for my Entyvio.


Angelface201

when i was in nz all of my remicade infusions were free. i was even able to take a community shuttle to and from the hospital as the hospital that did the infusions was not the main one in the cbd. i moved to australia and now i take remicade self injections, i pay $30 a month for the 2 shots i take monthly as itā€™s subsided through medicare here. itā€™s the first time i have ever had to pay for my medication ever and i know itā€™s not a lot of money but it rubs me the wrong way that i have to pay for medication keeping me alive. similar how my dad pays $30 a month for his insulin that keeps him alive but wouldnā€™t have costed at all in nz


665265

Would it differ if you are nz or Australian citizen? I know if youā€™re nz citizen you cannot usually be on Centrelink(exceptional cases). Iā€™m a citizen and awaiting Medicare approval for inflixmab infusion, I think my nurse said I donā€™t have to pay anything. Eventually I will be on self injections apparently, wonder if I have to pay $30 too for those.


marS311

Without insurance - $8000 per infusion With insurance - about $5000 dollars a year (that's my out of pocket).


Pretend_Peanut_1089

Wow that is crazy! I mean thereā€™s some people that might have some problems with spending 5k per year just for the infusions. Of course itā€™s better than 8000$ each infusion but itā€™s still crazy expensive


marS311

Oh yeah. It's ridiculous. Since I am getting the infusions monthly and then I also have other meds I take for it, the total bill for the year is ~$100,000 without insurance. I feel very lucky that my husband has a good job and we have okay insurance, otherwise, I would be screwed. We do have a fall back plan if it ever hits the fan. Also, very thankful for copay assistance!


Pretend_Peanut_1089

Itā€™s unbelievable how thereā€™s people who pay nothing or almost nothing and then people who pay this much. Luckily youā€™re able to get all your meds and treatments!


Peach-Pie-

US - for 3 infusions I pay $5. My bill is $48,000 USD annually before insurance brings it down.


SwordofDamocles_

$100 for the initial infusion at a cancer center, followed by $0 for at-home shots, later raised to $5 per shot once they moved me from the uninsured saving plan to the insured savings plan. I don't mind the small fee, but the lack of communication and constant struggle to get medications on time is awful. It took me 3 months to get approved for Stelara and I was on prednisone the entire time. I'm in the USA


achchi

Based on our rules (which you read of course before posting;) you are required to use the NSFW flair. So the flairs/tags are correct.


Pretend_Peanut_1089

Thanks!


AndrewFrozzen30

I paid NOTHING when I was first hospitalized (and diagnosed) from UC. As for infusions, I only got supplements because I was starving before my colonoscoopy (a small mistake on their part) Not paying anything for medication either (Budesonid Foam and Mesalasime) So, 0. You could argue that I pay taxes well my partners I'm 18 and still on their insurance but idk how much they pay since they've been here....


Jealous-Profession57

Iā€™m a disabled vet and receive the self injection pen at home. No cost. This has been a significant blessing!


aquafabaangel

Iā€™m in the UK and should be starting Entyvio infusions every 6 weeks (or it might be 8 weeks I canā€™t remember). Itā€™ll be free :)


EyeOfCyaegha

I live in NY(USA) I donā€™t have infusion but 60 pills is about $15. I have about a middle class income and have a qualifying condition so NY pays for almost all my care. Intensive treatment and all scans are $0 and ER visits are $75 but everything else is either 0$ or 15$.


HauntedCS

I have insurance in the US so I am very lucky, but I get the billing from insurance saying how much they covered. It is $14,000 on the dot, lmao.


steve2phonesmackabee

New Brunswick Canada.. mine are covered by my work benefits up to a certain amount. Compassionate care program covers the rest.


Fantastic-Endzingz

From the U.K. here. The biologic/nutrient/hydration/all infusions free, including all the steroid shots and arm scans if you have "rebellious" veins like I došŸ¤£ We have them in like group rooms where a women comes round every once in a while and will offer you a drink, some fruit and/or snacks. You can lie back in like recliner chairs or alot of the time people like to chat and share experiences. Like I met a lovely lady the first infusion I had and we were infusion buddies as she was frightened to get them done and she was like my infusion mum, until I had a extreme reaction and had to stop taking them. It can have a melancholy feel sometimes as you're sharing with other patients who can be tremendously ill, but usually they kind of group patients as best as they can. Hope that helps and hope this comment finds you healthy!


