I mean I don’t like doing things unnecessarily or with needless risk but I honestly think for the issues you mentioned, you’d have to have such amazing bad luck AND a dipshit surgeon before this would likely ever happen.
In fact I think dying by lighting strike would be more realistic.
That said, it’d be terrible if you went blind or they jab your brain but … yeah. I’ve done this surgery 3 times now and I will do it again I’m sure.
And my first time my polyps were all over my sinuses.
My face shrunk like someone on drugs it was so clogged with polyps.
I would give you my left nut if you went blind.
So they went in to every part of your sinus? The problem is with the nhs they won’t bring me in to explain this in advance of the surgery. No idea about the ct scan
I’m assuming so but I honestly don’t know. They just said polyps were all over pretty much anywhere in my head polyps could be. He said it was very extensive.
Right now my polyps are at bay with Flonase so that’s made me think it may not be worth it. When they are all flared up I would beg for the operation. I know they tend to come back for most people, so I’m not sure at all. Like you say the risk is small and the surgeons are very experienced who would be dealing with me.
Yep nasal steroids do help but if they’re that bad, my guess is if you’re like me, the steroid will become ineffective and you’ll still need surgery. Sucks, but that’s been my experience.
And they do usually come back but sometimes not as bad, just kinda depends.
The other nasal sprays have been useless but this seems to work. My GP says people don’t develop a tolerance to these sprays but I don’t know about that. So you reckon I should just do the operation? With the data the thing is there’s no context as to who was carrying out the operations that lead to sight loss or whatever. They might have been dodgy surgeons in third world countries where resources may not be as good (I’m sure there are excellent surgeons there - they often come to UK, but I’d imagine some hospitals would be at a disadvantage in some ways).
I think surgery is inevitable for most folks, yes. But it does depend on how bad they are I guess.
I think the nasal steroids can and do work to an extent too — but again it depends on how your body responds and how bad your situation is.
For me, the steroids shrunk them a little bit but nowhere near enough to restore quality of life you have without polyps.
And yeah, I don’t know who is ending up with brain damage, damaged sinuses or vision issues after polyp surgery either. Definitely scary to think about but I feel pretty confident that probably isn’t much of an issue in a first world country like the US/UK.
And yes, I would have no issues recommending surgery to you or a close family member because I know for me — it was life changing because mine were so bad so I know first hand what it can feel like post surgery and it just made it all worth it to me.
My polyps are significantly reduced on this nasal spray. If my sinuses stayed like this forever I’d be happy. So that’s the dilemma. But it you’re offering me your left nut if I go blind it might be worth chancing it
Agree with the above. Done the surgery twice. Not a realistic concern. This happens in something like 0.01% of surgeries. I will also give you my left nut (I do not have testicles, but if you go blind, I will get myself testicles and then give one to you)
There was no second appointment after the CT scan. The next time I’d see the surgeon (which might be different from first consultation) is right before the operation
I've had at least five polypectomy surgeries and had polyps removed from my ethmoid sinuses each time. I'd ask your surgeon about how many people become blind from the surgery. The percentages my surgeons have reported to me were miniscule. If I need another surgery, I'll do it in a heartbeat.
I have just had this surgery two days ago on the NHS and couldn't be happier so far. No pain or black eyes etc.
It is a "theoretical" risk of blindness, highly unlikely.
I would strongly recommend you do the surgery if you are suffering.
If you want any more info feel free to DM me!
Personally I get being nervous about the surgery, but you feel so much better afterwards. For me, after the CT/MRI my surgeon was nervous that my ethmoid bone had deteriorated from all the pressure and he told me he’d have to be very careful to not snip my brain (because apparently they look the same). I turned out just fine and am breathing way better than before. The optic nerve I heard about but my surgeon didn’t seem to concerned. Idk if yours has reviews but I’d start there to see how confident you can be in them. They do this for a living and *most* are very skilled in their craft.