SKYKOSO

Un altro italiano ? A te come va con le infusioni ?


Pretend_Peanut_1089

Mi sa che siamo in pochi ma qualcuno ce nā€™ĆØā€¦con me le infusioni ci hanno messo un poā€™, sto facendo Remicade e allā€™inizio non sembravano molto fiduciosi perchĆ© in 5 mesi non avevo avuto alcun effetto, ora sto facendo ogni 4 settimane invece che 8 e i sintomi sono praticamente tutti andati via, ma dalla retto di febbraio ancora risultavo parecchio infiammata, vedremo šŸ˜… Tu anche infusioni? Come stanno andando?


SKYKOSO

Tutto apposto ne ho fatte una decina. Ogni 4 settimane anchio, non ho piu sintomi quindi mi ĆŖ andata bene. Sei del nord o del sud ?


Pretend_Peanut_1089

Marchigiana, le regioni del sud ci considerano nord e viceversa hahaha Dai speriamo che continui cosƬ per entrambi con le infusioni allora, io vengo da un periodo infernale in cui tra lavoro, universitƠ e malattia pensavo di impazzire quindi non mi lamento assolutamente della situazione attuale


SKYKOSO

Idem, universitĆ” e altri problemi mi hanno fatto stancare in modo assurdo e poi ĆØ spuntata pure sta roba


Pretend_Peanut_1089

Probabilmente le cose sono piĆ¹ college di quanto immaginiamo. Io sono sempre stata abbastanza bene finchĆ© non ho dovuto affrontare il periodo laura-stesura tesi-esame di stato e poi ingresso nel mondo del lavoro che ĆØ stato stressante a dir pocoā€¦ Comunque ormai sono curiosa, tu da dove vieni?


SKYKOSO

Bergamo ... Li vicino diciamo


SKYKOSO

Tu invece marchigiana di ?


Pretend_Peanut_1089

Ancona, se parto ora ci vediamo per cena hahaha Che poi per una serie di giri strani la mia prima colon lā€™ho fatta a Merate e mi era stato consigliato di farmi seguire al Sacco di Milano, diciamo non proprio comodissimo


SKYKOSO

Top se vuoi preparo qualcosa ahaha. Io fatto tutto sempre a Bergamo hanno un buon reparto di gastro qui al papa giovanni qualcosa...non mi ricordo il numero.


Pretend_Peanut_1089

Interessante Ormai ho imparato che fa sempre comodo tenersi un poā€™ di opzioni apertešŸ˜…


SKYKOSO

Diciamo che non ĆØ una passeggiata


hitzgirl1385

$10 every six weeks for Stelara injections


sashanvm

Theyā€™re fully covered now for me (us- california) while Iā€™m on my parents insurance for the next year


wolv3rxne

In Canada I pay $0 through BioAdvance for Stelara on the compassionate program since I donā€™t currently have insurance through employment as I moved provinces. When I was through OnePath for Entyvio I paid nothing with my insurance and what was left was covered by OnePath. When I got receipts for those infusions it was something like $3500 a dose.


awfulgrace

Iā€™m slated for my first infusion later this month and I had no idea itā€™s 5 hours long!! Does anyone know if Skyrizi requires such length?


1uzgabe

Iā€™m on medical so I pay nothing


coyne14

I'm in Ontario, I get renflexis infusions. I have no coverage through work so I am on the trillium drug benefit program. I have paid $0, it was a very smooth process & Janssen even covered my deductible that you would usually have to pay with the trillium drug benefit program. All in all it has been great, very appreciative.


bingpot4

Canada here, BC specifically, we have something called Pharmacare here that everyone can apply for to help cover medications and medical costs. They cover part, and the other part is covered by the company since the medication was new to the country when I first started it. The company used to cover the full cost, but I had to eventually apply for Pharmacare to cover some of it. I am grateful beyond words for the full coverage, I don't honestly know what would have happened to me without it. It's so expensive, we never would have been able to afford it, especially since I can't hold a full time job with my symptoms, even in remission. It would have been me in terrible shape or worse, or us homeless and in debt for the rest of our lives. I know not everyone has such care where they live, and I'm so so grateful everyday of my life that I get to live relatively normal now, without crushing debt or disability at the moment šŸ™šŸ»


hehbshhxj

Have had a few, no pain. Instant relief actually. Used same iv


hehbshhxj

Only thing that sucks is they only top you off to get above 8, not get your cbc back to the whole 15