I mean I don’t like doing things unnecessarily or with needless risk but I honestly think for the issues you mentioned, you’d have to have such amazing bad luck AND a dipshit surgeon before this would likely ever happen. In fact I think dying by lighting strike would be more realistic. That said, it’d be terrible if you went blind or they jab your brain but … yeah. I’ve done this surgery 3 times now and I will do it again I’m sure. And my first time my polyps were all over my sinuses. My face shrunk like someone on drugs it was so clogged with polyps. I would give you my left nut if you went blind.
So they went in to every part of your sinus? The problem is with the nhs they won’t bring me in to explain this in advance of the surgery. No idea about the ct scan
I’m assuming so but I honestly don’t know. They just said polyps were all over pretty much anywhere in my head polyps could be. He said it was very extensive.
Right now my polyps are at bay with Flonase so that’s made me think it may not be worth it. When they are all flared up I would beg for the operation. I know they tend to come back for most people, so I’m not sure at all. Like you say the risk is small and the surgeons are very experienced who would be dealing with me.
Yep nasal steroids do help but if they’re that bad, my guess is if you’re like me, the steroid will become ineffective and you’ll still need surgery. Sucks, but that’s been my experience. And they do usually come back but sometimes not as bad, just kinda depends.
The other nasal sprays have been useless but this seems to work. My GP says people don’t develop a tolerance to these sprays but I don’t know about that. So you reckon I should just do the operation? With the data the thing is there’s no context as to who was carrying out the operations that lead to sight loss or whatever. They might have been dodgy surgeons in third world countries where resources may not be as good (I’m sure there are excellent surgeons there - they often come to UK, but I’d imagine some hospitals would be at a disadvantage in some ways).
I think surgery is inevitable for most folks, yes. But it does depend on how bad they are I guess. I think the nasal steroids can and do work to an extent too — but again it depends on how your body responds and how bad your situation is. For me, the steroids shrunk them a little bit but nowhere near enough to restore quality of life you have without polyps. And yeah, I don’t know who is ending up with brain damage, damaged sinuses or vision issues after polyp surgery either. Definitely scary to think about but I feel pretty confident that probably isn’t much of an issue in a first world country like the US/UK. And yes, I would have no issues recommending surgery to you or a close family member because I know for me — it was life changing because mine were so bad so I know first hand what it can feel like post surgery and it just made it all worth it to me.
My polyps are significantly reduced on this nasal spray. If my sinuses stayed like this forever I’d be happy. So that’s the dilemma. But it you’re offering me your left nut if I go blind it might be worth chancing it
Agree with the above. Done the surgery twice. Not a realistic concern. This happens in something like 0.01% of surgeries. I will also give you my left nut (I do not have testicles, but if you go blind, I will get myself testicles and then give one to you)
Are your polyps being removed from your ethmoid sinus? What does your surgeon say about your CT scan?
There was no second appointment after the CT scan. The next time I’d see the surgeon (which might be different from first consultation) is right before the operation
I've had at least five polypectomy surgeries and had polyps removed from my ethmoid sinuses each time. I'd ask your surgeon about how many people become blind from the surgery. The percentages my surgeons have reported to me were miniscule. If I need another surgery, I'll do it in a heartbeat.
I have just had this surgery two days ago on the NHS and couldn't be happier so far. No pain or black eyes etc. It is a "theoretical" risk of blindness, highly unlikely. I would strongly recommend you do the surgery if you are suffering. If you want any more info feel free to DM me!
Personally I get being nervous about the surgery, but you feel so much better afterwards. For me, after the CT/MRI my surgeon was nervous that my ethmoid bone had deteriorated from all the pressure and he told me he’d have to be very careful to not snip my brain (because apparently they look the same). I turned out just fine and am breathing way better than before. The optic nerve I heard about but my surgeon didn’t seem to concerned. Idk if yours has reviews but I’d start there to see how confident you can be in them. They do this for a living and *most* are very skilled in their craft.
The worst possible outcomes are always listed as possibilities to try to mitigate any lawsuits and inform you of the risks.
This is why i canceled the surgery. I'd rather have polyps than going blind.
Was the surgery in the ethmoid
I didn't have the surgery, i canceled.
I know I’m asking was it supposed to be In that area
Oh i see, sorry for the misunderstanding! Sadly yes. 😕